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Joint pain/weakness with Lupron?

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Posted 12/1/2016 1:40 AM (GMT 0)
Anyone get joint pain and general weakness while on HT? Mentioned this to my RO that I have been getting progressively worse pain in back, arms, legs and hands (losing hand strength) and he said it's a side effect of HT. Have an appointment to discuss with my MO but before that I was just wondering how common this is and what can be done to help. I can't even open a twist off soda and buttoning buttons is becoming a chore. It's not numbness like I had with chemo..it's loss of strength and generally being uncomfortable.
Thanks
Todd
Posted 12/1/2016 2:33 AM (GMT 0)
Hello Highlander64 !.......I had the 6 month shot .....it is now in the 6th month , and YES I have joint pain ..in the mornings especially . I can hardly stand up straight.....index fingers lock up till after noon..lock up and sore at night ?? Hope it goes away ....................no general fatigue My..... RO said it was`nt connected........I say it is
Posted 12/1/2016 1:06 PM (GMT 0)
Been on Lupron since June. Joint pain is bad, especially in the knees. For me it appears the pain is a lot worce wherever I have a touch of arthritis.
Posted 12/1/2016 1:18 PM (GMT 0)
It may not be the hormone therapy per se, but the lack of testosterone that is causing your joint issues. I've been on TRT for years, and when we cut mine back in preparation for RT, I felt like I aged 10 years overnight. Pains I had totally forgotten about came back to haunt me. Once dosage was restored, the pain receded.

I remember reading that testosterone acts like an anti-inflammatory medication. When you have it in your system, it protects you. Take it away and you lost that protection.
Posted 12/1/2016 1:47 PM (GMT 0)
Highlander -

Yes, have all the above symptoms -

It goes with the treatment for most of us.

Bobby Mac
Posted 12/1/2016 1:54 PM (GMT 0)
I've lost a bunch of hand strength in the last year or so but I'm not sure how much I can attribute to Lupron or just the normal aging process. If it's okay with your doc, you might try 600 mg of ibuprofen 2x a day, that really helps keep down joint inflammation.
Posted 12/1/2016 2:50 PM (GMT 0)
John,

After 2 years on Eligard, I have lost a lot of hand and arm strength as well joint pain. My thumbs and wrists seem the be the worst. Hard to button shirts and open cans. The HT makes and old man of you in a hurry. I had my last shot in June, Still having hot flashes and other crap. Hopefully the T will come back and help soon. Better than the alternative though.

Carl
Posted 12/1/2016 7:56 PM (GMT 0)
Thanks for the replies. I had read that osteoporosis is a side effect of many of the cancer treatments...HT included. When I meet with my MO I'm going to ask about a bone density scan because I read it's good to get a baseline in case things progress. I don't recall this being part of the bone scans I had.
Anyone else have bone density scan s done periodically.

I feel the same way...like I'm much older than I am. What a crappy drug Lupron is.
Posted 12/2/2016 12:34 AM (GMT 0)
Your symptoms are common. I had bone density tests every six months but also was on prolia to mitigate bone loss. I took Celebrex to help with pain.
Bob
Posted 12/2/2016 1:40 PM (GMT 0)
Yes, I've had joint issues. Lupron is nasty stuff.
Posted 12/3/2016 12:47 PM (GMT 0)
One of the guys said Lupron makes you feel about 15 years older than your calendar age. I agree.
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