Posted 4/12/2014 12:44 AM (GMT 0)
I am 3 weeks post prostatectomy (da Vinci) and this is my first post. I want to say how grateful I am to have found this site and how much I appreciate the information everyone has provided. It certainly has taken away the feeling of loneliness. I have two questions.
First, the way I was diagnosed is very unconventional. My father died at 60 of PC and when he was diagnosed, it was stage 4. He died 8 months later. For 21 years, I have been faithful with the yearly PSA and DRE (I am 51). My 2013 PSA was 1.9 and DRE detected nothing. In December, I had my first kidney stone attack. After it passed, a friend suggested I see a urologist. I hesitated, but she insisted. The urologist saw my father's history and shared that his father had died of prostate cancer. He gave me the choice of repeating the urinalysis in 3 months or doing a cystoscopy. If I chose the cystoscopy, he was willing to biopsy the prostate, although he did not feel it was really needed (my GP said a biopsy was "over-kill"). I chose to be aggressive and have the biopsy. Needless to say, the urologist and I were stunned when it showed 7 out of 12 samples were cancerous, in both lobes and a Gleason of 6. I have so many emotions that I have dealt with as this was a fluke. My PSA and DRE were not showing anything. Had it not been for the options the Dr. gave me and my decision to be aggressive, I doubt I would have lived to the age of my father. I am posting this because I have not read of a similar experience and because I have become keenly aware that there is so much to be done in regard to screening. If anyone has had a similar experience or just a comment, I would appreciate it.
My second question is much shorter. Three days after having my catheter removed, I started passing blood clots. They continued to get larger. During this time, I was not incontinent and was thrilled. Two days ago I stopped passing clots and now am leaking to the point that I have started using shields. I am really not complaining as I feel so fortunate, but just find it interesting that I now have to use shields. Were the clots "damming" up the urine and now that they are not there, I have less control? Any thoughts would be appreciated.