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Surgery to Possible Mets - 15 months (must be a record)

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Posted 3/25/2011 2:36 AM (GMT 0)
Just got word from latest CT scan. They are seeing a potentially concerning bone lesion in the left inferior pubic ramus (pelvic bone). It appears larger than what they saw before on any prior CTs or MRIs. They want to correlate it with my bone scan as last bone scan was negative for disease (June, 2010). I have a new bone scan next Thursday. Might also get a MRI.

I believe HT to start regardless.
Posted 3/25/2011 2:39 AM (GMT 0)
Jerry,
Hang in there. Lots of managing still to do and a remission to still hope for. i know many guys who have done well in spite of this type of news.

Tony
Posted 3/25/2011 2:39 AM (GMT 0)

Darn, Hope things work out.  Best of luck

Hero

Posted 3/25/2011 2:42 AM (GMT 0)
Jerry,

Sorry to hear, but also thankful that they have found it and possibly remove the area.

This is precisely why I have latched on to Snuffy Myers philosophy who says that adjuvant or SRT should do the entire pelvic region, because that is most likely where the PC is going to spread. I am in the process of getting my RO to do agree to it.

Good luck on your journey.

Goodlife
Posted 3/25/2011 3:01 AM (GMT 0)
Jerry:

So sorry to hear that. With such a low PSA, they normally do not do any scans. Was it the G9 that made them do it?

Hope this turns out to be a false alarm.

Mel

Posted 3/25/2011 3:12 AM (GMT 0)
Jerry, sorry to hear of your situation, a lot like mine.  RP in August 09, SRT Apr-May 10, Bone scan 11/10/10 found one met in same area as yours.  Started HT 11/26.  Another bone scan next week to see where we're at.  My PSA when met found was 1.0 - Medical Oncologist says very rare to find a met when psa below 10!!  OK, so now where do we go?  The Old Sailor

Posted 3/25/2011 3:32 AM (GMT 0)
Jerry,

Just a raft of good wishes headed your way -

Posted 3/25/2011 3:36 AM (GMT 0)
Jerry,

I am so sorry about this news.

Know we are thinking about you.

Cajun Jeff
Posted 3/25/2011 4:28 AM (GMT 0)
Sorry Jerry.

But you keep fighting, do whatever you need to do.

Perhaps you need to look into some clinical trials?

That XL184 showed some really interesting results..

http://clinicaltrials.gov/ct2/show/NCT00940225

I'm certainly pulling for you.
Posted 3/25/2011 12:12 PM (GMT 0)
Not the news you needed, Jerry. Feel bad for you.
Posted 3/25/2011 12:27 PM (GMT 0)
Best in the quest...

Post Edited (zufus) : 3/27/2011 7:20:35 AM (GMT-6)

Posted 3/25/2011 7:21 PM (GMT 0)
Jerry, sorry for the bad news. Hang in there, fella
Posted 3/25/2011 7:31 PM (GMT 0)
Why is Combidex still being mentioned as a possible tool, when, according to this report, its no longer available anywhere, unless I misread it.

http://www.ustoowichita.org/pdf/COMBIDEX.pdf
Posted 3/25/2011 8:07 PM (GMT 0)

I'm getting use to the tailspins that PC puts a patient in.  The time that it takes to recover from the tailspin seems to get less with each bad report, etc...  The bad news is that it seems that with each tailspin, the ground gets closer and closer.

With your help, I will evaluate options and go down roads probably travelled by countless others and perhaps go down a few roads that have not been travelled very much so far.  Either way --- I will carry on, live for the day, and hope for tomorrow.

Thank you all for your continued support.

Posted 3/25/2011 11:13 PM (GMT 0)
Jerry,
Sorry about this news. You still have more bullets in the chamber. Keep fighting and don't give up.
Posted 3/26/2011 2:04 PM (GMT 0)
BobCape:

Thanks for the clinical trial info.  I am not eligible for the one you mentioned (XL184).  It is for those that are no longer responding to HT.

Although one could argue that I'm not responding to HT since I'm not on it....yet.

Thanks anyways,

Jerry L.

Posted 3/26/2011 6:03 PM (GMT 0)
The follow up scan hopefully will get to the facts, remain calm and confident! No pain there could be a positive sign!
Posted 4/11/2011 11:10 PM (GMT 0)
fyi ---- Bone scan and MRI has confirmed this.

Starting caseodex / lupron

Got to get that PSA down from .09
Posted 4/11/2011 11:52 PM (GMT 0)
Jerry, hang in there, don't let the bustards get ya down
Posted 4/12/2011 1:13 AM (GMT 0)
Good luck, Jerry, with the HT, both in terms of helping, and with minimal side effects. I am watching your case very carefully due to my own situation.

David in SC
Posted 4/12/2011 4:07 AM (GMT 0)
Darn mets with a psa of .09, and no pain I,m sorry i would get a second opinion on all those scans, even if its tru that some cancers don't put out psa. I just would. The longer I have with this PCA, my trust of the medical establisment gets weaker and weaker. Even if only 10% are weak, or just not very good in their job, thats alot. I certainly can come up with 10% in my career field who were " " " " " " " " " " ". Bet most of us can. And It isn't getting any better.. We as a culture seem to be living off the inertia of the great generation and sadly they are dying off, its scary...... the inability to create our own momentum as a culture . Note to myself, stay on point forget the tangents. Good luck. Even Old Sailors mets, from what I gleaned became questionable, or did I mis understand that one post last week or so. Just saying!!
Posted 4/12/2011 5:33 AM (GMT 0)
Yikes Jerry, mets with a PSA of only 0.09?

With a rising PSA at this stage, HT is probably a reasonable step with or without mets. Like Logoslidat, though I'd be suspicious of the readings of the scans. But with three, CT, Bone and MRI, it seems highly unlikely for a screw-up on all three, unless of course it is the same person doing all three readings.

If it really is mets, then HT should make a difference -- good luck.
Posted 4/12/2011 10:52 AM (GMT 0)
Jerry, I had a lesion on my spine that was picked up by an MRI and bone scan. I had a PSA of .31 at the time and no pain. RO was getting ready to hit the spot. I just couldn't believe it and asked for a biopsy. They did another scan first and decided that it was just a hemangioma. Ctearly we could be in different places, but the Uro and RO were ready to go ahead with treatment.

Very sorry about your situation. The day that I received the bone scan/MRI results of the lesion was the worst of my journey. You probably have already read Dr Myers book on HT and Diet, but if you haven't, you should. BB
Posted 4/12/2011 3:20 PM (GMT 0)
In spite of my own bias about early HT, Piano is right the standard treatment is at your stage would be HT, but the anxiety has to be terrible. about the mets. BB fan your story reinforces my feelings. You know once we humans get something in our head we will always find a source of reenforcement, including doctors, lawyers and such, wahoo! At least try and get a consultation with the forces to be there and have them explain it to your satisfaction and if you get mumbo jumbo call them on it.
Posted 4/12/2011 10:36 PM (GMT 0)
I'm like 75% like David with a "strange calm upon me..." mixed with 20% nail biting horror and 5% disbelief...I think that's 100%...

I'm thinking about a needle biopsy to be completely sure.  I meet Thursday with RO to discuss possible radiation

Post Edited (Jerry L.) : 4/12/2011 4:40:47 PM (GMT-6)

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