Thanks, everyone. I find the functionality of the Healing Well website to be very wonky and limited. Sorry my husband's signature is too long for what's allowed. I include a lot of detail to help people searching for something specific, i.e. Agent Orange, veteran, high Gleason, low PSA, etc.
I did find my old posts by clicking my name on this posting, so thank you for suggesting that. But shouldn't someone be able to go to their profile page and get all old postings without having to post a new question? Also, only some old postings were on there. Oh well, that's why I'm not on the site much. I spend more time on the Health Unlocked Advanced Prostate Cancer site because that's what my husband had from the get-go, high-risk PCa. Also their site is very well moderated, so less to sort through.
To answer questions:
--My husband had an emergency appendectomy six months before his PCa dx, so robotic surgery wasn't feasible. Also, with Gleason 9 in all cores, the survival outcomes are roughly the same and he'd have to have salvage radiation anyway. Surgery makes more sense for younger guys. He was 70 when he was diagnosed.
--Yep. Mr. Spouse21 has been through a lot in the last eight years. That's why the signature is too long to fit on HW! He's been walloped by years of Lupron, radiation, chemo with a side order of neuropathy,
--Okay, that was all the bad stuff. During the eight years, Mr. Spouse21 and I took a couple major adventure hiking trips to Canada and Italy and a couple other overseas trips and had a blast. In summer, he regularly bikes 20-40 miles several times a week or walks miles and miles on the other days. He does tai chi for balance to counteract the neuropathy. He uses a hiking pole as a walking stick w/o embarassment. We regularly take care of our super active granddaughter, i.e. things like killer sledding, building wacko structures on the floor, etc. So screw Lupron. Staying ultra active helps him with all these activities. You want to be in good shape to take on all these treatments. His muscle tone sucks, but he lifts weights anyway. He'll be going on his fourth pacemaker next year because he wears them out faster than most people with pacemakers due to being an exercise maniac. The afib heart stuff was also a result of Agent Orange exposure, at least the VA says so. We've met a couple other vets who also had electrical heart problems at youngish ages then later developed high risk cancers despite otherwise living a healthy lifestyle. My husband spent his entire Viet Nam year and a half deep in the jungle where drinking and bathing water were laced with Agent Orange. No need to thank him for his service since he was drafted, didn't want to go, but did his required duty. It was an intense experience and he handled it like a man. That's my guy, still fighting a hangover from that war.
Post Edited (spouse21) : 5/30/2022 5:27:56 AM (GMT-6)