Where are the doctors?

I have read many posts here on the year and half I have been in treatment. Many members in their posts say that they are not doctors. I am not a doctor as well, but have added my experience and help off and on when I thought it would help. From reading between the lines, it would seem like many members here are highly intelligent. I don’t declare that I am the same. I have a BS in recreation administration and a Masters in Special Education. I was wondering if anyone here has a PHD in some other field?

Anyway, back to the original question. Where are the doctors? I am referring to actual MDs. Just curious if any Uro or RO doctor has posted on this site in the many years the vets have been around? If not, why not? It would be a great place for them to help out with many of the questions that come up. The why not is more than likely a money thing, why help out for free is my guess or maybe a possible litigation situation.
Just curious and my best to all. Have a great weekend.
Jack

We had a former pathologist with PCa but I haven't seen him post recently.

I don't want to sound like a know it all because there are a lot of people here who are brilliant.
However, when it comes to certain aspects of my own issues, I often do know more than some doctor's.
I'm not talking about a particular specialist who of course will know more but I'm speaking of perhaps a ER doctor or general doctor.
The reason is that I do extensive research plus have years of living with my particular issue.
This doesn't mean I'm not open to new treatments etc but sometimes I actually do know more because I've lived it.
I could give examples but don't want to type all that.

Glen

AKA Dan - I think doctors with PCa can be here looking for advice and support but I am neither a lawyer or doctor.

Swan - My urologist told me that I know more about PCa than most doctors at the end our last annual visit. In the land of the blind, the one-eyed man is king….

Doctors are certainly welcome to post. What they cannot do, per Rule #8, is give personal medical advice or promote their services. We have had a number of docs posting here over the years who discussed their cancer with us on a peer to peer basis and have added general medical commentary like most of us do. We have also had some promo types who have not been welcomed. Fortunately they have been few and far between.

Jim

Mumbo said...

Swan - My urologist told me that I know more about PCa than most doctors at the end our last annual visit.

Wings said: "My Oncologist cringed when I mentioned I looked up stuff on Google."

When I went to my PCP last week about a vitamin B12 deficiency I saw someone new because my PCP was no longer there. I showed him my lab panel ordered by another doctor listing the B12 as off the chart low. He didn't ask me any questions about my diet. My diet consists of many animal products that should give me plenty of B12. And maybe he didn't know people over 60 may not absorb B12 from food or oral tablets. He just starting typing, saying he was prescribing B12 pills. I wouldn't have known how to discuss it had I not Googled or heard the experiences of Forum members. Fortunately, I left with a prescription for B12 injections.

I guess doctors can't know everything about every condition, but if they don't know, at least they could leave the room and look it up. Sometimes it seems like they are more interested in getting you out in 20 minutes so that they can see the next patient.

Forums and Dr Google may not always be good, but sometimes they definitely are good.

Sorry if I was overstepping the board rules, but I am a physician which I made known from the start (look at my ID). I was diagnosed with Gleason 9 prostate cancer which was found to have pelvic metastasis after my surgery. I shared my diagnosis and treatment decisions openly. The information shared between us as well as the personal fellowship/experiences of the posters are unique and valuable to medical and non medical participants.

I have great respect for doctor's and in no way wanted to suggest that I know more than they do.
I am however very knowledgeable about what ailments I have. Having worked in hospitals and worked towards my RN I have general knowledge as well.
A doctor's education and experience are vast.
I'd add that I'm in awe of many right here in HW

Glen

Dr.V I feel like a fool for starting this thread. I have even responded to some of your previous posts on Orgovyx. Believe it or not I thought your forum name was like a cool reference like Dr. Dre. LOL. I have now read all your posts and have the complete picture of your journey. I am so happy that you had positive results on Orgovyx. I know the SEs are not fun, but that is the price we pay to fight the beast. Speaking of price, I paid $40.00/month for 15/months. I paid $110.00 for the last three months last year. That had to do with reaching the catastrophic level. Then back to $40.00 this year. I still can’t understand why it costs so much for others. I take my last pill this Friday finishing 18 months. I did not miss a day. My T-level dropped quickly and ended up at zero. My PSA dropped continuously and ended up at 0.01. My Uro is having me come back in four months for a check, then every six months.

Doctor, I am so glad you are here to share your perspective. At the same time, I wish you didn’t have to be here. I will provide updates as time goes by to see how fast my recovery is from 18 months of Orgovyx. Orgovyx seems to be the go to drug now because of less cardiac SEs. In any case, as always, I wish only the best for you in the future. We will always be here for you.
Jack
Djin, sorry I missed your post on Relugolix a practical guide. I keep forgetting that is the pharmaceutical name for Orgovyx. Thanks for the article.