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Posted 3/31/2020 3:41 PM (GMT 0)
morning to all in reading zytiga threads lots of advise on what and when to eat and drink with zytiga like little coffee no juices etc. What not to take (liquid) with predisone, would be helpful to me. V A. palo alto just canceled all appointments One is my first blood test (liver) Doc.is trying to get me in Reno V A .Hope he can pull that off -- Has anyone gone 2+ months no liver look on first month? have no side effect"s at all Doc has already sent next scrips. I guess he will just have me stay on it till things get better or my liver gives up.. good day to all ..NEPOL
Posted 3/31/2020 5:04 PM (GMT 0)

Hello, Nepol !

Have been on ZYTIGA about 55 months - I save all empty bottles, to track my progress.

I think moderation in all we do is a good rule of thumb. You can never go wrong with healthy hydration.

For me, I focus on water with medication, and cold tea the rest of the day. No calories!

My oncologist has never placed me on any dietary restriction while on Zytiga. Common sense is my guide.

Keep living life, and I hope ZYTIGA helps you!

Soon enough, I will have 60 bottles saved up, and that will be five years on Zytiga.

My best,
Iowa State University CYCLONE
Posted 3/31/2020 6:18 PM (GMT 0)
Nepol,
Take that good advice from Cyclone
My Oncology Doctor and nutritionist also did not give me any dietary or liquid restrictions, or when or what to drink before and after. Don't worry too the effects on your liver should be minimal, everyone is different, the blood test will show any ill effects soon enough, beside the PSA it's usually the first thing my Onc Doc discusses with me. I am confidant that a slight delay in testing wont matter too much.

Cyclone/Darrin, just added my 60th empty prescription bottle to my line up on the big shelf. It's my 65th month (I lost 5 bottles). You gave me that idea to keep the empty bottles, as a reminder of what I've been through, how long I've been on it, and how blessed I am that Zytiga took me from 5.2 down to undetectable for 65 months now!
Keep the Faith!

Wings aka Dan in So Cal
Posted 3/31/2020 7:17 PM (GMT 0)

Brother Wings of Eagles,

Here's an idea for you, since you lost five bottles --- save five empty vitamin bottles, remove the labels, and label them ZYTIGA #1 through #5! That way you can REALLY see your milestones!

Amazing what the line up of bottles can do for a fellow. As with you, it fills me with humble gratitude, lifts me up, and reminds me to keep reaching out to other "brothers in the battle" who stand alongside us.

Like you, Wings of Eagles, I am "keeping the faith" ---
Iowa State University CYCLONE
Posted 3/31/2020 8:16 PM (GMT 0)
Thank you Wings&cyclone for the replies.. did either of you experience any movement in your liver numbers.at one month or your first blood test ?.... NEPOL
Posted 3/31/2020 8:31 PM (GMT 0)

Hello NEPOL,

My oncologist is very compassionate, and proactive ---

He has me do lab draws each month, to stay on top of everything.

Everything has stayed on track for me, thankfully.

Something I do, and this idea may help others ---

I do labs a couple of days BEFORE I see my oncologist.

This way, ALL lab results have been processed and received by him, and he has had time to assess and reflect before I arrive a couple days later.

My lab even has Saturday morning hours, which is helpful if it's been a busy work week.

This simple step helps me, doing labs a couple days in advance, resulting in a far more INFORMED and meaningful consultation with my oncologist.

A few thoughts, from my experiences,
Cyclone - Iowa State University
Posted 4/1/2020 3:23 PM (GMT 0)
cyclone-- my lab is V A ..kinda getting out of Doc's authority. Pulling strings to try to get me to Reno V A I am 70 mi. west of Reno. Doc. is in Palo Alto 260 mi. V A has an authority line between them. He is ok with a few days longer I am not psa is on there also want to see if the big Z will stomp it!! You have great day thank you for the reply__. NEPOL
Posted 4/2/2020 4:28 PM (GMT 0)
Nepol,
According to my Onc Doc my liver numbers, the ASL around 26 and the ALT around 34 and have have stayed amazing consistent over the years,varying only slightly each time.
Dan
Posted 4/3/2020 4:45 AM (GMT 0)
Thank you wings .. got to talk to Doc this morning he said it was not common for numbers to get out of hand but wants to look soon... still try to get in at Reno..Santa Clara V A . Doc. does not want me to even get close . I know they will pull him from cancer clinic to hospital as things get worse there. don't want to lose him...will let you know blood results when I get them evening to all NEPOL
Posted 4/5/2020 12:31 AM (GMT 0)
My liver numbers went out of control after about 8 months.
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