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Lupron and T-levels

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Posted 3/21/2011 2:41 AM (GMT 0)
I have a friend who was diagnosed after a Turp with advanced PC, in his bones, even though his PSA never got above 2.8. He has been on Lupron for a year now and his t-levels are twice what they were when he started on Lupron and his cancer has spread to more parts of his spine and skull.

I was under the impression that Lupron reduced t-levels. He is scheduled for a orchiectomy next week.
Posted 3/21/2011 3:05 AM (GMT 0)
Lupron and its clones do not work for everybody..Orchiectomy always works and is much cheaper, Hope it's not too late..

These "I have a friend" threads can be tough..Do you have his Gleason score? Actual "T" numbers? Was HT his primary treatment?
Posted 3/21/2011 3:20 AM (GMT 0)

Montee: A couple of things about your friends PSA jumps out at me.  If it never got over 2.8 and is aggresive as it appears then he could be dealing with small cell prostate cancer, one of the different strains that Zufus is always talking about.  Its a really tough one to combat.  I hope he is being seen at a major facility or one of the doc's that we always refer to.

The other possibilty is that he has a very hig Gleason score, sometimes the higher the Gleason score the lower the PSA because the cancer is so poorly differentiated it can't produce PSA.

Whatever the cause, his treatment doesn't seem to be working and he needs a change.

Tell your firend Good Luck.

David

Posted 3/21/2011 10:51 AM (GMT 0)
His gleason was diagnosed as 9 and Lupron was the initial treatment as bone scan after diagnosis showed advanced PCA. His t-levels went from the 100s to now over 300. But when I had my t-levels done, I was told that you need to take the levels in the morning as the levels always are higher in the morning than in afternoon. No he has not receiving or has seen anyone since initial diagnosis except local Dr in a town of around 50,000. But not sure what could have been done except Lupron and casodex that he has been on for a year.
Posted 3/21/2011 11:38 AM (GMT 0)
Surely Casey will have an abstract to explain this phenomena and probably what options you could look into.
Posted 3/21/2011 9:42 PM (GMT 0)
Orchiectomy ? !!

Hope it is not too late to do a few checks ..

& re-checks for T just to make sure it really is up despite regular lupron. Now did you say casodex as well ?

I would suspect a non-gonadal source of T IF his LH/FSH levels are suppressed as lupron should be doing the business after one year. Check for adrenal tumor why not ?

Now if LH/FSH levels are not suppressed, or indeed raised, I would suspect dodgy batches of lupron. Casodex on its own will raise T! Yup. [ I guess you all know this anyhow, but I am just repeating it so I can hear myself think... ]

After reading what Kaplan has been doing with supposedly disposable bits and pieces, I wouldn't be at all surprised to learn of a doctor claiming to administer lupron, but just 'going through the motions' to save money on shots. Maybe he thought the casodex would suppress the PSA and give an impression of everything being tickety-boo.

That's a 'personal opinion' and not an accusation.

Sam
Posted 3/22/2011 6:50 PM (GMT 0)
Sam-the-man your email and link didn't work for me, was curious about your long journey with PCa...can we read about it somewhere?...    www.yananow.net    has experiences/history you can post and probably should put it on there for others.

I would be most interested in hearing some things from you, like your take on some of the things in PCa like your perspective of conservative approaches vs. less known protocols, maybe some anamolies you have witnessed in PCa, some things that would open some eyes up more and that type of thing. Maybe some blantant errors you have witnessed along the way or some unbelievable looking cured patients scenarios. Being a long term veteran I am guessing you have some things worth hearing about. I would be interested from a perspective of experiences, thanks.

Montee the original poster- look at info at  www.hrpca.org   is a suggestion

Posted 3/22/2011 10:54 PM (GMT 0)
Hi Zufus / Monty,

Have not a clue what went wrong with the link / email It works all the time & you are the first person to report a proble. Try again I guess.

I am not on yananow.net as I tend to keep myself to myself. I am coming out a bit after 15 years ! My history is very ordinary, except that I have survived. Why don't you check out Doug Adam on yananow - now there is a story there !

Anyhow, I wrote a book to compensate. Pity you can't get that link working. Is anyone else having a problem I wonder ?


Sam.
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