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Calling all pT3 Club or "The Horse Has Left The Barn Boys"

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Prostate Cancer
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Posted 11/7/2020 11:14 AM (GMT 0)
Checking in to let you all know I'm still kicking.

Recent blood draw PSA undetectable -
Unfortunately T level real low @ 25 - no energy - 74 years old today

Finished SRT almost 4 years ago.
Posted 11/7/2020 11:29 AM (GMT 0)
Happy Birthday!
Keep the faith! Fight the Battle!
Posted 11/7/2020 4:30 PM (GMT 0)
Happy birthday Bobby Mac!
Posted 11/8/2020 12:00 AM (GMT 0)
BobbyMac happy b-day and many many more. Glad to hear about the PSA. T is a pain for sure. How long sine you finished HT? Any thoughts about supplementing, now that its been 4 years? Not saying you should, and in fact, i wouldn't. But just curious.
Posted 11/8/2020 1:50 AM (GMT 0)
HBD, Bobby Mac! Thanks for checking in.
Posted 11/8/2020 10:53 AM (GMT 0)
PRATOMAM - HT stopped August 2018 - S
Posted 11/8/2020 10:54 AM (GMT 0)
PRATOMAM - HT stopped August 2018 - So far no plans to do T replacement therapy
Posted 11/8/2020 2:15 PM (GMT 0)
Happy Birthday Bobby Mac! It's good to see activity around the barn again.

You are not alone. I am in the same corral... Finished HT in 2018 and turn 70 this week. Testosterone is still only in double digits, have little energy and zero enthusiasm. But PSA remains undetectable. Urologist advises against supplementation, and I understand why. I'd rather continue to live with the hot flashes than mess with something that's potentially deadly.

Hoping you have a great day today! 74 years young!
Posted 11/8/2020 2:21 PM (GMT 0)
Hey Rob - happy birthday to you!
I told my oncologist that I'm happy to be around to complain about my low T level, than the alternative.

Post Edited (Bobby Mac) : 11/8/2020 7:40:45 AM (GMT-7)

Posted 11/8/2020 2:30 PM (GMT 0)
Happy Birthday Rob!
Posted 11/9/2020 1:36 PM (GMT 0)
Belated HAPPY BIRTHDAY Bobby Mac!!

Oh, and CONGRATULATIONS on the undetectable!!
Posted 11/18/2020 11:34 PM (GMT 0)

RobLee said...
Happy Birthday Bobby Mac! It's good to see activity around the barn again.

You are not alone. I am in the same corral... Finished HT in 2018 and turn 70 this week. Testosterone is still only in double digits, have little energy and zero enthusiasm. But PSA remains undetectable. Urologist advises against supplementation, and I understand why. I'd rather continue to live with the hot flashes than mess with something that's potentially deadly.

Hoping you have a great day today! 74 years young!

If you're up for it, low dose estrogen was used by Dr. Charles "Snuffy" Meyers for his patients on long term testosterone suppression therapy. 0.025 to 0.05mg/day transdermal patches. It stops hot flashes, and helps protect bone density.

Just a thought, something to possibly consider and discuss with your support team.
Posted 11/19/2020 5:31 PM (GMT 0)
Happy Belated Birthday Bobby Mac!!!

May you have many more, and may God bless you and yours.
Posted 11/19/2020 7:12 PM (GMT 0)

Redwing57 said...

RobLee said...
Happy Birthday Bobby Mac! It's good to see activity around the barn again.

You are not alone. I am in the same corral... Finished HT in 2018 and turn 70 this week. Testosterone is still only in double digits, have little energy and zero enthusiasm. But PSA remains undetectable. Urologist advises against supplementation, and I understand why. I'd rather continue to live with the hot flashes than mess with something that's potentially deadly.

Hoping you have a great day today! 74 years young!

If you're up for it, low dose estrogen was used by Dr. Charles "Snuffy" Meyers for his patients on long term testosterone suppression therapy. 0.025 to 0.05mg/day transdermal patches. It stops hot flashes, and helps protect bone density.

Just a thought, something to possibly consider and discuss with your support team.

I am on the lose dose patches. They don’t “end” the hot flashes, but they are less frequent and severe.

You can add me to the T3 club.
Posted 11/21/2020 12:29 PM (GMT 0)
Thank you all for the birthday wishes.

