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Testosterone therapy
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Prostate Cancer
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MotownPaul
Regular Member
Joined : Aug 2018
Posts : 178
Posted 5/8/2023 12:16 AM (GMT 0)
I realize that the subject of testosterone therapy for those who have or had PCa is controversial and complex. For a number of reasons I am exploring the idea of treating my low T (around 300). What type of doctor should I seek out to discuss? I do plan on speaking with my urologist and radiation oncologist after I meet with a doctor who can tell me about
possible treatment for low T. Thanks.
Mumbo
Veteran Member
Joined : Nov 2018
Posts : 2608
Posted 5/8/2023 2:06 AM (GMT 0)
Many years ago, I had a T test that was in the 300’s, Free T = 6.6, and doctor suggested a morning test a few weeks later, T test was in 500’s, Free T = 15. He said that there can be large fluctuations during the day and I was fine. about
a year after RALP, I had a T test to see where I stood and in was in low 700’s, go figure.
The low normal range level of T testing is 200-250 ng/dL for old men so I suspect doctors may not be convinced you have a big problem without further testing. I believe the endocrinologist is the specialist of such matters if that is what you were looking for. You probably will have to find a doctor that is sympathetic to whatever issues you are having based on the general reluctance with treating PCa survivors.
Steve n Dallas
Veteran Member
Joined : Mar 2008
Posts : 5399
Posted 5/8/2023 6:49 AM (GMT 0)
"Endocrinologists are the type of doctors who specialize in hormonal disorders. But, endocrinologists are usually involved in treating children who have hormonal imbalances that impact growth and/or in treating other hormonal conditions such as diabetes."
I would talk to your URO. I took T Meds for several years. I never noticed any difference like many of the guys on this site...
Duck2
Regular Member
Joined : Dec 2019
Posts : 468
Posted 5/8/2023 11:40 AM (GMT 0)
The normal range for age 55 is 215–878 ng/dL. You are 13% above the lower value in the range may have to shop a few docs to get what you are asking with your medical history.
Post Edited (Duck2) : 5/8/2023 3:48:41 AM (GMT-8)
Sr Sailor
Veteran Member
Joined : Sep 2015
Posts : 1483
Posted 5/10/2023 6:37 PM (GMT 0)
Different voices, but remarkable harmony in the choir.
Mumbo
Veteran Member
Joined : Nov 2018
Posts : 2608
Posted 5/10/2023 8:43 PM (GMT 0)
Are you preaching to the choir?
theswan
Veteran Member
Joined : Nov 2005
Posts : 1709
Posted 5/11/2023 11:21 PM (GMT 0)
My family doctor prescribes it after a urologist said it was okay.
My testosterone got as low as 25
Then came Pca and no one would prescribe.
I became a mess after around nine months with tearfulness and anger depression etc.
Finally I found a clinic Miles away and did not mention my diagnosis.
I've been on it ever since. Post SBRT my PSA is dropping and it looks good.
My urologist said when I hit two years away from treatment he'll consider putting me back on.
Maybe it was risky but my emotional life was suffering big time so I choose to use TRT.
I've always self injected but the clinic will not allow it.
So family doctor urologist and I guess endo doctor's too prescribe it.
Paxton
Veteran Member
Joined : Aug 2016
Posts : 1487
Posted 5/12/2023 11:55 PM (GMT 0)
Paul - I'm sorry that I am late to the party, but there is a bit I can add.
First, I suggest that you read the published works of Dr. Abraham Morgentaler. He is in Boston and is/was affiliated with Harvard Med. He has spent much of the last 20-25 years studying the intersection of Testosterone and PCa.
Another thing I would recommend you do is to find a uro who has also read Dr. M's work. This may get you a doctor who understands much more about
Testosterone than the average doc. Not sure how to find these doctors, as my own uro knew of Dr. M before I did.
Also, try to find a uro who will "treat the patient" not "treat the numbers." This is critical, as those number ranges are only good for averages and for measuring large population groups, not for treating individuals. What is important is whether the patient is symptomatic or not. Many patients will be badly symptomatic with T levels that are above the minimum levels on the chart. Other patients will do just fine with T levels significantly below the "minimum" levels on the chart. My understanding of what I have read is that supplemental T should be given to alleviate symptoms (of low T), NOT to raise numbers. If you are symptomatic, by all means seek treatment (and I wouldn't stop seeking until you receive treatment).
I will admit to being "just a bit biased" though, as I have been using T-supplementation before, during and after treatment for PCa, so I apologize if I come across as being too pushy.
nels
Regular Member
Joined : Apr 2023
Posts : 57
Posted 5/13/2023 12:17 AM (GMT 0)
I am no longer on testosterone boost b/c of recent PSA spike but thought I'd chime in -- I don't know how the dose you're requiring translates, but I had consistently low T & was supplementing with a topical gel, which noticeably helped my general gumption, vim, & libido. Having to do injections sounds onerous. Mine was compounded at a pharmacy in AZ, initially prescribed by a naturopath, but validated / renewed by my urologist (before said PSA spike.)
This pharmacy specializes in custom-compounding bioidentical hormone therapies.
https://www.womensinternational.com/about
-us/
trailguy
Veteran Member
Joined : Jul 2015
Posts : 941
Posted 5/13/2023 12:45 PM (GMT 0)
....mine came in at 110 yesterday (PSA at <0.1). Since I would need to pump up and use 2 bands to be able to give myself a shot (then hustle to get those bands off before the shot worked) in order to try to have sex with my post-menopausal wife (who is neither interested or able), I think I will just pass on the opportunity. I see no need to fire up any stray PCa stem cells kicking around. I am going for 'staying alive' rather than extending my role as a super-stud.
PCa was scary enough, going stage 4 was much worse. After what I have been through fighting this crap I am uninterested in teasing the beast with 'gasoline on the fire'. Of course, your' mileage may vary.
theswan
Veteran Member
Joined : Nov 2005
Posts : 1709
Posted 5/16/2023 1:29 AM (GMT 0)
I'm going to get testosterone because my life suffers without TRT.
My libido is the least of my concerns.
If it was higher Gleason grade maybe I'd reconsider not being on TRT but I'm not high grade.
My PSA is dropping and symptoms are not evident so I'm happy that I've been on TRT through it all.
Glen
MG0351
Regular Member
Joined : Jul 2018
Posts : 345
Posted 5/16/2023 11:24 PM (GMT 0)
My URO said don't feed the Cancer.
theswan
Veteran Member
Joined : Nov 2005
Posts : 1709
Posted 5/19/2023 4:45 PM (GMT 0)
As far as feeding cancer, a very small amount will do that. A cascade of testosterone makes little difference.
To understand why I risk taking TRT one would have to live in my mind and experience what I go through. Emotional pain can be disabling.
Anyway my urologist said he'd consider putting me back on TRT when I'm two years away from SBRT so there's hope.
I'm tired of traveling two subway, one ferry and two buses to get to the clinic.
I've been self injecting at home for many years.
Glen
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