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Calling all pT3 Club or "The Horse Has Left The Barn Boys"

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Posted 4/10/2023 4:33 PM (GMT 0)
DonJ - Inspiration indeed!! Always good to hear the positives stories. Like many things in life, you tend to hear more from people who aren't doing well.
I'm sure you're looking forward to celebrating your 70th birthday this year!
Posted 4/10/2023 8:52 PM (GMT 0)
Terrific news DonJ.
Posted 4/11/2023 4:03 PM (GMT 0)
Thank you! Yes, reaching 70 years old in June 2023 was not on my radar. But now it will have much more meaning to me and others close to me. Heck, I may even tear up!
Posted 4/11/2023 7:02 PM (GMT 0)
Dave68,
I think part of it has to do with where I live and the quality of cancer care (KS).
When that urologist blew off my the rise in my PSA, he said it was nothing, and yes going back on Lupron brought it back down.
I soured on him and fired him for an actual Oncologist, hoping I'd get a bit more aggressive treatment.
That didn't happen though, so about three years ago I went to KUMed in KC.
I am seeing a different Onco now, I am finally on something stronger, Xtandi, but I still wonder where are the docs that will step out and beyond the standard.
BTW Xtandi really kicked my backside over the last 13 months.
It was gradual, but it turned my mind into mush.
Finally my boss was going to put me on probation if my work didn't turn around.
Wake up call!!!!!!!!!!
I asked my Onco for some help treating the symptoms, and he said I had to go to my PCP. So, much for helping with SEs.
I went to PCP, he prescribed both an anti-depressant AND an ADD medicine.
I haven't felt this good mentally in over 15 years.
Posted 4/11/2023 7:38 PM (GMT 0)
Alephnull,
Have you told your boss to go to hell yet? 😃
Posted 4/11/2023 7:55 PM (GMT 0)
Mattam,
I wish I could, I really wish I could.
But this University has really great insurance.
I pay absolutely nothing for my Orgovyx and my Xtandi.
And at almost 64 years of age, I'm pretty sure it would be really tough to find another programmer job.

But thanks for the encouragement, I mean it.
I wish I could, I wish I could, I really wish I could!
Posted 4/14/2023 4:42 PM (GMT 0)
Count me in. 3+4 EPE but negative margins. Post surgery for 15 months and just got latest PSA back and is .04. (It was <.04, which i am still trying understand if its an emerging issue.

My EPE was a shocker as MRI and biopsy didn't pick it up. In fact the MRI said the tumor was contained in the capsule.

Looking fwd to the discussions with this targeted group!
Posted 4/14/2023 5:00 PM (GMT 0)

Richp6 said...
Count me in. 3+4 EPE but negative margins. Post surgery for 15 months and just got latest PSA back and is .04. (It was <.04, which i am still trying understand if its an emerging issue.

My EPE was a shocker as MRI and biopsy didn't pick it up. In fact the MRI said the tumor was contained in the capsule.

Looking fwd to the discussions with this targeted group!

Hello Rich,

As you discovered, MRI can’t see everything. The better test is a PET scan.

Basically you have some options.

A. Adjuvant radiation and ADT in 6 months(if your insurance will pay for it)
B. Just monitor PSA and early salvage radiation if you PSA returns and is increasing.
C. Just monitor PSA, if returns and is increasing wait for a high enough value for the cancer to show up on a PET scan and then treat it.

I chose A, better technology today, I would chose C.

Post Edited (Duck2) : 4/14/2023 9:04:03 AM (GMT-8)

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