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My journey with Jevtana

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Posted 12/6/2013 6:54 AM (GMT 0)
Rob....I am jumping for joy and the diminishing numbers on the PSA......

However, another question, how many sessions has the doctor decided to have you take? Husband's doctor said initially 4 and then see what the PSA is....(I've got to call to see what his latest PSA was), then he mentioned "maintenance", maybe every 3 weeks to a month, lower dose......we are not interested in that... ..if we can get out of that and start another oral drug and maybe if PSA starts to rise, go back to the Jevtana. Don;t know......

Ted's main SE with this Jevtana is severe fatigue for about 7 to 8 days, swelling of his wrists and feet/ankles, slight lose of appetite, waves of nausea (I give him Zofran twice a day for 4 days after the therapy, this eliminates that wave, didn't do it long enough after the first session), I can't do anything for the fatigue. He is a little bit "testy" & shall we say "snippy" as well. I just have to "walk away".....(and that, my friend, is hard for me to do, because I always like to have the last word). Rob, do you have any of these SE?

I asked oncologist about Xofiga, he just said we will cross that bridge later...

Give Gizzy a dog treat from me, because he's such a great caregiver!

Our next trip for the Jevtana is December 12th..... I am just so thrilled for you...you are going to beat this beast yet!

Sally

Rob, how's mom doing? What about your bronchitis?
Posted 12/7/2013 3:03 PM (GMT 0)
Sally .....

   Please check with Ted's oncologist. Mine had told me in the past that ... once you're off an intervenous chemo, you shouldn't go back on it for at least 6-months ... and in some cases up to 12-months. It's sort of like staying away from that particular mix of drugs long enough - so that the body doesn't become dependant upon them.

   My doctor did not initially set any kind of a timeframe for the Jevtana - but after the 3rd treatment, and when he saw how well it was working, he did give me a schedule or dates for a total of 6-treatments and 2-catscans over the next two months.

   Regarding the side effects, fatigue is certainly inescapable - although some of it must be due to the Lupron (still getting a 45ml shot every 6-months). In the past week to 10-days, I have had hot flashes just once and pretty severe nausea just once.

   My biggest side effect is how the chemo has affected my bowel system. For some reason, this week, right after the chemo treatment #4, I had three really good virtually normal days with my bowels.

   Other than that, it's usually 3 to 4-days of constipation followed by 1 to 2-days of diarrea ... both in constant cycles!

   I've had no swelling, and I could use a slight loss of apetite - because I'm putting on too much weight.

   Mom is doing OK ... even though I did get hospice involved - on the suggestion of the Assisted Living Home. She had what is believed to be a mini-stroke about two weeks ago - but has been better since.

   My bronchitus seems to be very stubborn. I am now on Mucinex DM - but just once a day, and the congestion is breaking up gradually. Just so glad it wasn't pneumonia!

   Hope all goes well ... and with reduced side effects after or by December 12th.

Peace and wellness

Rob and Gizzy

 

Posted 12/11/2013 4:51 PM (GMT 0)
CHANGE IN SIDE EFFECTS ..... FOR ROB:

   To my surprise or joy, my side effects changed as of last Monday - or 10-days ago. I am hoping that this is my body accepting the Jevtana better - now after the 4th treatment on December 2, 2013.

   My previous cycle of constipation then diarrea .... has changed to .... 6-days of normal bowel movements + 3-days of constipation + today - to be determined! Outside of being tired, that was the only side effect left on a regular basis.

   Sally ....... hope this is encouraging for Ted ... and that he handles his next treatment well in the next day or two.

Rob & Gizzy

 

Posted 12/17/2013 5:25 AM (GMT 0)
Sorry for my delay in posting, but we are suppose to physically move on the 27th (movers coming), so I am packing and trying to stay "sane" while jugging several other issues....
PSA went down 10 points after 2 sessions.....Whew......I hope that the columns stay in their place:

10/30/2013 11/21/2013 12/12/2013
WBC: (range 4.0 – 11.0) 5.8 7.6 7.4
RBC: (range 4.2 – 5.6) 4.23 4.34 4.19
HGB : (range 13.7 – 17.0) 13.0 13.2 13.0
HCT: (range 40 – 50) 37.6 38.8 37.5
PLATELETS: (range 150- -400) 231 183 209
GRAN: (range 1.6 – 8.5) 3.70 5.10 4.80
PSA : (range: WHATEVER) 60.06 68.80 58.57

Cabazitaxel (Jevtana): 59.mg/5.9mL280 mL (3rd session)

Ted has a "rough time" on day 3 & 4, lose of appetite, a little constipated, taste buds not quite right, ill as a hornet, sleeps a lot. this last time,shoulders and arms hurt, lortab not helping gave him an Aleve.

