Testosterone Pca

I saw my specialist urologist who did the dilation and thinks I should come back via video visit in six months unless I get symptoms of blockage.
I asked him about testosterone and he said he'd refer me to another doctor who specializes in hypogonadism.
Tough part is finding my old records that shows my low numbers. All my tests in the past couple of years have been while I'm under TRT.
I'd hate to have to stop for months just to prove I'm hypogonadal

I'll wait and see

Glen

theswan said...
I've been on large amounts of opioid medication for decades and currently use it safer one called buprenorphine. I've been on my dose with no increase in year's which was impossible with regular Mu agonist opiates.
This has ruined my production of testosterone and I've been lower than 25 with usual range of 300 to 600
I stopped when diagnosed with Pca but it was horrible. I'm emotionally impacted by lack of T and I was a depressed mess. So, I found a clinic and withheld my diagnosis.
I'm not proud of that but I had little choice except to find a good doctor such as Morgenthaler in Boston. I'm not going to travel that far.
My problem is cost. The clinic is costing me $180 a month plus I have to take subway ferry and bus to get there.
I'm also afraid of boiler plate treatment if my urologist relents and starts to prescribe testosterone again.
My clinic is generous and will prescribe a higher dose than most urologist will because they focus on symptoms and not numbers.
In any case I think for hypogonadal men like myself this is an important topic.
PSA has dropped and I'm doing well two years post SBRT
As I'm writing I'm kinda talking myself into staying with my clinic. Don't want to risk my urologist starting me then finding a reason to stop such as high iron progesterone or whatever.
Thanks for reading

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Hey Glen,
I am a bit confused. So, you were on an opiod that "ruined my production of testosterone ". Is that correct?
Then, "I stopped when diagnosed with Pca but it was horrible.". Stopped what? The opioid? Or were you on testosterone replacement therapy before being diagnosed with Pca and stopped that? I'm assuming it is the later.

If so, I know what you are saying. After a life time of natural moderate to high levels of testosterone, I have been at castrate levels for 2 years now. I truly hate it, and while it certainly caused my PSA to plummet to undetectable in 30 days and greatly improved my 1 year scans, I do worry about it's negative influence on my overall health. None of these effects on my body(big loss of muscle replaced by fat, sugar up, triglycerides up) and blood work can possibly be good for me. Not to forget the lousy way it makes me feel, with a big lack of energy. Which is why, depending on what my December scans show, I really want to get off of these drugs.

It is good to know that 2 years since your RT, and despite concurrent testosterone therapy, your PSA has dropped and you are doing well.
"As I'm writing I'm kinda talking myself into staying with my clinic. Don't want to risk my urologist starting me then finding a reason to stop". Understandable.

Thanks, Glen, for the clarification!
Bill

Going to Staten Island to get injection Monday


Glen

Yeah I'm just resigned for now making the long trip and paying through the nose for the treatment.
Lots going on at home with the mother in law. She's 100 years old and decided to move back to Riverdale and the second night she decided to move back!
This means we're stuck moving her and losing out on thousands of dollars.
Moving is crazy stressful.
So from Riverdale to battery Park City, back to Riverdale and now back to battery Park City.
Plus we're paying for the deluxe movers so yeah stressful and very expensive.
Oy vey

Glen

Glen, it looks like you are still participating on this MB.
You said: "I cannot explain how gosh awful I feel when my testosterone was as low as 25 except to use the word depression, anxiety, irritability and lack of any joy in life."

Doubt I could "explain" it either, but I sure know what you are talking about. I'd like to hear how things progressed since with the Testosterone and with a doc.

Thanks in advance.

I've been posting a lot mostly about urinary stricture.
My PSA is dropping and I'm over two years post SBRT and doing well.
I see my oncologist in a couple of months.
I'm up in the air over whether to stay with my trt clinic or find a urologist who will prescribe. The clinic is expensive but they are not afraid of dosing higher than the norm.
Right now I get 600mg at the clinic with two 300mg syringes to take home.
I'm supposed to inject both same time but space them out to save money.
Recent blood work is going to be interesting because I was on 300mg that cycle.
I know it's not ideal but I'd rather get a not optimum dose than no dose at all.
Not sure if I'm explaining it but in a nutshell I'm getting 600 then two weeks later only 300 then 300 once again till I return to the clinic.
BTW after dilation the stricture is holding up okay.

Glen