HealingWell
Search Close Search
☰

Catheter removed

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/11/2009 12:22 AM (GMT 0)
Regarding pads, you should see a declining need for them as days turn into weeks. As far as type of pads, you should find that cutting a female pad in half provides you with two pads that work for the male anatomy. The mini pads work very well as the absorbent technology is beyond anything that guys are (were) familiar with.

Ted

Posted 8/11/2009 2:44 AM (GMT 0)
Mike,

Did you have a bag for that too ? I know my bag doesn't work too well !
Posted 8/11/2009 3:51 AM (GMT 0)
Hi Jeff a trip to Thailand would seem a good idea but you must include a trip to Pattaya even only to try and improve on the Ed side of things

Hi Mike I think that I will be like you while I only squirt a couple of times a day for no reason (other than I have relaxed about the incontinence) and it is so little at a time I think for safety I will wear a pad for a short while I am wondering if I should try some Kegel exercises or leave well enough alone

I will be interesting to see if the poll on ED and nerve retention goes ahead and wondered if incontinence could be included only looking on this thread it seems that the people that had open surgery are doing much better that Robotics
Posted 8/11/2009 10:32 AM (GMT 0)
Colin, When I left the hospital I looked down into my underwear and found a hose sticking out of a second navel with a Brazilian Wax job. The overall look would have made any of the "special" residents of Pattaya jealous. (except for the tubing)

I hope the survey goes through. From what I'm reading here it does seem the open results are better than DaVinci but our samples are very limited (you b*stards). We need to know how far along we all were, number of nerves spared, how soon we leave the hospital. (I was in and out in 26 hours).
Jeff
Posted 8/11/2009 11:04 AM (GMT 0)
Jeff knowing what goes on in Pattaya i think that a lot of people would be jealous of the tubing they like anything different

I think that the time the tubing is in would be more important to time in hospital as far as continence times (I was in for 5 days and lost 1 nerve bundle) are concerned while an over all picture would have to take in the hospital time also for non insurance people the cost would have to be taken into account as well after having open and not having much pain 70% saving was important but if I would have felt comfortable with the Robotics doctor I would of gone with him I feel very lucky that I spent time and money getting to the right doctor
Posted 8/11/2009 2:32 PM (GMT 0)
Congrats on that pathology Colin. I wish you the very best in the coming weeks for continued healing and low low numbers for years to come...

Peace...

Tony
Posted 8/13/2009 5:25 PM (GMT 0)
I went to the doc's office today to see a demo of the VED SOMA therapy pump by Augusta Medical Systems. (13 days after divorce from Cathy the Catheter) I told the rep that continence is my big problem right now and I don't even know if I have an ED issue. In fact, I had already made 3 deposits into my Guards and Depends while he was talking.
Looks like the bladder sphincter also controls modesty as well as urine.
Do most people get these vacuum devices? Or am I special?
Jeff
Posted 8/13/2009 6:34 PM (GMT 0)
Jeff- most, if not a huge majority do get the vacuum pump. It is an essential part of penile therapy and recovery of both size and function. The decision to be made is whether a $500 plus medical supply company , insurance paid pump- with maybe a steep deductible (in my case $200) pump is needed or whether there are cheaper but just as effective alternatives available. A bunch of here have found that the cheaper but just as effective and just as safe pump is available and we use it successfully. There is nothing wrong with the doctor recommended and supported high dollar medical pump, except for the cost for some of us. If given a choice of the high dollar job with a less than $100 out of pocket cost or a cheaper model that sells for $90, then I recommend the high dollar job. If not, the $90 pump will do the work just as well.. The initial use of the pump will be to infuse the penis with blood, stretching and expanding the tissue, and either of the pumps will do that.

I got links for the cheaper pump if you want it. I do strongly recommend that you and your Doc. talk at the earliest about your penile and erectile disfunction therapy plan. As soon as the catheter is out is a good time to start the low level dosing of the ED pills. The pills are expensive but there's alternative- such as alldaychemist.com to get them for as little as .54 cents each. Ask you doc for samples and try them. The point right now in your progress is not to attain an erection but to maintain the tissues and cavities expansion capability until the nerves start working again. Most of us started using the pills as soon as the catheter is out, and started using a pump at 6 to 8 weeks out. Your incontinence isn't really a factor, as the pumps are washable and the benefits outweigh the side effects ( urination) that will/may occur.
Posted 8/13/2009 9:36 PM (GMT 0)
Jeff,

You are starting to make me nervous. I thought we almost had a patent on the mustard bottle sucker !

You aren't two timing with the VED guy are you ?

I got on one of the manual ones. I think their usage is limited until you start to get some voluntary Willie action. Yes, you can pump it up, and yes you can put a band around it to hold some blood in there until it turns purple, but after the all of that, I haven't found it to be adequate for what I need.

Not sure about the exercise thing. Playing with a dead dog is not really all that fun. I waiting until I start to see something happen on its own, then the pump can help brig it to full action.
Posted 8/13/2009 10:19 PM (GMT 0)
James,
I did start on the Cialis 5 mg right after the catheter divorce but have not noticed any activity. I'll admit I have been afraid to even try. I thought one of the criteria for s*x was being out of diapers. I got a prescription for 20 mg from the Uro. 6 pills were $40. I looked at Allday chemist and wondered about it. Are they for real? Has anyone noticed a difference between their stuff and the real deal? The place is in India and that usually sets off a red flag for me.

