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Prostate Cancer
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sessanta
New Member
Joined : Sep 2015
Posts : 11
Posted 10/30/2015 1:14 AM (GMT 0)
Six weeks ago my PSA came in higher than usual. The first five since my RP in March 2014 were all <.04. The most recent one came in at .08. Since my pathology post-surgery was clean, my urologist felt that the ,08 might be an anomaly for a variety of reasons and ordered another PSA. Despite his encouraging words, my anxiety level was off the charts. This led me not only to this website but to the various writings and videos available to anyone wanting a better understanding of this disease. I had done very little research post-surgery and operated within a bubble. That won't happen again.
What I have learned...
We share the disease but there are as many scenarios as there are men.
There are common denominators to every study, paper and personal experience. These are guides, not rules.
Your medical team will be the most important collection of people in your life. Choose wisely.
Advocate for yourself. They know what they know but you should have all your questions and concerns fully addressed even at the risk of repeating yourself. (I often wonder if my doctors think that I am hearing-impaired because of the repetition of some of my questions.)
Advice about
nutrition, exercise and taking care of oneself in general may not alter the outcome but it can't hurt.
Try not to get ahead of oneself. (Easier said than done.) The last six weeks were worse than waiting for
surgery. I had my share of mental meltdowns.
As with most things in life, no one does it alone.
Today's PSA was <.02. I fell apart.
Thank you for what you share and for your feedback to my original post. In no way do I consider today's result the end of it. I take it three months at a time. But I am grateful and I will never take this disease for granted. The lessons keep coming no matter how old we get.
halbert
Veteran Member
Joined : Dec 2014
Posts : 6043
Posted 10/30/2015 1:47 AM (GMT 0)
Thanks for the great lessons learned. Spot on!
celebrate life
Veteran Member
Joined : Dec 2014
Posts : 2112
Posted 10/30/2015 6:53 AM (GMT 0)
You learn very good lesson, grasshopper. .
Thank you for sharing. As I read your post, I realized that I have also learned those things and some other stuff, too. But those are the important lessons!
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 10/31/2015 1:34 AM (GMT 0)
Try to live your life as if you had very little and a fairly mild variant of PCa.. Because you do. At your age{actually any age this is true} you need to life apart from cancer. This is supposedly difficult to do, but I have found it quite easy with the right perspective. That perspective is not something you can mimic. It is your perspective and no one else's.... This is not a Pollyanna attitude... it is a very realistic and attainable attitude
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 10/31/2015 2:53 PM (GMT 0)
Good post Sessanta, and great result on the <.02.
That lesson about
not getting ahead of oneself.... I've been working on that since I was diagnosed, one year ago next week. If you can describe how you figured that one out, let me know! 😀👍
Fairwind
Veteran Member
Joined : Jul 2010
Posts : 4107
Posted 10/31/2015 3:17 PM (GMT 0)
That ultra-sensitive PSA test causes all kinds of needless anxiety. My doctors stick with the standard test, it will let you know soon enough if you need to start worrying....
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 10/31/2015 3:34 PM (GMT 0)
I generally agree with the std test being the better in most cases, due to anxiety. But there is a time and place for the ultra. That time and place is usually known by the person involved.
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