Treating Peryonies Disease with Penile Traction Therapy

Hi my name is Adam, wanted to chime in here and hopefully help some people out. From what I understand working in the industry one of the side-effects commonly associated with the treatment of prostate cancer is Peyronies Disease (PD) or penile curvature.

One of the methods for treating this type of penile deformity is called penile traction therapy. Here are some links to great findings about treating curvature with this method.

Renal & Urology News: Novel Peyronies Disease Treatment Shows Efficacy
www.renalandurologynews.com/novel-peyronies-disease-treatment-shows-efficacy/article/342089/

NCBI: Penile traction therapy and Peyronie’s disease: a state of art review of the current literature
www.ncbi.nlm.nih.gov/pmc/articles/PMC3547530/

Patient UK: Initial data seems promising in terms of improving penile length and reducing deformity
www.patient.co.uk/doctor/peyronies-disease-pro

Though extensive clinical tests have yet to be conducted it is clear that as it stands the studies that have been published indeed show that penile traction therapy appears to be a very promising surgery-free alternative to Peyronies Disease treatment.

Here at the company I work for <redacted> many of our very own users have reported a vast improvement to their conditions using penile traction therapy devices paired with a Vitamin E supplement. I must warm people considering this type of therapy that it is NOT a miracle cure, and requires both time and effort to achieve desired results.

Have any of you tried this type of therapy? I would love to hear your results and experiences with it.

Started this thread with hopes of raising some awareness about the topic as well as helping people out. So if anyone has any questions about PTT or how to get the most out of their devices I am here to help. You can go ahead and reply here or even send me a message.

Good luck to all with their choice of treatment!

Adam,

This is a topic we talk about quite a bit and information from an industry insider could be helpful to a number of our members who are having trouble with their crooked members. So I haven't deleted your message even though it skates along the edge of our rules about spam. (Actually it is a bit over the line, but I am hoping you will work with us.)

If you edit your profile you will find a checkbox that will make your email address accessible to other members (It says something like "Show your Email Address".) That way people can contact you privately to ask questions about your company's device.

Near the top of the page is a link to our forum rules. The ones you will need to be careful of are rules 4 and 8.

While you are editing your profile you might change your member id to something other than the name of the company you work for. We have lots of members and other moderators who can be pretty quick on the trigger for new members who look like spammers and your screen name, just now, may easily set them off.

For your participation here, please limit your discussion to information that applies equally well to your competitors products as well as your own. Penile traction is a useful new-ish treatment option that some of our members ought to be considering but please try not to steer business to your own company. It is a bit of a moral hazard for you but I hope we can make it work...


--PeterDisAbelard - Moderator..

Post Edited By Moderator (PeterDisAbelard.) : 8/4/2014 1:30:07 PM (GMT-6)

While you were typing your response, I was editing my note to suggest that you change your screen name to something that doesn't link to your company. You will need an email address and a screen name that doesn't link to your company. Otherwise I will have to spend all my time trying to protect you from other moderators who want to delete you.

You don't need to make it a secret that you work in the industry but you can't provide any specifics of your particular product or your company here. But people can ask you directly.

Thanks, Adam. We are making progress but I'm afraid the mention of your company in you signature will have to be made generic, too. I can pretty much guarantee that if some other moderator can find their way to your companies web page from some information you post here they will delete your messages and ban your membership. I know it can happen innocently, but I've recently spent a lot of time working with another member who wrote a book about prostate cancer so he can take a low enough profile so he can participate without looking like he is just here to peddle his book.

Oh, and if you are just here to peddle your company's stuff, give up now. No fault no foul. We're just too twitchy about spam here to make it work...

Gedman,
Thank you for posting the link to the picture, I've wondered what these traction devices looked like. Is it terrible hard to use? Painful? Do you wear it all day?

Also, you mentioned that Mulhall does not recommend that it be used as a mom therapy .... what other therapy is used in conjunction with it?

Regardless of what Dr. Mulhall says, there is no doubt that traction does work as a mono-therapy. Dr. Mulhall is known for minimizing treatments that many of the best known pioneers in PD recommend. Foremost is pentox. Dr. Tom Lue in CA is no doubt one of the top 5 PD doctors in the the country and he would disagree with Dr. Muhall as would many study results. Dr. Mulhall is also known to minimize many things that cause PD such as trimix.

The well known and well respected Dr. Lawrence Levine for one, conducted his own study on traction. Though his study sample was very limited in size (no pun intended) it indicated an increase in length, girth, and even improvement in hourglass type deformity.

Traction is known to work as is the VED. There are even rat studies that compare the two after inflicting penile trauma. In addition to verifying the value of both the VED and traction, possibly the most amazing part of the rat study is that they actually made rat VED's and that some technician had to attack traction devices to a bunch of rat penises. What in interesting video that would make.

Many know that the matter of whether these devices work is settled.

I own both devices.

