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ZYTIGA: Our Collective Experiences

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Posted 3/18/2023 4:43 PM (GMT 0)
Cyclone-ISU

Just wondering if you have had any vacations....... My doctor has mentioned it to me.... I think he is giving me the option. The once month shot and 4 pills everyday has become part of my life and no big thing except for the things that come along with it... I have always believed it something is working why try something else... What do you think...May will be two years for me.
Posted 3/18/2023 7:17 PM (GMT 0)
Hello, SteveO ~

Cards on the table, for my case, diagnosed in my 40s with prostate cancer that had already infiltrated both lungs, I have worked very hard to maintain my health goals.

It's 10 years since diagnosis now. I hope that inspires a new reader here.

That being said, Dr. Kwon at Mayo Clinic ~ a couple of years ago ~ discussed the possibility of stepping back from ADT.

It wasn't a possibility I was prepared for and I have worked so hard to get this far.

I then stated that I was VERY reluctant to step back from my current treatments or medications.

Nothing more has been said since. I see my local oncologist monthly, and he has never broached the subject, and I feel that I wish to stay on this current course.

My thoughts to share ~
CYCLONE ~ # Iowa State University
Posted 3/20/2023 2:05 PM (GMT 0)
Hey Cyclone,
Tough decision. My daddy once said if it's working don't mess with it. However, if things don't work out on your "vacation" you can always go back to plan A.

Mr Bill
Posted 3/26/2023 12:51 PM (GMT 0)
Hello,

I just started ZYTIGA two weeks ago. Has anyone experienced ringing in your ears? If so, will it ever stop???

John
Posted 3/26/2023 1:35 PM (GMT 0)
Definitely would reach out to your doctor for the hearing situation.

That's something your doctor would want to know.

Is the ringing constant or intermittent? Any history of this happening in the past, before you started ZYTIGA?

Sending a line, with supportive thoughts ~
CYCLONE ~ # Iowa State University
Posted 3/26/2023 8:07 PM (GMT 0)
I am heading to the doc this week and will see what they say. I just noticed the ringing the last few weeks and it comes and goes. Will let you know.
Posted 11/11/2023 12:19 PM (GMT 0)
So glad that I found this thread. I was on the forum when I first was told I had cancer but have been away for a while. I still remember how much I would read Cyclones posts and how they helped me at the beginning of this journey. As I sit here today, I am a little ashamed of myself that I have not given back as much as I have received from this group.

I have just started the Zytiga regime. I am on my 3rd month. Been fighting this battle since 2015 (Gleason 9) and began to see increase in PSA and testing showed metastasis to the lymph nodes. Had second round of radiation and began Zytiga. So far PSA has dropped from 2.5 to .03. Can't complain about that. Now my fatigue level is through the roof, and I bruise really easy. Never had that before. I think if I walked out into a strong breeze I would bruise somewhere.

I am trying to get motivated to increase my exercise as much as possible.
Posted 11/11/2023 1:11 PM (GMT 0)
JDill,
Some similarities in our PCa's and our treatment paths. Serious enough business. I remember reading my first MO's encounter notes where he described my prognosis as being "fair." 😐 Yet, here we both are, still standing going on 9 years.

Best success for you ahead!
Posted 4/21/2024 4:24 PM (GMT 0)
Sending this to the top, for newly diagnosed members.

CYCLONE ~ # Iowa State University
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