Trying to get packed, hard to do it, thinking to much as to why moving from our "dream home"....oh well, it's to write another "chapter in our book of life".

Rob how are you, your mom and good ole Gizzy? Rob, I admires your strength and tenacity to walk this path alone, it's a struggle with just the two of us.....
Posted 12/17/2013 4:05 PM (GMT 0)
Hello Sally .....

   I haven't done a long distance move since 1989 .... and I still remember the tension from then .... sorry for what you're going thru.

   All the blood tests look pretty good - my WBC last Friday was really low, but the nurse said not to worry about it since it was just 11-days after the last Jevtana treatment.

   It's always a feeling of relief whenever you see the PSA count go down - even if it doesn't tell as much about the status of the cancer as one would like! So good news there!

   I hope this is of some benefit, but both of my shoulders had light intensity but sharp pains all the way up to about two weeks ago - or two weeks after the #3 treatment for me. Since then, the shoulder pains have disappeared.

   Note ...... for the past two weeks, I have been sleeping 2 to 3-hours during the day (usually afternoon) + each night for at least 7-hours overnight. I feel better ... and ... my side effects of major constipation with some diarrea have reduced noticeably.

   At a "Mens with Cancer" support group meeting two weeks ago, one of the men (with lung cancer) brought in a book - and quoted from it that to heal a hurt body, we need 10-hours of sleep a day. That seems to have helped me lately.

   On my homefront ... Mom is doing OK. I will see her in the next few days and then again on Christmas next week. But Christmas is only 2-days after my next Jevtana session .... so I will be wearing one of those surgical masks when i go to see her next week.

   Gizmo is good. I'de be lost without him. He seems to be getting even closer to me lately - don't know if that's a good or a bad sign!!!!

   Something very close has happened recently that i want to share. My oldest daughter has totally backed away from me for the past 4-months with no communications at all. It starte 18-months ago when I was last in the hospital. I wrote her a long letter telling her how isolated I have been feeling - she wrote me back a short letter of defensive positioning. I think it's her trying to put me out of her mind - so she doesn't have to think about when I am gone. But she denies being ... realistically in denial. She has cut me off of communications again - will likely not see her for Christmas - or either of my grandaughters.

   But ........ I sent a copy of that letter to my youngest daughter also. Two days later, I got the most loving kind of response from her I could have imagined. It's a long story ...... but we have gotten even closer in the past two weeks. She wants to call me weekly and see me monthly - and said "she doesn't want to be without her Dad"! I think she's been in a position of not knowing what to do while I'm going thru this .... and she wants to be more in my life than she has been.

   So it's one of those ...... good news/bad news stories!!!

   In reality .... I'm not going thru this alone. I am on a daily basis, but at least I know that someone (family) really cares .... besides Gizzy! Oh yes ...... and I have felt that my oncology nurse practitioner is extremely caring and in a professional way .... so that helps much!!!

   Thanks for your concern. HW helps too!

Rob & Gizzy

 

Posted 12/26/2013 5:12 PM (GMT 0)
Treatment & Tests - 12/23/13 for Rob:

Blood tests results - 12-weeks into Jevtana:

WBC actual       9.9         range of   4.6 to 10.5

GR# actual       7.1         range of   1.4 to  6.5

Hgb actual      10.7         range of 11.0 to 18.0

Plt actual         251         range of  150  to 450

Summary ........ mostly very good

PSA results - 12-weeks into Jevtana:

Baseline before Jevtana start             83.09

After 3-weeks - before Jevtana #2     64.78

After 6-weeks - before Jevtana #3     43.01

After 9-weeks - before Jevtana #4     25.19

After 12-wks  -  before Jevtana #5     23.92

Summary ....... slight disappointment for the small reduction - but much better than an increase. Total reduction of PSA to date = 71.2%

Side effects ...... actually have reduced noticeably - mostly constipation.

NOTE:

   My dear Gizzy got very sick last Saturday night - and has eaten almost nothing for 5-days now. From the vet on Christmas Eve .... Gizmo has some problems with his kidneys .... after blood test and xrays + exam.

