Calling all pT3 Club or "The Horse Has Left The Barn Boys"

Welcome, CraigMJ! I hope you get some excellent news tomorrow. Let us know what you learn.

Craig MJ and Cassie8,

Welcome to Healing Well and to the pT3 Club. Sorry you both have to join our forum AND Club. Looking at your numbers you both should be joining our "Zero Club" also. Good luck today Craig and to you Cassie on 11/30.

I have added you both to our club list of members. If you want to find this thread again, put in a search up in the right hand corner of the page where it says Google Custom Search or bookmark this page.

As you may know, getting your zero PSA is just the start. From here on you will need to get retested often to prepare for possible recurrence.

Craig, I am envious of your progress already. Dry already?

Cassie, Have you talked to your doctor about the pain? They rework your plumbing so different pains are possible but I would at least call to be sure everything is okay.

Good luck with your test. Let us know the results so we can celebrate with you both!

Bill from Florida

Alright Craig, great news! Welcome to the Zero Club! Your membership has been approved. Do I hear a second?

Always great to start out with Zero after treatment.

Now go celebrate with your wife

Bill from Florida

Hey Woodpecker, sorry to hear about the jump in your PSA.
I'll keep your seat warm as long as I am still in the Zero Club.

Bill from Florida

Just a quick update been almost ten months since coming off zoladex, small up tic from last test 0.04 from 0.01 hopping just noise and not a sign to of things to come..

Hey this is cool! A new club that I get to join! Very exclusive membership and no one really wants to be here. Sounds like a upper class place. :)

Dang, that is a long list on the first page. How many of us are there?

Well new to the whole process. Just had my Da Vinci Surgery at UAB on 12/3/15. Margins clear, but seminal vesicles involved, Lymph nodes negative. Did say they got it all but am having the Mayo Clinic genetic decipher testing since mine was unusual with a PSA of .8 and Gleason of 8. Have my follow up on 1/26/16 and will hear from the Mayo tests then. so guess I am a Pt3b

Welcome Redsea to our little corner of the Healing Well world!

Looks like you have the qualifying numbers to join our club here.

Good luck with your recovery and your follow up visit in January.

Look for our thread and report back often.

Bill from Florida

This pt3b is in remission ! Undetectable!
Merry Christmas!
Bob

Hi guys on last check in mentioned my PSA was up from. 0.01 to 0.04. Well this is one year since stopping zoladex and and my current test came in at. 0.02 so far so good hope everyone is doing well still feeling. A lot of fatigue haven't had my (T) level checked yet so I am thinking it's still pretty low.Hang in there guys.

Welcome JDill from San Antonio. Sorry guys, I thought I had already joined this thread. ORP Aug 2011 PSA 49. Pre-op was G8. Post Op path knocked me to my knees when I was upgraded to 4+5+G9. I did not realized at the time the significance of pT3a and was focused on margins being indeterminate. Thought I was one of the lucky ones for 35 months. Well, July 2014 sucked-PSA .03. As of Dec 15 .108. I of course have been advised to do SRT. I started a thread about my decision to skip it here. www.healingwell.com/community/default.aspx?f=35&m=3585080 Please comment in that thread if you want. This is not a club any of us want to be in, but there are certainly some good company here.

I haven't been on HW lately so I missed a couple of new members of the pT3 Club.

Welcome JDill, Startech and Gasman1!!! I have added you to the membership.

If you have any updates you would like to mention or if you just want to vent, look for this
thread and post your news.

Gearloose, Great update on your numbers, sorry you are still having some fatigue issues.
Hopefully the lower PSA may perk you up some.

JDill, Looks like you are new to the forum and this thing called PCa! Glad you found us
and I hope your side effects aren't too bad. I had a fit with incontinence but glad to see
most of the guys get over it in a few months

Gasman1, I don't even want to know why you use that name!
I also hope your energy improves soon.

Startech, I am with you! If my PSA climbs to .1, I may skip SRT also. I have thought about
that scenario many times in preparation for the rise. Good luck in the coming months.

Bill from Florida

Hey pT3 Club,
I posted the following under a different title, only had a couple of responses...although very helpful.
So, I wanted to "bump" this thread back up & ask for your input:


As you can see from my signature, my post RP Path report was not good.
Had RP, SRT, ADT (18mo.)
On Feb 12th I was more than exited to get my last ADT shot 12mo/Lupron/6mo Firmagon.
They drew blood for 3mo PSA.......0.03 CRAP! As you can imagine all my excitement at finishing treatments VANISHED!

I've been using a Urologist for shots & PSA's but I'm not using him going forward for additional advice or treatments. He think's it's ok to wait 3mo for next PSA. Well, I've been on this board way too long to take that advice. I do have a Med Onc. that I consulted with when I was deciding on the SRT, I emailed and asked him if I should retest in a month. He said yes, retest, every 4 weeks for 3x to see if trend is actually going up.

Of course my hope/prayer is that the 0.03 was lab error, test error, you know...anything but correct!

Questions: I know ADT can fail already, is that likely though? Would you do anything else right now? Do any of you know a Prostate Cancer Specialist in Indianapolis/Nashville/St. Louis/Cincinnati? I'm about three hours from all of these cities. (the Med Onc. I am in touch with does a lot with PC but not his only focus).
I will truly value the input from you all,
Mike