Goodlife,
Ok, I'll admit it .. I was doing a little competitive analysis while the guy was talking. The pump mechanism they use is very weak. He said it only goes to down to 8"Hg. It doesn't even have a gauge! My Supersucker (TM) will go down to 24"Hg. Those levels are probably not recommended as I doubt a penile explosion would be covered by Blue Choice plans -not to mention the mess! I guessed correctly about the seal. It is a molded closed cell foam that seems to work quite nicely - nothing I couldn't do myself with a hand cut piece of 3/8 inch sorbathane. I'm still trying to figure out what the rings were made of. Very stretchy indeed.
They did a very nice job of packaging it all together; they will work with the insurance company; their factory is in Augusta GA - a good 'ole American company; the rep was nice and understanding. But the biggest reason for getting it comes from my wife. She said she does not want to see me dragging the automotive pump and 3 feet of tygon tubing into the bedroom. I didn't hear everything she said because I was concentrating, but I heard words like: "Are you kidding me?" "common sense" "mood" "crazy" "you'll rip it off". That's all I needed to put the Gulden's jar back in the recycling tub. Women! (That said, I can still string up a 4 cylinder version for HW road trips.)
By the way, I told the rep that we were thinking of a GFMPH trip and factory tour. He said he could arrange it.
darn, he was nice.
Jeff
Posted 8/13/2009 10:31 PM (GMT 0)
Well Jeff, sex should be the fatherest thing from your mind now, but you still need to maintain a healthy penis while waiting. The pills and pump aren't for erections and intercourse, but for promoting blood flow, infusing the penile tissue and keeping the penile shrinking and atrophy at a minimum. And yes, the ADC questions is yes, they are for real, yes they work, and yes there is no reported safety issues. There are probably a couple dozen guys here (who will admit it) that order form ADC and report the pills are as effective or more so than the regulars. ADC is a proven worldwide distribution pharmacy, and fully accredited to the world market. But, the initial point I wanted to make is the use of ed therapy now isn't for erections and intercourse but for keeping things healthy and working at full capacity until the nerves start working again, giving you natural erections.
Posted 8/15/2009 5:28 AM (GMT 0)
Just thought that I would give you an update one week after catheter was removed

There as not been much change in the incontinence side really Wednesday nearly got through the day with no dribbling just one small dribble which I was to late to catch Friday a bad day 5/6 dribbles during the day but I am putting that down to only having 2hrs sleep the night before and the doctors visit which he pushed a poked me about quite a lot and when I got home I had some blood in my urine for the first time today I seem back to normal today (Sat) I use a small pad of 6in4in stuck to the inside of my Jockeys (I was not that big in the penis dept. and even less so now) which last me for 24hrs comfortably

On the ED front I seem to show some improvement this morning I had quite a good erection not as strong as before the operation (but I think strong enough for penetration) but I was afraid of doing damage so I did not push it (or pull it) to far
Posted 8/15/2009 12:29 PM (GMT 0)
Colin, my faraway brother, you are really doing great, keep it up, literally. Hee hee
Posted 8/15/2009 1:31 PM (GMT 0)
Thanks David and I hope for all the best for you next Tuesday you deserve it
Posted 8/15/2009 5:50 PM (GMT 0)
Colin, Is there something in the Pattaya water supply? Whatever it is, I want some! Congratulations! (you lucky b*stard)
Jeff
Posted 8/16/2009 2:52 PM (GMT 0)
No not in the water supply you cannot drink that but on the ED front there might be a good few things over here that might help that side of things
Posted 8/16/2009 5:58 PM (GMT 0)
Road Trip to Pattaya! It's GFMPH right?
Posted 8/16/2009 6:02 PM (GMT 0)
Colin, I still remember the "good things" in Thailand that use to aid me back when I was 18 in the Navy and we would refuel there.
Posted 8/18/2009 4:46 PM (GMT 0)
First pad free day today no mishaps I think that I have add a couple of dry days in the last 4 day but with a pad on it is difficult to say sometimes but today I have been completely dry 11 days after catheter removal ED seems to be good as well had strong erection yesterday afternoon (to order) so just have the long wait for my first PSA result
Posted 8/18/2009 5:19 PM (GMT 0)
Hey Colin,
Maybe you'd better not show up at the GFMPH Retreat. There might be guns around.
(Congratulations! Are you the world record?)
Jeff
Posted 8/18/2009 5:44 PM (GMT 0)
Thanks Jeff I still keep looking at the recovery rate for open v Robotic and it seems like the incontinence is recovered more quickly with open than with the Robotic it seems like there are more people continent within a month than with the open than with the Robotics I am only looking on this site but I would I would like to see some figures on the time scale for the average time for the Robotic people to gain full continence

On the ED side it is not so clear cut but I was looking at a Robotic operation and looking at those pincers I cannot see how they cannot bruise any tissue they get hold of especially if they are used to move the nerves around I think that they must cause some damage to the nerves even if only small
✚ New Topic ✚ Reply
12