   A great vet .... he called me on Christmas day and again this morning to see how Gizmo is doing. He is a little better after some of his two meds were started last night. Will be taking him back into the vet either this afternoon or tomorrow.

   I need my buddy back in full force. He is drinking a good amount of water and a little milk .... some food I hope soon today.

Peace and wellness

Rob & Gizzy

 

Posted 12/26/2013 5:17 PM (GMT 0)
Hi, Rob,
good test results, and PSA is doing OK at least continuing downward. So sorry to hear about Gizzmo; hope he is doing better today. I know he's your best friend every day, there to greet you and let you know you are loved. Check Tednsal on caregivers thread if you have not seen it.

Pat
Posted 12/28/2013 2:43 PM (GMT 0)
Hi Pat .....

   Thanks for the reply. I did check Sallys last post on the caregivers thread. So sad when a decision like that needs to be considered. I made a copy of that post to show my daughter today when she comes over with her BF - for us to celebrate a late Christmas dinner out.

   Good news with Gizzy. A few days ago, I thought I might lose him - but, thursday morning, in the wee hours, he started to eat again - after 5-days without any food.

   We were at the vet again yesterday for another blood draw. His Bun level fom Christmas Eve of 96 came down yesterday to 21 .... and the vet told me whatever you're doing, keep doing it!

   He'll still be on amoxitabs into the middle of next week. The belief is that he had/has a kidney infection. All good signs though in the past 30-hours.

Wish you and yours the best Pat.

Rob & Gizzy

 

Posted 12/29/2013 3:57 PM (GMT 0)
Gizmo follow-up:

   Gizzy has been recovering very well from what was likely a kidney infection that grew from a urine infection.

   In celebration that my "boy" is back ..... I have 4-photos of him (earlier years) that you can see if you wish. See below:

Please do the following:

1) Go to www.postimage.org ..... by clicking here.

2) The "family safe" button should already be pushed.

3) Click on "my images" (I think) at the top of that page.

4) If needed (though not likely) .... e-mail is [email protected]

5) password (may not be needed) is ...... gizzy

6) Click on file 101 ..... showing Gizmo's portrait at 4-months old.

The photo order is:

1) lower photo is of Gizmo and his Bro when I first saw them.

2) upper left photo is Gizmo at 4-months old - a portrait.

3) upper middle photo is Gizmo at 15-months old - a portrait.

4) upper right photo is Gizmo at 15-months old - looking at a squirrel.

   Gizzy will be three years old in February.

   So glad he is back to nearly normal again.

Peace and wellness

Rob & Gizzy

 

Posted 1/8/2014 4:52 PM (GMT 0)
Rob....love the pics......Gizzy is gorgeous...how do you keep him so white...that's a job in itself...LOL! Good to hear that he is on the road to recovery.

Well we have moved and somewhat "settled".....a hard job when it's only one person who can do the "work". Ted just didn't have the energy....which is understandable. He is sleeping now, tried to eat some breakfast and did a pretty good job, not as well as he usually does, but I am glad and appreciative that he at least ate something. He still looks like he's not sick, everyone says, "he looks so good".......well he does and I'm glad of that but they don't see him when he's feeling bad and all that he wants to do is sleep......or as of late, thinking, "is all of this worth it".......I feel that we are on a road to finality and I think that we only have about a year left, that was one of the reasons why we moved.

I posted on the "caregivers" thread and explained that I have started the (or thought I did) referral process to find out that no one has received any information. So back to "square one"....but this will get completed because I am a persistent wife and will not stop until i accomplish my goal.

Hope you had an enjoyable time with daughter and that relationship will blossom.

We have a bone scan scheduled on the 21st with results given on the 23rd...hoping for a good report, that will give husband and myself a reason for continuing on this treatment road" for awhile longer.

Just wanted to post something to keep this thread from getting g lost in the many, many threads and postings.

Wishing everyone who accesses this thread a Hopeful and Blessed New Year.

Sally
Posted 1/8/2014 9:12 PM (GMT 0)
Hello Sally ......

   Pat (Dreamer 44) wrote or posted here and suggested that I check the "Caregiver Corner" - maybe two weeks ago. I've checked that thread a few times since also. You are a terrific group of ladies with so much courage and love .... and kind of a sisterhood together. Great examples of caring human beings.

   Thanks for filling me in on the recent things. You must be kind of frustrated with the lost records sent in advance. I know any kind of a long distance move is very tiring and often filled with unexpected surprises when unloading or unpacking.

