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No Sleep on LUPRON

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Posted 9/28/2021 6:21 AM (GMT 0)
Hi. Acoustic 4 here. I'm 6 shots in out of 4 on LUPRON and sleep has been a real problem. I'm writing this at 2:30 am. I don't want to go on meds (did that many years ago and got hooked on ambien) but it would be nice to have more than an occasional full nights sleep. Any one else with this problem ?
Posted 9/28/2021 1:01 PM (GMT 0)
YES!!! I am not on Lupron, rather Orgovyx, but I have also been having problems with insomnia. Mostly I go to bed around 10pm and have no problem getting to sleep, but I often wake up between midnight and 3am (mostly to pee), and too many times I simply cannot get back to sleep. Maybe by 5-6am I finally get some sleep.

I am trying a strategy of not fighting, but rather if after an hour I am not back to sleep, I just get up and try to do something productive for a few hours, then go back to bed and try again.
Posted 9/28/2021 6:18 PM (GMT 0)
Thank you Vynbal I will try that tactic keep on fighting.
Acoustic 4
Pretreatment 35. High risk localized
5 1/2 weeks EBRT 4 ot or 6 Lupron shots done. Gleason score revised from 8 to 6 by Dr Lotan at J H
Posted 9/28/2021 7:42 PM (GMT 0)

Hello, Acoustic 4 ---

I have friends who have to "cut off" the caffeine by noon, or they are restless all night.

I don't have issues with caffeine ---- iced tea is my "go to" ----

That being said ---- I sleep better when I stay on a fairly consistent bedtime schedule on weekends, as well as weekdays. That helps my quality of sleep.

I exercise each day --- neighborhood trails, lake trails, or park trails. I find that exercising each day leads to MUCH better sleep that night.

If I don't get a walk or two in --- each day ---- I am more restless. I walk on weekends, too.

I usually read for a bit or do some writing before bedtime ---- a calm ritual before hitting the sack.

Been on continuous ADT since my diagnosis in 2013 (first LUPRON, then FIRMAGON, and now ZOLADEX) ---- so I thought I would chime in.

We're all in this together, and it helps to hear from others who walk the same path!

Handshake from across the miles, from "one brother to another" ---

CYCLONE - # Iowa State University
Posted 9/28/2021 7:59 PM (GMT 0)
You might ask you doc about trazadone. I take it for interrupted sleep (I, too, have no problem falling asleep). Trazadone is an antidepressant, but is also used for sleep disorders. I also take OTC melatonin (one 5 mg time-release tablet).

Djin
Posted 9/28/2021 10:47 PM (GMT 0)
Thank you to everyone’s tips and advice. I think I will opt for solutions that don’t involve more “chemical intervention “ than I already dealing with. Exercise and staying active seems to be key on several levels
Posted 9/29/2021 12:02 AM (GMT 0)

Acoustic4 said...
Thank you to everyone’s tips and advice. I think I will opt for solutions that don’t involve more “chemical intervention “ than I already dealing with. Exercise and staying active seems to be key on several levels

Not a bad idea. I'd start with exercise and keeping to a regular schedule around bedtime. I'd point out, however, that melatonin is the body's natural sleep-regulating molecule.

Djin
Posted 9/29/2021 9:46 AM (GMT 0)
I’ve tried melatonin’s and alas it does not work for me.
Posted 9/30/2021 1:28 AM (GMT 0)
I'm pretty used to waking up at 4 or 5 in the morning. I just go with it. I keep at least one book active on my smart phone. If I wake up at 4 a.m. and don't easily go back to sleep I reach for my glasses and read for awhile. Sometimes for 20 minutes. Sometimes for an hour or two. I enjoy the quiet reading time.

Years ago I worked on a strange 12 hour on / 24 hour off schedule. The days I got off at noon I was exhausted and headed straight for bed. The days I got off at midnight I'd be wide awake and sat up and read for a couple of hours. Thanks to that schedule I read Moby Dick, Pride and Prejudice, Catch 22, and quite a few other books I might never have got around to.
Jim
Posted 9/30/2021 10:29 AM (GMT 0)
Have you tried taking some Advil or Tylenol before bed? I find the little aches that I just mentally tolerate that really aren’t registering as pain can keep me awake.

There are also a lot of men who take a little alcohol before bed.
Posted 9/30/2021 3:27 PM (GMT 0)
Same thing here. In bed and sleeping within 5 minutes. Couple of hours and wake up for head call. Just cannot go back to sleep until maybe 4:00 in the morning. I also keep a book on my iphone, but that does not always work. I think it is the Prednisone. Sometimes an Advil will help. But a little afraid of side effects. Tylenol also has a mild "relaxant" in it.
Mr Bill
Posted 10/1/2021 3:39 AM (GMT 0)
Thank you,guys. For some reason pain relievers and melatonin don't work. I have had luck with scotch
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