PSA Results good Testosterone results confusing

Richard, sorry to hear you are having these issues, similar to mine.
To answer your lead question, the side effects I’ve had are hot flashes, weight gain ALL around the middle, elevated lipid profile, loss of some body hair and I think some loss of muscle. I don’t notice much fatigue during the day, but do find myself falling asleep earlier in the evening,

Right now, the most troubling to me is the weight gain and related elevated lipids (specifically triglycerides ) I had a fairly flat stomach prior to treatment beginning, and the basketball stomach really bothers me. But I won’t give up working on it. The hot flashes continue, but over the last week seem to have markedly decreased in frequency and intensity. But that’s happened before, then reverted, so I’m not excited yet, I’ll retest my T this coming week.

Re the Clomid... I may have mentioned, my RO is working on a trial using clomid to naturally (not supplements) increase men’s T levels after ADT. Personally, I’d rather leave that to others for now, I understand that PSA would be followed closely, but if it goes up, then cancer is on the move (at least for me, having had surgery). So if the side effects are only annoying and not destroying my QOL, I don’t want to mess with it. But that’s me.

As far as fatigue, I think we all need to remember that we “ain’t no spring chickens no more”, and while HT May sap our energy to some extent, it’s also just plain old getting older. Hate to admit that, but it is what it is. Fight it with exercise and active lifestyle.

Good luck, keep us posted and I’ll do the same.

Well, I retested my fluctuating Testosterone levels on my own, and it came back at 149. So,I did a round trip from 149.8 to 97 back to,149 (3 different labs. ). So the progression since finishing SRT+adt is now..


8/22/2018 - 322 MSKCC - Baseline before first adt shot
9/24/2018 - 5 - MSKCC
10/23/2018 - 6 - MSKCC
11/20/2018 - 4 - MSKCC )DATE OF LAST 3 MONTH SHOT)
04/05/2019 - 7 - MSKCC
5/29/2019 - 48 - NORTHWELL HEALTH
7/12/2019 - 62 - LABCORP
9/10/19 - 149.8 - NORTHWELL HEALTH
10/8/2019 - 97 - MSKCC
10/22/2019 - 149 - LABCORP

I think either the 97 was an error, in which case my T hasn’t moved since sept 10th. Or it’s fluctuating wildly,
I don’t know what to make of it

RichardNY,

I would suggest you consider your sluggish T recovery and your ED to be separate problems with the only relation between them being that as your T recovers it makes the ED more frustrating. If the Clomid was working to help with your T recovery then you might consider doing that and dealing with the ED as a separate issue. It's not likely that the Clomid is causing the ED. Have you tried pills for the ED? SIldenafil (the drug in Viagra) is available as a generic these days and is fairly cheap. Also, injections aren't the only way to supplement your T if you wanted to do that. I use a compounded gel that a local compounding pharmacy mixes up for me. It's not free but it is not crushingly expensive. (about $60 a month).

Carl,

You've been undetectable for a long time now. My MO was initially reluctant to supplement but became less so as my PSA remained undetectable. You might ask your doctor if there will come a time when he would consider supplementing your T if your PSA continues to behave. Yes, you are a Gleason 8 but I'm a 9.

Prato,

I tried the Clomid thing. I also tried combining it with hCG injections all with disappointing results. After several years of undetectable PSA results my MO agreed to supplement directly. I would have preferred to restart my natural production but that didn't seem to be happening.