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Urine flow and post void test may derail Brachytherapy
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Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/19/2016 6:47 AM (GMT 0)
I was informed today that I needed to get a urine flow and post void test. I didn't test very well but also not real good.. Both of my RO's agree that I need to get another after IMRT. If IMRT causes further urinary symptoms I might not be getting my Brachy. Has anyone experienced this and what are the alternatives if I can't have brachy. This all came completely out of left field and has has me shook up a bit. I haven't read any posts that even mention this , or maybe I'm just not finding them.
It's been a dejecting day again.... Mark
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 8/19/2016 2:45 PM (GMT 0)
I didn't have to get that kind of testing for IMRT. I've not heard many here talking about
getting that test.
Not sure what's up with that.
Andrew
Michael_T
Veteran Member
Joined : Sep 2012
Posts : 4103
Posted 8/19/2016 3:20 PM (GMT 0)
Wow...sorry to hear that. I didn't have that particular test before my IMRT or my brachy.
After completing the Triple Play I'd say that I only pee about
80% as well as I used to. (No problems prior.) If I take just one Rapiflo every 3-7 days, I'm back to 100%. That said, I'm fine with my 80% level so I don't bother. So if your urination is sub-par now, I can certainly see how radiation can make it worse, although I don't know if it's IMRT or brachy that has the greater effect.
Hopefully, this all gets sorted out and it becomes a non-issue for you and your treatment goes ahead like planned. Anecdotally, I don't recall a lot of brachy guys here with significant peeing issues--if there are, they'll likely weigh in here. And I'd also keep in mind that there are other G9s that have just had IMRT without brachy and are doing fine. (Redwing comes to mind.)
Let's hope this is just a minor bump in the road...
Redwing57
Veteran Member
Joined : Apr 2013
Posts : 2827
Posted 8/19/2016 3:39 PM (GMT 0)
As I've mentioned before, my RO's main concern with the brachy-boost plus IMRT concept was exactly in that area, specifically the increased risk of urinary strictures. Vanderbilt's Cancer Center didn't recommend the "triple play" concept for exactly that risk. Vanderbilt's a regional referral center for men dealing with such side effects, so they are understandably cautious.
I'm not surprised at all they're checking you for that, and I would tend to err on the side of caution. Many (most?) seem to do fine with it, but it is a known risk.
Newton451
Veteran Member
Joined : Feb 2016
Posts : 553
Posted 8/19/2016 5:47 PM (GMT 0)
Hi Mark. I also did not have any test prior to my treatments. Mind you, if my questionaire prior to treatment left a cause for concern on the part of the RO, I suppose I may have had to have a test.
Happy to report that today...exactly 14 days post EBRT, and also post HDRBRT, my urinary everything seems to be back to almost normal with no strange sensations. I am still taking Flomax generic though.
CaliJR
Veteran Member
Joined : May 2015
Posts : 787
Posted 8/19/2016 9:31 PM (GMT 0)
Hi Mark, I am 5 months past HDRBT and a couple of months past IMRT. I was taking Flomax daily until about
a week ago. Now I take one every other day as I still have some pushing required so I know there is still some swelling inside. A test at my MO's office last month showed I am voiding well - done by a simple ultrasound after I went. My RO gave me a timeline of being "fairly back to normal" after September. I guess I will wait to see what that is. Like others, probably at the 80% range. Good luck with your treatments. -JR
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/20/2016 5:16 PM (GMT 0)
If Brachy is taken off the table after IMRT, should the dose of radiation been increased for having just HT+IMRT. In other words if there is a chance that Brachy is off the table because of my urinary issues, should I just go with IMRT and would the dose be stronger if I did. Can they go back and radiate again if the Brachy is no longer an option. I would think that this is something I should know before starting IMRT so as to get the correct dose with the options that could be taken away.
Thanks Mark
Michael_T
Veteran Member
Joined : Sep 2012
Posts : 4103
Posted 8/20/2016 8:42 PM (GMT 0)
You raise a good point. Standard IMRT without brachy is (I believe) seven weeks versus five weeks as a combo therapy. Besides the length of the treatment, I don't know if it alters the radiation plan as well.
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/20/2016 8:49 PM (GMT 0)
Yes, my IMRT is scheduled for 5 weeks.
Fauntleroy
Veteran Member
Joined : Dec 2012
Posts : 566
Posted 8/20/2016 10:50 PM (GMT 0)
I had DART, similar to IMRT, brachy and ADT, treatment
I had to have a green light laser procedure after IMRT prior to brachy due to a growth blocking the urethra,or seed implant would not have been possible. Just a trim to
open the pipe.
My RO was overseeing the whole thing, went well and allowed me to complete treatment.
So if your restriction is due to a similar condition, it may be an option for you
Newton451
Veteran Member
Joined : Feb 2016
Posts : 553
Posted 8/20/2016 11:00 PM (GMT 0)
Hi Mark. My understanding is that HDRBRT is a factor of 3 in curative value. What that means is if they were planning 15 gy, then cancel it, its equivalent EBRT is 45 gy additional to your RT plan.
