Strange loss of appitite

Juliet --- I'd be most sorry if you backed out of the discussion. As a chronic pain sufferer you have much to teach us. Also, I think the discussion a worthy one, and after reading Swim's well considered response I'm wondering about my post.

I guess I want to have my cake and eat it too. I want us all to be hyper sensitive to David's unique needs and circumstances, but I'm the first to admit I don't understand why it is impossible for him to accept genuine concern, "well intended thoughts," as Swim says, and not need to see them as something else and fire back. All I can conclude is that David's circumstances are such that this is truly impossible for him to do. I seem to recall in a recent thread he made reference to this and said something like it was the disease talking and asked for forgiveness in advance.

I said I didn't understand it, but there is a difference between understand and accept, and I try hard to accept even though I don't understand.

So, wanting to have my cake and eat it too, I find myself agreeing with Swim that, "well intended posts should always be considered just well intended thoughts and little else," but at the same time knowing this is impossible for David --- perhaps much like being suddenly ill and crumpling crossing the street; knowing as you go down it is the wrong thing to do, but the illness is in control.

Perhaps David can help us better understand. What I hope he understands is the deep caring and concern we all have for him and just as he may find it impossible to accept well intended remarks as nothing more than such, so we too sometimes find it impossible not to offer well intended advice and concern, as difficult as that may be and he too needs to accept, if not understand.

Blessings to all in the good ship HW and especially to you, Swim and you, Juliet ... you are both such towers of strength here at HW,

Sheldon AKA Sleepless

Sephie said...
David, your recent post worries me...loss of appetite and acute weight loss are not good things. Frankly, I would look into this sooner rather than later since it's possible that your severe fatigue is coming from malnutrition caused by inflammatory bowel disease or something similar. For what it is worth, I would not wait until mid July to get this looked at. While a colonoscopy poses severe risks for you, perhaps a virtual colonoscopy will help a gastroenterologist figure out what the heck is going on. Unfortunately, a virtual colonoscopy is limited in what can be accomplished (such as biopsies and removal of any polyps) but it just might give the doctor a clue as to what the heck is going on with you.

Hey David, you addressed the colonoscopy in this post, but I didnt see you address keeping your Dr. informed of this new situation. I would hate for you to post that you waited, and the Dr. cancelled your procedure due to unexplained/unexpected weight loss. I have been doing my best to show you unconditional support, but I too sometimes find it impossible not to offer well intended advice and concern, as difficult as that may be. I wished I had a good reason to have those shakes-YUM!! But alas, I am supposed to be losing weight. By the way, I sent you some pictures via email, did you get them?

Greg

David:

This is indeed YOUR thread. I tried to be helpful. I made a couple of suggestions regarding whey protein shakes and generic ensure plus.

I apologize for having the audacity to dare to even suggest that you revisit your PC situation, at the end of my post. I hope the rest of my post was somewhat useful.

It's not worth arguing about, or having others take sides. That is not helpful on HW.

Mel

David,

Since nuts of all sorts are very high in protein and calories, maybe just a few handfuls as a snack might help you maintain your weight. I make my own almond milk as it is very high in protein. Peanut butter is also a high protein/calorie snack. Just a few suggestions.

You're still at the top of my prayer list.

Zimac

I agree jeff....it would seem the thread gets started so he can play the Woe is me attitude but when someone offers him help he whines about it...sorry purgatory...it is what it is.  Try growing a thicker skin here....this is a web forum for opinions and many others like myself are learning from other peoples problems. 

We can all learn stuff from others opinions...why be so defensive when someone is offering help?

 

Please no more answers to this thread. It's gotten out of hand fast. I have asked the moderator(s) to go ahead and lock it. It's the last time I try to share some current concerns going on with me. Enough is enough.

David.

I won't answer any other post to this thread, for those that truly care, I deeply appreciate your care and concern. For those that think its a pity party, like a poster above, you got it all wrong. I don't want your pity, as I don't pity myself. Just playing the cards dealt to me continously, didn't think that would offend someone else that isn't having to go through any of what I have been going through for nearly 4 years.

For the rest of you, you are good folks, and I care back equally to each of your problems in your journey.

This can be taken as my comment as a member, not a moderator.

I find that the rules still expect us to respect the decisions others make.

" Respect other members' opinions regarding treatment decisions. Decisions about health and well-being are highly personal choices. We should respect all points of view. "

I interpret this to mean that posters should respect the positions of the original poster. You can offer support, or simply not reply. We constantly ask members to keep us up to date on their progress, but then we question every move they report. There is something wrong there.