Update

You're doing very well. Congratulations, and continued success.

Per side effects, currently just more frequency, havent had any major problems thus far, no blood in urine or bowel problems. on sexual side just less sauce so to speak.

Did have more effects right after the treatments, some blood but hey they inserted 17 catheters for HDR but it wasnt a big deal, a little tender for a few days. The beam portion was not too difficult, other than timing the water. per suggestions on this forum, I requested the first appointment every morning, got the timing for full bladder. They did the HDR first and put gold fiducials in and aligned me during the beam with the cone CT prior to every session.

Was a little tired but worked every day after the treatments. For a few months after completion had less energy but felt OK.

Have copies of the plans, they did +7mm anterior and +5mm posterior for the beam and +5mm for everything for HDR, plan has all the graphical data showing the hotter areas near the cathodes, can see where they placed 9 on my right side where biopsy showed the cancer was. They spare the urethra to the designed constraints as well as the bladder and rectum. also show the dwell time and positions.

Hopefully I wont get any long term effects.

Learned a lot from Tall Allen, he coached up a lot of us to do the R&D on treatment options along with a lot of kind folks on here, learned a lot and hopefully asked the right questions.

Hi

Just another update, played the Russian Roullete again this morning, had the blood draw and got the results in Mychart, was 0.36 ng/ml down from 0.55 ng/ml last Oct.

So still going down and still in the game I guess taking the long slow road.

All looks good for you!

It's natural to think, following a treatment, there should be immediate results!

For me, ADT & ZYTIGA (Abiraterone Acetate) & TAXOTERE chemotherapy infusions showed some immediate results.

But with radiation, the dividends can be realized months and even YEARS later.

It's like the ride on the "slow train."

And like the classic fable of the race between the tortoise and the hare, we learn that "slow and steady wins the race!"

Giving THANKS tonight, TURBOZ, for the continuation of the downward trend you continue to see!

Indeed, these SLOW & STEADY declines are affirmation that your past treatments continue to pay DIVIDENDS!

And the TORTOISE always knew this, too!

My best to you ~
CYCLONE ~ # Iowa State University

Cyclone and others have told me about the "race" being a marathon.
I guess I didn't read too much because I too helped for the cure.
Oh well fact is you are going in the right direction as am I.
Nice to hear from you.

Glen

JNF

Yes I hope so, at what point should the Nadir decay below 0.1, I follow the updates by folks here who have radaition and watch their progress. I was 55 when I started 5 yrs ago. Dont really see a pattern I guess and as long as the trend is down, that is good in my book.

Also got my first shingles shot this week, so get that crossed off and done later this fall.

Hi

Just had another PSA test and came back at .221 so still trending down 5 yrs out of from the completion of the IMRT portion of the HDR Boost I had. So relieved after the test results.

excellent

Your PSA will fluctuate after radiation therapy. As long as it stays below nadir (0.22 for you) plus 2, there's no reason to worry.

PS: I just saw that you started two threads on this topic. There are good responses in the other one.
BTW, my PSA (after triplet therapy) has never gone as low as yours, but appears to have 'stabilized' around 1 ng/ml. Note the use of the word 'appears'!

Post Edited (Sr Sailor) : 3/15/2024 12:39:28 PM (GMT-8)

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