   I hope the new doctor search and appointments are nearly done, and that you both get some good news from the upcoming bonescan. Is there also an upcoming catscan scheduled - or will that be up to the new oncologist?

   And thanks - I did have a nice time with my youngest daughter and her BF the Saturday after Christmas. Similar to last year, I took them both to a local Tappas Restaurant - one that has become one of my favorite 3 or 4 restaurants. It was one of those big and slow dinners of close to 3-hours with great food, sangria and company!

   Gizmo is back to normal now ... full of either much mischief OR much love. There doesn't seem to be anything in between.

   I'm OK - except for my oldest daughter and our estrangement. My next Jevtana treatment (#6) is next Monday. My side effects still are minimal compared to most. My last PSA was a little disappointing with a very small reduction. There was a lot of stress going on here at the time - and hoping that the PSA was affected by that. Next PSA is next week!

   It was great to hear of your family help recently. Kind of makes the move worthwhile - doesn't it? Wishing you and Ted the very best on the new doctors, test and decisions ahead.

   I will be posting in about a week. Peace and wellness

Rob ....... and Gizmo

 

Posted 1/8/2014 11:37 PM (GMT 0)
Good news about Gizmo and your holiday dinner with your daughter. Hope to hear that new tests and continued Jevtana treatments go smoothly for you.
Pat
Posted 1/12/2014 3:40 PM (GMT 0)
It has been one month since my last update on Jevtana side effects!

Robs current side effects:

1) As always - I get tired easily (and some of that is the Lupron).

2) With afternoon naps, I average over 9-hours of sleep daily (it helps).

3) I notice a gradual but definite loss of strength in my legs.

4) Hot flashes are rare - but still occassional.

5) I have not had any pain in my arms/shoulders for over a month now.

6) Constipation is nearly a daily part of my life.

7) Diarrea has reduced noticeably - but is still occassional.

8) Minor hair loss has started - but very minor at this time.

9) Appetite has always remained as good on this chemo.

NOTE: Tomorrow is my 6th treatment of Jevtana, and I will have the results of the blood tests and PSA by Tuesday or Wednesday.

P.S. - I have had a difficult time in completely shaking the bronchitus I've had for over 5-weeks now. DO NOT think it has anything to do with the chemo .... white blood cell count has recovered well each time I've had the Jevtana.

Peace and wellness

Rob & Gizmo

 

Posted 1/14/2014 8:49 PM (GMT 0)
Jevtana treatment #6 ..... for Rob:

PSA reductions over 15-weeks ..................

Baseline at start of Jevtana ..... 83.09 ........ before Jevtana #1

3-weeks after start ................ 64.78 ........ before Jevtana #2

6-weeks after start ................ 43.01 ........ before Jevtana #3

9-weeks after start ................ 25.19 ........ before Jevtana #4

12-weeks after start .............. 23.92 ........ before Jevtana #5

15-weeks after start .............. 18.20 ........ before Jevtana #6

Summary of Jevtana to date = 78.1% reduction in 15-weeks!

Next course of action:

1) Catscan in 2-weeks

2) Oncologist review in 2-weeks

3) Urologist review soon after

Jevtana may continue - to be determined in 2-weeks.

Creatine level is down to 1.7 now so -

Some hope for removal of kidney stent in the future!!!~!!!!

Blood tests prior to Jevtana #6 treatment:

WBC        9.9 actual       accepted range of 4.5 to 10.5

GR#        7.1 actual       accepted range of 1.4  to  6.5

Hgb       10.7 actual       accepted range of 11.0 to 18.0

Plt          251 actual       accepted range of 150  to  450

Note ....... I have noticed recently of the need to get up by 2am or so to pee every night. It is an indication that my very weak left kidney (with an internal stent) has improved function now. I'm kind of excited about the possibility that the stent may not be permanent for me - and that I may not eventually lose that kidney. The lower creatine level seems to add credibility to that theory. Hope the Urologist agrees when I see him.

Peace and wellness

My best wishes to Sally and Pat - and their hubbies.

Rob & Gizmo

 

Posted 1/15/2014 3:11 AM (GMT 0)
Rob--

My situation is similar to yours. Failed everything else and am now on Jevtana. Had my first
infusion last week.

A couple of questions if you would care to reply:

What has your doc planned for you after you complete the cycles and your PSA
has gone down to an acceptable level? Congratulations on your response to the med.

