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Anyone here get radiation treatment at the University of Florida?
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woodpecker43
Regular Member
Joined : Oct 2013
Posts : 85
Posted 11/20/2016 3:09 AM (GMT 0)
The University of Florida proton therapy institute is conducting a clinical trial NCTO1859221 "radiotherapy for oligometastatic prostate cancer" that I would like to participate in but would like to hear from anyone treated there, good or bad. (trying to get that warm and fuzzy feeling about
their capabilities) I have two regional mets and that seems to be what they are advertising for. Their literature uses the C word and frankly that is the determining factor for me. I see this as my last slim hope of a cure or extended remission so it is worth a little risk.
Anyone know anything about
them?
Thanks
Woody
George_
Veteran Member
Joined : Apr 2016
Posts : 597
Posted 11/20/2016 10:24 AM (GMT 0)
Woody,
I looked at the
study details here
and
here
. They seem to use SBRT in this study and not proton therapy. I think SBRT is more suitable for treating small mets but I recently heard that a few proton therapy centers will treat mets too.
George
JNF
Veteran Member
Joined : Dec 2010
Posts : 5986
Posted 11/20/2016 12:12 PM (GMT 0)
Whether it is photon or proton doesn't matter so much. If you qualify for the trial why not participate? My radiation oncologist went to the University of Florida and speaks well of their quality treatments.
1013
Regular Member
Joined : Nov 2016
Posts : 163
Posted 11/20/2016 2:12 PM (GMT 0)
Woody
I'm in agreement with jnf if you qualify why not participate it certainly can't hurt.
Good luck
Jack
Nomar Lupron 4 Me
Veteran Member
Joined : Apr 2013
Posts : 1922
Posted 11/20/2016 6:00 PM (GMT 0)
Other than making sure it is covered by your insurance, no reason why not to go to UF & Shands.
Since I live in west central rural Florida closer to Gainesville than to Jacksonville, I see Dr. Bruce Stechmiller as one of my medical oncologists and Dr. Robert Zlotecki as one of my RO's and am a member of their metastatic disease program. I believe Shands was the second university hospital to adopt Proton therapy, the first in the Southeast.
Dr. Paul Okunief brought his knowledge and experience from Rochester to start the Univ of FL & Shands Oligometastatic program and has a great reputation. I have yet to meet or hear of anyone who has anything bad to say about
Proton therapy other than the difficulty of getting insurance to cover it.
I ended up going to Marina del Rey for MO and Provenge and to UCLA Dr. Chris King for SBRT, but that was no reflection on Shands, just a case of limiting radiation to 5 very high dose fractions and pursue a potential cure more efficiently.
You can Google Proton Bob and subscribe to a monthly newsletter.
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