HealingWell
Search Close Search
☰

Incontinence has recurred after AUS revision.............Help anyone!

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/7/2017 1:02 AM (GMT 0)
Hi Tallguy

I had 2 revisions. The first AUS failed because a hole in the device. The second works well but the pump is planted too high and I have to pull it down so that it does not cause pressure on the inguinal canal in my groin. My Urologist when learning of the misplacement said I could revise it again or just pull on it.
I chose the latter but am not satisfied completely.
I can say that it has been 2 years and I wear an extra light poise liner which is thin and very comfortable. On a good day it is almost completely dry and a bad day if I am very active physically it is a quarter full so it is not much of a problem ...........yet. Sooner or later it probably will fail as most do and need revision. I originally had a revision because in 2011 I had recurrence of PCA and had radiation and the AUS became loose after the urethra atrophied a little .

I wear a tight jockey brief to keep the pad close to my skin which helps a lot and is more comfortable( thanks to Knotreel's post)
prinx
Posted 1/7/2017 2:25 AM (GMT 0)
Prinx,
Thanks for the response. Sounds like you are pretty dry. These things are not perfect but better than the alternative. Wish I was more dry but all and all it is manageable. Think I will wait until I have a major failure or more dramatic leakage before going for a revision.
Then I will go somewhere and find a Uro who does loads of AUS revisions.
One real important thing I have learned from the forum is to go for experience. I am in Reno and we just don't have lots of them done here. My local Uro says there is one in San Francisco who does lots of them. Worth the trip.
I also wear the tight Jocky boxer briefs with the H flap. Learned how to activate AUS with one hand standing at urinal. I go through one Tena #2 moderate pad and pretty well fill it on a golf day. Less on non golf days. I like Tena best. They now make 0, 1, 2, and 3 levels and really like the way they fit. Wear the #0 at night for catching drips. Order them from their web site. Www.tena.com.
Cheers
Posted 1/7/2017 4:20 PM (GMT 0)
Tallguy

One more tip that I forgot to tell you.
One day I called the AUS800 manufacturer and talked to a customer service person. They told me that
most users don't know that after voiding you have to wait 2 minutes for the pump to recycle and completely refill. Most Uro's never mention this and mine certainly did not.

Another tip. Try to avoid going to a place where they have residents in training because even though you think your doctor is doing the surgery you may be surprised who eventually did it. Chances are that
is where mistakes are made.

For what its worth,
Prinx
✚ New Topic ✚ Reply
12