You mentioned in an earlier post that you were losing strength in your legs. I have the
same problem and have to use a walking stick. My doc says its the accumulation of
all the toxic PC meds that I've had to use in my 21 year battle with the disease. Do
you know what is causing your loss of leg strength?

My experience with Jevtana so far is a much more severe energy loss than when I
was on Taxotere.

Keep up the good work. It is a pleasure reading about your journey and your success
with it.

Pete
Posted 1/15/2014 11:38 AM (GMT 0)
Hello Pete .......

   To answer your questions as best as i can:

1) My oncologist has no pre-determined long range plans - at least none that he is sharing with me. He does take this attitude of "let's see where we go from here" - and I think it's the right attitude because we all react differently to different meds. There seems to be little or no such thing as a typical reaction. And I'm not sure what is an acceptable PSA. And he does give much more importance to the catscan and/or bonescan than the numbers game of the PSA.

2) There is discussion now of posssibly going on a maintenance program soon - which could be Jevtana or might be the similar Taxotere. It might be a slightly lower quantity of chemo - and it would be for 4-weeks instead of the current 3-week intervals. That decision will be based on the catscan results in two weeks - and might be based on either my Jevtana tolerance or PSA reduction targets (least likely)!

3) I just brought up the weakness in the legs to my Nurse Practitioner Monday. She is very good - and i trust her statement that the prednisone could be at least partially responsible for that - since the common steroids on older people tend to help destroy muscle mass. What your doctor said makes sense too!!!

4) One thing I have not written about but came up again on Monday are the blotches i have at times on my arms or hands. They look alarming - but rarely hurt. And she described that it is typical after long use of the steroid of prednisone - even the small 10mg dose. But in my case, it's been for two years now. The prednisone can make the skin very susceptible to easy bruising that looks bad.

Question .....

   Could it be that your "much more severe energy loss" is because by now, you have much more of that wonderful chemo poison in your system? Or .... because of an accumulation of the Lupron - if you're taking it. With me, I believe it's the continual Lupron in addition to more and more of the chemo poison that keeps my energy level down.

Final note - i asked if I could use a treadmill to help with my loss of leg strength - and was told OK - but ... easy walking only!

Sorry to hear your battle has been 21-years ... hope the Jevtana does work for you.

Peace and wellness

Rob & Gizmo

 

Posted 1/15/2014 3:08 PM (GMT 0)
Rob...and Gizzy--

Many thanks for your reply. The time you take to give us an in depth look at your
journey is appreciated. I wish you continued success in your battle.

You named your dog Gizmo. That's a term we used a lot in the Marine Corps.
Were you a Marine?

All the best to you and your forever friend.

Pete
Posted 1/15/2014 3:21 PM (GMT 0)
Pete ........

Not a marine but ........

the name came from an old favorite movie of my daughter

by the name of Gremlins.

Gizmo was the good gremlin!!!!

:-)  

Posted 1/15/2014 9:35 PM (GMT 0)
Gizzy, (Rob)

Nice update, great news for you!

Cathy
Posted 1/16/2014 8:21 PM (GMT 0)
Rob, Gizzy,
Wonderful news, good tests. And hope for removal of kidney stent. All positive.

Pete, Hoss, 21 years...that is a long war. hubby almost at 20 years from Dx. Jevtana has had some very promising results, hope it is a good one for you. May be by the time you complete those treatments, another new drug will have been approved so your fight continues.

Pat
Posted 1/17/2014 4:24 AM (GMT 0)
Rob...what absolutely wonder results.................
You never mentioned how you felt the days after the infusion treatments.
Ted has what he calls "flu like" symptoms, no fever or chills, or nausea, just weak and just doesn't feel good...no other way to explain it, just kinda "burned out". It usually lasts about 10 days, this reaction is what is causing Ted to not want to take the treatment anymore. If you read the "caregivers" posting, I noted that the new oncologist suggested "a rest", Ted is all for that, he's so tired of feeling bad. I'm just concerned if this is a good idea, when I see your numbers and results. Of course, it's not me and my body that is having to go through this regime, so I will be silent. Ted's oncologist had mentioned to him about "a maintenance" with the Jevtana, lower dose and every 4 weeks, just as your oncologist suggested.

We got moved and now I have a brace on my thumb (arthritis), a shot in the hip (bursitis)and a MRI on my knee......Ted came in with me and I told the doctor his dx and then he looked at me and said, so now your "falling apart"........yep!

