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Posted 10/26/2014 2:36 PM (GMT 0)
i started my pc journey in august of 2013.my psa was 96,12 cores positive,3 at 70%,1 at 90%,8 at 100%.gleason score of 8.started hormone shots with trelstar every 6 months.my psa is now at 2.36,my t level is at 22.i have a medical oncologist that seems extremely interested in my welfare.do you guys that are knowledgable in treatment options think this sounds reasonable,or would it make sense to see a prostate specialist?i see a lot of comments from guys that have had a lot more success in treatment than i have,and i would like to hear from you.
Posted 10/26/2014 5:24 PM (GMT 0)
Hello Mickey,

Welcome to the forum. Sorry you need to be here but glad you found us.

I will start by saying that it is hard to talk to too many doctors. Second opinions are almost always a good idea. So, sure, talking to a prostate cancer expert would be a good idea. From what you describe you should probably have a team of doctors with different specialties.

Can you tell us a bit more about yourself? How old are you, for one thing? It makes a difference in terms of how aggressive it makes sense to be in treating the cancer.

Have you had any scans, bone scans for metastases, etc.? If so, what did they show?

Where do you live? (What is the nearest big city?) We may know a hot-shot cancer doctor who is in your area who you could consult.
Posted 10/26/2014 6:06 PM (GMT 0)
Welcome back Mickey.

It would help if you indicated in your profle or on your post what area of the country you love in, so people could refine their replies to oncologists in your area.

You seem to have has a nice response to hormonal therapy.

LupronJim
Posted 10/26/2014 6:25 PM (GMT 0)
Hello Mickey !

I was diagnosed about the same time you were in 2013, with my PSA being over 100 at the time of diagnosis. They put me on Lupron shots, which shot the PSA way down.

Now I also have an oncologist and they are giving me six rounds of chemotherapy (Taxotere), which is sending the PSA down even further, less than 0.10. My regimen for chemotherapy is six rounds, given every three weeks, over the course of eighteen weeks. This is in addition to the Lupron shots.

Have you consulted with an oncologist about adding chemotherapy to your hormone shots? This is a new standard of care for those of us with advanced prostate cancer at diagnosis. It has helped me and I would recommend that you consult with an oncologist about the idea.

Best wishes !
Posted 10/27/2014 12:50 AM (GMT 0)
i am 63 yrs old,in good health other than the prostate cancer.i have a bone met on my left hip.i have had 2 ct scans so far with another scheduled in early november.the second ct scan showed the met was not a bright as the first time.at the end of my second 6 month trelstar shot my psa and my t level went up slightly,so i was checked in september and october after my second shot,and my psa and t level rose slightly in september,but dropped to the present level of 2.36 in october.t level is 22 at present.it had been at <10 before.i am presently under the care of a medical oncologist from wake forest university hospital.
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