Steve n Dallas said...
Sounded like a productive trip.
Yes, been very busy for sure.
medved said...
The RO suggested radiation for two years?? I have never heard of that before. Or maybe you meant a course of radiation and HT for two years. That would seem to make more sense. At some hospitals, the docs from different specialties will confer among themselves and provide a consensus recommendation. That would seem useful.
You are probably correct. I must admit, that while talking with the different Dr.s, I cant hardly remember all the details or options. M D Anderson has an online patient site so you can go securely in and review your info and the Dr.s reports. As of this date, I still cant get a copy of the RO's report. After reviewing the MO's and SO's report, I found that I had a misunderstanding of what they were telling me. I also discovered the MO misunderstood me, so that will be corrected today.
RE Consensus- That is exactly why I wanted to come here. I figured it was like shows on TV, where they all sit together to come to a consenses. No, they read each others notes and seem to me very disorganized and rushed. ITs not me, really. I have been here a couple of weeks and 50% of the contact names and numbers given to me on written forms have been incorrect. I am truly losing confidence and no closer to a decision path.