Keep us posted on your results....and so glad gizz is better.....
Posted 1/19/2014 4:32 PM (GMT 0)
Hello Sally and Pat ......

   Three weeks ago, my PSA went down by such a small margin, I thought Oh-oh .... I'm near the end of my Jevtana time. But, this past week, made me feel much better - at least about the Jevtana and it working so far.

   A year ago, while I was on taxotere ... it was working for me all the way down to a PSA of just over 12. I was on it for 10-treatments. This past treatment of Jevtana was #6.

   Sally ..... I guess I have been lucky by not having any symptoms right after a treatment. My side effects have been very steady - and have been reducing somewhat the past month or more. Sorry that Ted has the flu-like symptoms for ten days after each treatment.

   Bless you both for what you've been thru.

   Gizmo has been back to normal - which means at times, he is mister loveable ...... then at other times, he is the canine equivalent of a 2-1/2-year old "Dennis the Menace"!!!!

   Last week, Mom passed away. It was not unexpected. She had been in a Home for Assisted Living for the past 16-months .... and had been diagnosed with dementia for the past three years. She was buried two days ago.  

   If anything, it's less stress on me. And thank God, I sold her home last Summer - because she was running out of money. So ... there is very little of those very unpleasant things left to do.

   Gizmo was terrific the past two days!

   Sally ...... I'de like to encourage you to keep Ted going with the Jevtana. I guess a decision can't be made until you hear the results of the bonescan coming up. Hope his bonescan and my catscan both show good things to the doctors!

   Pat ...... you and Sally have some huge decisions to make - and maybe live with. I wish you both the strength you've already had and shown for years now.

Peace and wellness

Rob & Gizmo

 

Posted 1/25/2014 5:54 AM (GMT 0)
01/23/2014
Blood tests results - 12-weeks into Jevtana:

10/30/2013 11/21/2013 12/12/2013 01/02/2014 01/23/214
WBC: (range 4.0 – 11.0) 5.8 7.6 7.4 5.9 6.2
RBC: (range 4.2 – 5.6) 4.23 4.34 4.19 3.65 3.78
HGB : (range 13.7 – 17.0) 13.0 13.2 13.0 11.5 11.6
HCT: (range 40 – 50) 37.6 38.8 37.5 33.0 33.7
PLATELETS: (range 150- -400) 231 183 209 205 201
GRAN: (range 1.6 – 8.5) 3.70 5.10 4.80 3.9 4.50
PSA : (range: WHATEVER) 60.06 68.80 58.57 N/A 42.11

Rest now.....do not know for how long. PSA will direct per Vanderbilt oncologist.
Bone scan was positive: "no definite new sites of abnormal radiotracer uptake are visible. Overall, intensity level appears slightly diminished over the previous exam, particularly in the rib area".
Posted 1/26/2014 3:08 PM (GMT 0)
Hey Sally .....

   It sounds like many parts of your relocation are in pretty good shape - except maybe the house drafts and the weather.

   Maybe most important right now is the confidence level you both have in your new doctors - and that sounds pretty good.

   All of a sudden, since last Friday, I have had diarrea that won't stop - worse than before! My catscan is next week ... and the oncologist may very well put me on a maintenance schedule after that.

   I hope that Ted's time off ... is good for both of you - and with very little, if any, regression. My thoughts and best wishes are with you both.

Rob & Gizmo

 

Posted 2/1/2014 10:51 PM (GMT 0)
Update .... for Rob:

Catscan was given on Thursday - January 30th

Catscan review with Oncologist to be on Monday - February 3rd

Side effect changes recently:

1) Severe diarrea for 2-1/2 days (worst ever) less than 1-week ago.

2) Mild constipation since and before the above.

3) Noticeable increase in hair loss - but not major - the past few weeks.

4) Blood in urine (from nefrostomy tube side only) yesterday.

5) No specific pain from any of the above though.

Note: On Wednesday and Thursday - I had little water intake ... Also - the nefrostomy tube is past due for a routine replacement. Since over 30-ounces of water last night .... the urine today is a normal color!!!!

I do believe there will be another PSA test on Monday with Tuesday results. I am due for a 6-month Lupron shot and a Urologist visit within a week if possible. I am anxious for the Urologist to review the new catscan and get his opinion on the function of my kidneys at this point.

Next report - likely on Tuesday with catscan results, PSA and blood test results.

Peace and wellness

Rob & Gizmo

 

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