Post Edited (Tiercel) : 8/5/2014 7:41:35 AM (GMT-6)

Hi everyone,

Great discussion. This is exactly what I started this thread for. Thanks for the link, gedman. I like to learn as much about Peyronies as I can and I had never heard that interview before.

I understand Dr. Mulhall's skepticism as far as penile traction as mono-therapy goes. The way I see it is like this, in extreme cases penile traction therapy may not seem effective enough to provide a noticeable result in a reasonable amount of time. After listening, I believe he pairs it with injections to break down the plaque with medication directly and at the same time has his patients use a traction device to provide another form of physical therapy over time, thus expediting patient results.

This is nothing new, I have had an ailment in the past and my doctor used multiple treatment methods (poly-therapy) to treat it. Perhaps even in my case, my doctor would have not viewed one of those therapies alone as effective enough to prescribe by itself.

What it all boils down to is treating PD with PTT is a gradual method of treatment and will NOT provide results as fast as pairing it with other effective treatments. However, I do agree with Tiercel that it works as a mono-therapy (just my opinion) but not as quickly.

Anyone who tells you that PTT will cure PD 'in no time' is being misleading. In order to achieve noticeable results you have to stay committed. It is not for everyone, often times users simply can't find enough time in the day to wear their devices. If you don't intend on wearing it as directed I suggest you opt for another treatment.

RCS, I wanted to reply with some info to your questions.

"Is it terribly hard to use?"
While there is a definite learning curve to using these types of devices (especially for first time users), once you figure out how to configure it to your penis properly, it is rather simple to use.

"Painful?"
When it is used correctly and with the right memory foam padding or medical gauze it should not be painful at all. Often our users report discomfort and after assisting them we see that they were simply not using or calibrating the device correctly, or were being over-ambitious with their set-up. Straining your penis with traction may make it feel like it is working faster, but is an unsafe practice. It will likely make you dread wearing your device, thus use it less, thus slow your results to a virtual halt.

"Do you wear it all day?"
It is not recommended that you wear your device all day. We recommend our users wear it between 4-6 hours per day at most and avoid wearing it as they sleep.

"What other therapy is used in conjunction with it?"
Typically, Peyronies device packages are paired with Vitamin E supplements. That being said, the medical community is split on the effectiveness of treating PD with Vitamin E. If you listen to Dr. Mulhall's interview he expresses concerns of using Vitamin E for older men for example. He is not alone. But keep in mind, other doctors strongly recommend Vitamin E. It varies. He also mentions injections that I believe work to break down the plaque which causes Peyronies. I know very little about that, you would have to ask your doctor directly.

All this information I am sharing is strictly my opinion after working in the commercial side of the PTT field. I am not a doctor, and I think you should always consult one before starting any type of therapy.

Hope this helps, feel free to ask me any other questions you may have and keep this informative thread going. Thanks!

Adam, The name of your company in your signature will have to go. Sorry, but I won't be able to protect you from the other moderators with that there. You can describe yourself as an "Official representative of a traction device manufacturer." People will email you and ask. That's fine. But having it visible on your comments makes you look like you are here to drive traffic to your site. -- PeterDisAbelasd

Post Edited By Moderator (PeterDisAbelard.) : 8/5/2014 8:42:10 AM (GMT-6)

Oh, and good information, by the way.

As I understand it the injections for Peyronies are a new technique that is only approved for use by doctors who have had special training because it carries some significant risks of penile fracture. That is also the reason it is only done for men with serious curvatures (>30degrees).

I have heard that at this time there are only about 1000 urologists who have the training in the world and if you divide that number by the number of urological practices you will see that if you want and need that treatment you may have to travel to get it done.

Adam,

The stuff you quoted was mostly my recollection of a discussion I had with my urologist when we suspected that some of my scarification might be the early stages of Peyronie's (which currently does not seem to be the case.) Since you asked, I have been able to verify most of it.

I was going to provide some links but it's probably easier just to suggest some search engine keys.

Look for "Xyaflex" and "Xyaflex rems" and you should find most of the information.

The one thing that you will find difficult to find, and is quite possibly me misremembering what my doctor said, is the direct tie-in to penile traction devices. Apparently the "penile modeling" sessions are done using the hands to apply the corrective force. They recommend several modeling sessions, some done by the doctor and some done at home by the patient.

The penile traction discussion was probably a separate discussion on the same visit which I have conflated.

Thanks for fixing the signature. They are balky sometimes. Usually the way it works is that someone will suggests a change to a member's signature, he will make the change and post an "is this better?" comment on which the changes will not appear. Then he will post a "why don't my changes show up?" comment and the changes will appear on that one.

Loving that link to http://www.peyroniesassociation.org/. Still going over it. Seems like a very valuable resource and I appreciate you sharing it with me.

And thanks for sharing your PTT experience. All those tips are indeed helpful to anyone thinking of starting PTT.

PeterDisAbelard, after searching 'Xyaflex' and having a look at their marketing materials and product info, it turns out I had read about this a few months ago in press release. From what I understand it is a relatively new medication. Will have to read up on it.