Actually, hot flashes were never a major problem for me, but low energy is still a big problem.

30 months after stopping Lupron T level @25 with very low energy.
Posted 2/21/2021 7:28 PM (GMT 0)
Never thought I would asking to join this club, but here I am......
Looking for some people who were me several years ago that might be able to give some perspective 3-5 yrs out.
Age: 53
Elevated PSA during routine annual physical blood test (test done by accident since I had no symptoms or family history)
PSA 6.2
Biopsy: 6 of 12 Cores tested positive. Gleason: 4+3 = 7

Robotic Surgery Apr '20
Post Op: Gleason 4+5 = 9
Grade:: pT3a N1 (2 out of 10 lymph nodes positive; negative everywhere else)
PSA Test has been Undetectable since surgery (4 tests)

I've never had any health issue and I'm in decent shape. Still very active.
As I'm sure many of you have been through, you stay positive but there are times when your mind slips to the darker side of life expectancy especially given my relative young age. Curious who out there fits this background and what your experiences have been.

Thanks in advance,

Dave
Posted 2/21/2021 9:24 PM (GMT 0)
Dave, welcome, and its great that you posted in this thread for ongoing discussion. You will find many guys here with similar diagnosis/pathology.

At the same time, i have given you your own thread, so that you will get more responses (from guys that may not check this thread regularly). It can be found here https://www.healingwell.com/community/default.aspx?f=35&m=4238378&p=1#gsc.tab=0
Posted 2/22/2021 2:38 PM (GMT 0)
Dave,
Welcome to the group!!
My initial numbers were about the same as yours albeit a bit higher.
12/12 positive G7s and G8s biopsy. 1 LN positive.
Then I was upgraded to G9 after surgery.
I've been on ADT most of the last 8 years.
I have also had radiation.
I was indeed 53 at DX, I am now 61.
That's almost 8 years ago. I'm still here and wake up to another day thankful!
Any questions, ask me or anyone else here.
Posted 2/22/2021 6:28 PM (GMT 0)
Alephnull - Thank you for taking the time to reply to my msg. You are one of the reasons that I chose to join this group. I want to hear from people who have and are going through it especially those who have similar characteristics/results.

I'm happy to hear you are 8 yrs post surgery. If you don't mind me asking why have you been on hormones since your surgery? I thought they were more temporary and combined with radiation? Have they taken a toll on your physical energy and activities? Has it dampened your libido? Not that I won't do it, but I dread hearing "we want to put you on hormones". Did the fact that 1 of your lymph nodes testing positive bother you? I think more than the other results it was that it spread to my lymph nodes that had me thinking the most......
Posted 1/13/2023 1:16 AM (GMT 0)
Please add me
PT3NoMo
G 4+3
Positive margins
Posted 1/13/2023 1:28 AM (GMT 0)
Welcome to the Forum Soulman.
Posted 4/7/2023 7:30 PM (GMT 0)
I feel really bad!! I never responded to Dave'68 back two years ago.
I guess it's water under the bridge now.
But I am truly sorry for not answering then!!

I really f'ing blew this one!
"Any questions, ask me or anyone else here."

But to answer your questions so belatedly!
Yes, yes, and yes.
Especially the one positive lymph node.
The urologist kind of blew it off and said you are micro-metastatic.
He waited a year and a half to order radiation.
Posted 4/8/2023 12:29 AM (GMT 0)
lol....better late than never.
I'm in the middle of 2 yrs of hormone treatment. My PSA got to 0.2 last March '22 (just shy of 2yrs post surgery). I started hormones in May '22 and had 40 radiation treatments that lasted until Aug '22. The hormone treatment (Lupron) has been miserable......I'm dealing with all of the side effects some worse than others. My question though remains...... why did your oncologist keep you on ADT all of these years? What toll has that taken?
Posted 4/9/2023 11:08 AM (GMT 0)
Better late than never.

Log me.

PT3a G7 EPE and PM. 4 of 12+, 2 others suspicious.
Dx2018 RALP 2018
All negative since.
Posted 4/10/2023 4:18 PM (GMT 0)
Posting to give hope to new T3Bs. I just hit 10 years since my Gleason 9, T3B diagnosis where I was given a slightly over 50% chance of living 5 years. I'm still here and currently on Lupron and Zytiga with my PSA undetected. Thanks to all on this site that have contributed to me continuing the fight!
Don
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