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/21/2016 1:04 AM (GMT 0)
Newton..I'm scheduled for LDRBRT. What you are saying is I'd get just as aggressive RT by adding EBRT 45 gy to the IMRT I'm already scheduled for. Would it lengthen the number of weeks for the treatment?
Redwing 57 had 50.4 Gy pelvic nodes, 79.2 Gy prostate. He had the same urinary concerns and so passed on Brachy.
My local RO stated at our first consult back in July that she would not do the Brachy and just treat it with EBRT. At that time I was convinced I was going to have the "triple play" so really didn't trust what she was saying. now I'm beginning to think maybe she was on the right course.
For a month now ,I was set on HT+IMRT+Brachy. Things might be changing. Thank you for your input, I hope I could get more to responds but you,all the others have been very helpful. Thanks Mark
Newton451
Veteran Member
Joined : Feb 2016
Posts : 553
Posted 8/21/2016 10:45 AM (GMT 0)
Hi Mark. The basic answer is yes. As far as I know, they take your full plan dosage (90 gy for example) determine your fraction per treatment (2 gy for example) then do the plan. (1 session per day x 45 days)
In that case it would be 5 fractions per week x 9 weeks for a total of 45 fractions and total of 90 gy.
Redwing57
Veteran Member
Joined : Apr 2013
Posts : 2827
Posted 8/21/2016 6:28 PM (GMT 0)
The dosing plan isn't that simple. Our forum's study specialist, Tall Allen, probably will chime in on this. There are interactions between BT dose, EBRT dose, and even dose rate of EBRT (like SBRT).
The current standard EBRT dose to the prostate, with IMRT and good conformance to the treatment area, seems to be around 79.2 Gy. I see that number a lot. Mine was 44 fractions of 1.8 Gy daily, 5 days/week (9 loooong weeks). They didn't want to miss a single day in that sequence. The intended stress on the bad cells depends on whacking them repeatedly to damage their reproductive capability, their DNA, so they die later when they try to divide.
If you're having some form of brachytherapy, the EBRT dose is adjusted since it is in addition to the brachytherapy dose. If you don't do the BT, then the EBRT dose would be increased to compensate. I don't know the relationships between BT dose, EBRT dose, or fractionation, but probably the Tall one has links to studies about
it.
Definitely talk to your RO to find out what they plan to do.
Tall Allen
Elite Member
Joined : Jul 2012
Posts : 10645
Posted 8/21/2016 6:55 PM (GMT 0)
I agree with Redwing. It's not a matter of a simple conversion (like a factor of 3). You can't exceed roughly 80 Gy of IMRT to the prostate without doing major damage to nearby organs (MSKCC pushed it as high as 86 Gy). The point of a brachy boost is that you can increase the effective radiation dose to the prostate-only without seriously hurting nearby organs. Some are boosting with SBRT, but that is experimental. If you can't, you can't. A stricture can make your life hell. I would mention, however, that a TURP afterwards can often relieve the problem. But you don't want to go through that if you can avoid it.
- Allen
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/21/2016 7:01 PM (GMT 0)
I've been waiting for Tall Allen to respond but he doesn't seem to want to. Thanks for your help. You are correct ,I'll just talk to my RO went she decides to get back to me. I know very little and I just want to make the right decision. Thought it had already been made...... And screw trying to have the duodenal tumor out by the end of Oct when my insurance year turns over. What the hell does money mean anyway...
Now ,I think I'll go back out to my studio and try and get that finished and try not to think about
this crap for the rest of the stinking day. Been trying to get that finished for a year now......
Mark
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/21/2016 7:08 PM (GMT 0)
Sorry Allen. Was too quick on my response. I'm extremely frustrated with the turn of events and really was ready to get this all started and done... Frustrated few days. Thank you for your help Mark
Tall Allen
Elite Member
Joined : Jul 2012
Posts : 10645
Posted 8/21/2016 7:10 PM (GMT 0)
See above.
I've been very busy lately getting my novel
Thaw's Hammer
ready for publication. It's out now. I practice mindfulness, but there's nothing like art to keep one in the present moment.
You can always email me if I don't post a reply. For now, we just have to wait for the results of your urinary retention test.
- Allen
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 8/21/2016 7:22 PM (GMT 0)
I try to use the quote "Time becomes meaningless in the face of creativity" It really is true !
And ,congratulations on getting your novel ready to be published!
Post Edited (Artist Mark) : 8/21/2016 1:25:17 PM (GMT-6)
Tall Allen
Elite Member
Joined : Jul 2012
Posts : 10645
Posted 8/21/2016 7:35 PM (GMT 0)
That is so true. For me, there is nothing as spiritually refreshing as immersing myself in the creative process.
If "Thaw's Hammer" has the same sales as my last novel, "Joan of Quebec," it will pay for the gas it takes to drive to Staples to buy a ream of paper.
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