Thanks again.

bluebird123 said...
My husband was treated for slight peyronies by Dr. Mulhall. He had peyronies twice. The first time he had curvature to one side. Dr. Mulhall diagnosed him with peyronies via ultrasound. He put my husband on his first line of treatment, which was using a traction device for 2 hours per day. The traction device was the only treatment for peyronies that Dr. Mulhall wanted my husband to do. After 3 and 1/2 months my husband's curvature was completely gone.

My husband got peyronies again, but this time the curvature was a slight upwards bend. My husband did not see Dr. Mulhall in person but spoke to his assistant. His assistant said to try the traction device again. My husband used it for a few months and his curvature got a little better but is not completely gone. It is not really a problem if it does not get worse.

My husband went to his surgeon to get his PSA taken a few weeks ago. The PA that drew his blood also examined him. She felt the scar tissue that was causing the peyronies. She put him on his surgeon's program, which has him using a VED. While a VED is not part of Dr. Mulhall's program (either ED rehab or peyronies treatment), Dr. Mulhall thinks that they are helpful (my husband and I discussed a VED with him when he was originally diagnosed with peyronies). I think that my husband lost some size with his second bout of peyronies, and the VED seems to be restoring that size, even in the short time that he has been using it. For him, the VED is working better than the traction device at restoring size.

Hi bluebird,

Thanks for the information I really appreciate you sharing your husband's experience treating his PD with PTT. I wish him the best of luck with his VED treatment as well.

My question for you is, has he ever asked his doctor about using VED in conjunction with a PTT device as part of a poly-therapy treatment. I ask you because it is a question come up frequently recently and was curious if he has ever gotten any feedback about that.

Personally I don't think it could hurt to try if his penis is given time to recover between usage, and if he still has his PTT device it may be worth consulting his doctor about it.

Regards.

Adam,

My husband never asked about using a VED and a traction device simultaneously, but he was never told not to use them together.

My husband was put on traction therapy by Dr. Mulhall, with instructions to use traction for a few months. My husband did use traction for a few months for his current peyronies condition, but then stopped. While traction completely reversed his first peyronies problem, it was not as successful with his current peyronies. Do you think that traction is effective in reversing peyronies curvature beyond a period of a few months use?

My husband is now using a VED as part of a 6-week ED rehab program that his surgeon developed. The PA who put him on the program thought that the VED might help his peyronies, but treating peyronies is not the main purpose of the VED in this program. At this point ED is much more of a problem than peyronies in my husband's life.

When my husband sees Dr. Mulhall again I will have him ask Mulhall if he thinks traction therapy is helpful beyond a period of a few months, and if a VED and traction can be used together.

bluebird123 said...
Adam,

My husband never asked about using a VED and a traction device simultaneously, but he was never told not to use them together.

My husband was put on traction therapy by Dr. Mulhall, with instructions to use traction for a few months. My husband did use traction for a few months for his current peyronies condition, but then stopped. While traction completely reversed his first peyronies problem, it was not as successful with his current peyronies. Do you think that traction is effective in reversing peyronies curvature beyond a period of a few months use?

My husband is now using a VED as part of a 6-week ED rehab program that his surgeon developed. The PA who put him on the program thought that the VED might help his peyronies, but treating peyronies is not the main purpose of the VED in this program. At this point ED is much more of a problem than peyronies in my husband's life.

When my husband sees Dr. Mulhall again I will have him ask Mulhall if he thinks traction therapy is helpful beyond a period of a few months, and if a VED and traction can be used together.

Hi bluebird123,

Thanks for your reply. It would be fantastic if you husband asked Dr. Mulhall about using both as a form of poly-therapy for his condition. I don't think it should be an issue. And if traction therapy helped the first time I think that it should going forward in conjunction with VED as well. But that is just my opinion.

Regardless I wish him a speedy recovery, and both of you health and happiness.

PeterDisAbelard. said...
Just a thought. There are two fundamental types of deformity associated with Peronie's disease: penile bending, and an hourglass deformity where the erect penis has a narrow and frequently wobbly area in the middle. It seems sensible that traction would help with mild cases of bending, since it would apply longitudinal stretching mostly on the side that was shortened by the plaque, but since the hourglass deformity is caused by plaques that won't stretch the other way -- for girth expansion -- it seems like the every-which-way stretching of a VED might work better for that.

Very good point, PeterDisAbleard. I agree that often no 2 cases are the same, and what may work for one case, may not work for another. I think the best bet is to consult your physician prior to starting any kind of treatment for PD. One thing is certain, that PTT won't hurt to try, but it also takes time and effort to achieve results. Asking your doctor if they think that PTT could help with your specific condition is the best bet to avoiding treatment that may not be effective for you. Thanks for chiming in.

For an alternative perspective - I had about a 15 degree curvature midway up the shaft, and a penile implant completely addressed the problem for me. This is a surgical means to address the problem, just wanted to provide the info.