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Penile clamp? Butt pain.

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Posted 11/7/2019 11:31 PM (GMT 0)
I'm 5 weeks post op, having had robotic surgery on Oct. 4. Had the catheter out on Oct. 16. Been very incontinent ever since, using 5 - 8 heavy pads per day. Night time is good except when I get out of bed....need to pinch it or have a styrofoam cup under or I won't make it to the bathroom. My doc told me the op was very non evasive...had two incisions, small one lower right and another one about an inch long right below navel....went home same night. I've always been a very active person, 72 but look a lot younger, going to the gym daily, slim build. I'm retired and have volunteered several days a week with a volunteer non profit Veterans service organization, providing donated furniture for homeless Vets when placed in apartments by the VA. Needless to say, going to the gym, moving furniture, or anything requiring any type of physical activity, even getting up out of a chair or taking a walk, is now almost impossible with the incontinence pads getting soaked in an hour. Someone told me about penile clamps....are they safe to use? The other question is I have quite a bit of soreness between my nut sac and butt hole, especially when sitting on hard surfaces....seems to be worse after Kegels....is this a normal result of surgery?
Posted 11/8/2019 6:58 AM (GMT 0)
My pt had me get a Cunningham clamp to train my bladder to hold longer. Seemed to help. The most comfortable was a Mr Dribblestop. Problem is they sell them in a package of 2. I have one I never used. See: Coloplast.us. I am getting a free sample of a Coloplast external catheter. Fits over your penis with a tube. 2 years after RP and I still leak when riding my quad with legs spread. I do this in the winter. Full pad at 10 degrees = frozen penis. Have you gone to Physical Therapy for the incontinence and penile rehab? I highly recommend it
Posted 11/8/2019 12:51 PM (GMT 0)
It sounds like you are pretty active but you have to remember you are only 5 weeks out so you have to give it time. Probably the number one thing we promote here on the forum is that you do lots of walking walk as much as you physically can and then walk some more. Don't overdo the kegals. Even after a couple plus years lifting certain ways or doing something different can bring a little leakage. Keep walking and let us know how it goes. Larry
Posted 11/8/2019 1:14 PM (GMT 0)
I do walk a lot....2 mi a day but I leak constantly during the walk and anytime I kneel down/sit down and get up or get up out of bed. I do 3 sets of kegels a day, 30 each set, 5 sec hold/5 sec off, per doctor's order. I also started doing kegels while standing over the toilet, stopping the piss flow for 5 sec, doing around 4 or 5 holds. I'm going to order a penile clamp so I can get out without being concerned about filling a pad. Glad I found this forum....so much good info and support. Thanks for the responses.
Posted 11/8/2019 11:30 PM (GMT 0)
Holidayhil, I was told not to stop and start pee flows for exercise. Maybe a few times to make sure I had the right muscles, but only that. ie do exercises elsewhere. Maybe my guy is mistaken but I'd double check if I were you. Also, there are physios around who can ultrasound you as you do the kegels so they see if you're working the right muscles. I got referred there and it was really worth it. Only one visit is needed.
Posted 11/9/2019 12:58 AM (GMT 0)

jasperx10 said...
Holidayhil, I was told not to stop and start pee flows for exercise. Maybe a few times to make sure I had the right muscles, but only that. ie do exercises elsewhere. Maybe my guy is mistaken but I'd double check if I were you. Also, there are physios around who can ultrasound you as you do the kegels so they see if you're working the right muscles. I got referred there and it was really worth it. Only one visit is needed.


I saw a thread on here about doing the kegels while urinating....I believe it was 5 reps at 5 secs each several times a day an hour apart. The hospital where I had the surgery brings me in every week or so to check the kegel performance on the computer.....been looking good. just didn't expect the severe leakage issues right off the catheter removal but it's improving. I go for my first post op PSA blood draw tomorrow so should have the result by end of next week.....hoping for the best.
Posted 11/9/2019 11:25 AM (GMT 0)
Holiday, my urologists at the Mayo told me the same thing that Jasper is saying don't start and stop your urine flow as your doing, because you will not be emptying out your bladder like you should. Even now I usually stand at the urinal and wait for the last few drops this avoids getting wet later. Again you have to remember you had major surgery so it's gonna take time to recover, if your having your psa checked at 6 weeks don't be surprised if you still have some residual psa left usually around three months is a good time to check.

Larry

p.s. Could you put your pathology report in a signature at the bottom that could help the guys offer their suggestions also. Wow never heard of anybody going home the same day they had surgery. Did you have a JP drain? Thanx
Posted 11/9/2019 8:14 PM (GMT 0)

Skypilot56 said...
Holiday, my urologists at the Mayo told me the same thing that Jasper is saying don't start and stop your urine flow as your doing, because you will not be emptying out your bladder like you should. Even now I usually stand at the urinal and wait for the last few drops this avoids getting wet later. Again you have to remember you had major surgery so it's gonna take time to recover, if your having your psa checked at 6 weeks don't be surprised if you still have some residual psa left usually around three months is a good time to check.

Larry

p.s. Could you put your pathology report in a signature at the bottom that could help the guys offer their suggestions also. Wow never heard of anybody going home the same day they had surgery. Did you have a JP drain? Thanx

I'll have to dig out the pathology report....didn't get one post op, only after the biopsy. No drain was put in during op. Doc told me if he did one incision there'd be no drain...if two or three there would be one. Well, there was one small incision on lower right and a second one right below my navel where I guess they yanked the prostate out but no drain. He discharged me that evening, felt like I was still half drunk when I got home.
Posted 11/9/2019 8:54 PM (GMT 0)
I would be calling the Doctor on Monday demanding a post op path report That is probably the most important thing about having surgery is you know exactly what your Gleason Score is, nerve bundle involvement, seminal involvement,
margins lymph node removal? bladder neck affected? which could be one of the issues your having with incontinence. And probably the biggest one what stage was your cancer? Larry
Posted 11/9/2019 9:19 PM (GMT 0)
7/11/19 PSA: 4.95
Clinical stage: T1c
Gleason: 7 (4+3)
# of positive cores: 3 out of 12
Greatest % of core involved: 60%
PSA density: 0.268 ng/ml/g
Robotic surgery 10/4/19 Lehigh Valley Health Network (Cedar Crest), Allentown, PA...... Dr. Angelo Baccala, Jr.
Posted 11/13/2019 12:36 PM (GMT 0)
First post op PSA: 0.01
Posted 11/13/2019 3:22 PM (GMT 0)
👍👍👍👍
Posted 11/13/2019 3:49 PM (GMT 0)
YAY!!!
Posted 11/20/2019 10:06 PM (GMT 0)
I'll be 7 weeks post op Friday and have been wearing a penile clamp for the past several weeks due to excessive uncontrolled urination during the day, especially when getting up from a chair or from kneeling, or going out for a long walk, or exerting myself. And if I go out volunteering all day I didn't want to bother with a soaked pad. Today was the first day I left the clamp at home when I went out for my 2 mile walk, including hills. To my surprise I didn't leak at all and still have it removed several hours later while I'm typing this and haven't leaked at all. So....real improvement on the incontinence. Happy day!!! Hope it continues and now hope the erectile function comes back. This went downhill after the prostate biopsy and is now gone totally.
Posted 11/22/2019 8:28 PM (GMT 0)
Awesome! Seeing how I am heading down this path - currently making up my mind of RALP or a form of RT, this is of interest to me right now.
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