Is it strange to not have side effects ...

January this year?

Give it time. Mine took a couple of months to really set in.

That's fairly typical. Aside from hot flashes, zero libido and total ED (which most guys do notice) the other side effects tend to be cumulative and subtle at first. Men slowly lose muscle mass and bone density. They are more easily fatigued. Their body fat starts to increase, some of it growing in odd areas. They watch less ESPN and more Hallmark Channel. Things like that. Check back with us in a couple of months. We'll help you take inventory.

One bit of wardrobe advice given me by a friend, which proved very correct - if you are a sweatshirt wearer, get some that zipper. When you get a hot flash, you won't be able to pull that thing off fast enough.

Alephnull,

My experience on hormone therapy wasn't bad and I would describe it pretty much like you described it...for the whole time I was on it.

Jerry

Alephnull,

Why did your Dr. discontinue degarelix

 and start you on Lupron?

Thanks

BOOGEE

Wife here. We are where you are. No side effects yet. Still having sex a couple times a week with no problems. Making hay while the sun shines.
I read the stats on the Lupron insert--looks statistically probable to sail thru with few SEs. As you will hear over and over again, every man is different.
Good luck.

So far I've "just" had open RP and the only side effect is worse ED than I had pre-op. But at age 70- I'm not overly concerned. However I'm most likely facing HT and RT since I'm stage pt3b. My uro says some of his patients had no meaningful SEs from Lupron. I hope I'm one of them because I don't relish HT or RT.
Bob
_____________________________________________________________
DOB January 1944
1981: prostatitis
2000-2013 BPH treated with finasteride & tamsulosin; low T treated with androgel
PSA History:
Pre 2009 0.4-.6
11/2011 2.2
8/2012 2.7
2/2103 5.5
4/2013 6.1
5/2013 6.6
11/2013 0.1
1/2014 0.2

6/2013 Bx:PCa Gleason 4+4=8 (Bostwick), 4+5= 9(Johns Hopkins), 2/6 cores, 10%, 40%, DRE neg. (Stage PT1c)
7/2013 bone scan and pelvic MRI negative
9/7/13 open RRP, Johns Hopkins, Ted Schaeffer MD PhD.
9/9/13 Pathology: 33G, both nerves spared, SVI, EPE and 4mm pos. margin at base (Gl7), Stage PT3bN0M0)
9/20/13 Foley and staples removed
Continence: one pad per day for 13 weeks, now none. ED pre and post op.
Watchful waiting until next PSA May 1, 2014

For those who do get hot flashes I have heard it referred to as a gentle reminder that the Lupron is doing its job.

I started 03-28-13 and I do nto think I have had a hot flash in 2014, but maybe that's the Lupron memory moments thing, CRS, can't remember shinola.

As PeterDA said the total loss of libido is there but by it's nature no longer think about sex, so do not realize I have lost my libido.

As Todd says in his blog, this makes it particularly tough on the spouse, who may at one time have asked for not so much public displays of affection but now regrets her prayers were totally answered.

I am very fortunate to have no Lupron side effects other than about an 8 pouind weight gain and associated lack of muscle mass that happened during GHMPH Rochester and I cannot shake it like I used to, and the absence of libido.

Right now I am blaming it on the groundhog rather than the Lupron and hope to get more regular in my 15 mile bike rides soon.

LupronJim