Blood in urine

Off and on for a couple of weeks I've been having some gross hematuria (red pee). My PCP referred me back to my urologist. I am to see him this Wednesday. (The 23rd, I believe).

I think there's a good chance he'll want to scope me. My question is...should I let him? My continence is 99% to the good. And this, after having had my bladder neck sutures come loose causing 22 days of being cathed. I've read where cystoscopies can/has caused problems with continence where previously there were none.


I know you guys aren't doctors but....This began at the same time as when my first post surgery orgasms began. I just don't wanna mess up the good things I've got going for me.

Moreover...This could be something totally unrelated to my surgery. I don't believe it's bladder cancer as I had a cystoscopy 14 mos. Ago when I was diagnosed with PC. Further reason not to do another one.

I believe it could be a kidney problem. Maybe even the urethra/bladder not liking the orgasms. Either way...scoping, it seems to me has more potential downside than up.

about 2 months or so out post-op I had a couple days with slightly bloody dribble and light red-tinged urine, then it went away. I figured after-effects. No problems since. Just mentioning in case you want to give it a little to time to think on it.

I assume your PCP referred you back to your surgeon. If not, I would think you would not need to be referred for a follow up. Your surgeon is the one you need to talk to about this. Good luck IT.

I have had three cystoscopies within the last ten months. They had no affect on me on passing urine. Now that my prostate has dealt with Brachytherapy, just received a bladder cancer diagnosis. One week from tomorrow I go to the VA hospital at Danville, IL for a TURBT where the bladder will be scraped in an effort to find WHY have been having Atypical cells. I have already lost my left kidney, left ureter and bladder cuff last year so am just holding my breath to see what this TURBT will show. All this stuff started when I began to pee blood.

IT, I can't say for sure, but I think post surgery cystoscopies did affect my urethra to the point where it is now completely blocked.

I had an initial scope when I first experienced a slow flow (coupled with ongoing incontinence). That made matters worse, in fact I had to be recathed for a few days, when that was removed I did flow again, but the slow flow also recurred. I then had 2 further scopes and each time the flow got worse and has now stopped completely - but hey, I'm not incontinent anymore - gotta look for positives.

I am now living with a supra pubic catheter, which isn't pleasant, but it also isn't unbearable.

Two uro's are mystified as they have each been able to scope me with a 14 Fr scope and can't see any blockage. One theory is that the nerve controlling the sphincter has "seized up". My local uro offered to scope me again, purely as an exploratory procedure, but I declined when he said it was a possibility that I could return to incontinence.

Don't like where I am now, but it's better than being incontinent.

Like I said, I can't be sure the cystoscopies caused my problem, but I would think any aggravation of the anastomosis is best avoided.

Chas

Due to my constant strictures (bladder neck) post surgery, I would be real leery of any scoping that isn't really proven to be needed. Every time I had one, uro warned that it could lead to incontinence, when I didn't have any, and could lead to ED issues, when I didn't have any. Same with the 6 corrective surgeries I had along the way to reopen the bladder neck.

I was on a Suprapubic catheter for 51 weeks in a row, it was no fun. Of course better than being blocked up, but had to have the tube changed every 4 weeks, which, in my case, ended up being a very traumatic and painful event. "Salt" crystals would form on the tube, and felt like someone ripping shredded glass out of me when they would pull out the old tube. Of course, just as painful having the new tube put into place.

Hope you find a good long term solution, without further damaging yourself in the process. Been there, done that.

Hey IT you ok?