stage four 4 years

Ok Iam new to this forum site I hope I doing this right. I found you folks when my doc wanted me to try a new med called zytiga with 5mg of prednisone per day. I have had stage four prostate cancer four years. Sure is a roller coaster. Been to cancer treatment center of america 8 times in 2014 and 2015 every three months. Cancer has spread through lymph nodes to several bones including spine, pelvis, ribs, sternum, skull and femur. Gleason was and I guess still is 8. I refused infusion chemo but was on xtandi for this past year, 4 pills drove me into a bunch of fatigue dropped to 2 last February but now my psa had doubled to 14 in last three months. Which now I am on zytiga 4 a day. Docs in early 2014 thought I would not last the year, but Iam here. All I can say at this point is immune system! If you are not taking care of your immune system I dont care what drug your on. Diet diet diet. Stay away from white refined sugar, high fructose corn syrup etc. None of us know how much time we have BUT I believe drugs dont cure anything. Your own body can help big time. I stopped CTCA in Zion, IL. great folks flew there with my wife those 8 times but have local urologist that I have to keep fighting off infusion chemo, no thank you. I wish all you guys well. BTW Iam 65 and takin things one day at a time.

Post Edited (Thomasjohn) : 3/5/2017 3:31:22 PM (GMT-7)

Tall Allen,
Thank you for your thoughts. what I meant by fight it off is that my docs right away were pushing for me to take infusion chemo. two years ago. I have really thought about it and my docs even say maybe it would add 6-9 months but the weeks of treatment would probable be as you say no picnic. Iam really doing the more natural way. No GMO no sugar, no red meat etc. I had provenge last summer and Iam believing it helped. You know I was on xtandi for 12 months and I could not even take the full dose of 4 pills, fatigue like unreal. I have really thought and thought and thought about this, I have lost a bunch of friends to cancer/chemo. Am I at times confused sure. This one I am following my gut. I have wowed my docs. So at this point I stay my course. Until my blood work end of this month and see where Iam at with psa. Dare I say Iam tired of all this. But I will never give up not ever. Some one said Band of Brothers, wow exactly

snowcake,
My course of treatment is now taking the zytiga (4 pills day) and prednisone I guess this is normal dosage. and at night take rapaflo and an oxy or maybe two. I take the oxycodone when the pain hits in my ribs, spine and or pelvis. I just started the zytiga last week so not sure what to think of it only that it does not give me the major fatigue I got from full dose of 4 pills of xtandi which lasted only 4 weeks then when to two pills for the last 12 months and my psa doubled to 14 over last 3 months. Next blood work end of March to see where psa is. Heck I take this one day at a time. I deal with the pain as Iam sure most here do. I set now short range goals. My next goal to take train with wife to DC to see oldest daughter, her husband and grand kids, next week. AND I eat organic. I stay away from white sugar, anything GMO red meat. Iam trying to help my immune system to fight this beside the meds.

one thought, if you bring up nutrition to the onc he might say "yea yea yea". I have had a few oncologist tell me that. Heck its my body not theirs. They believe in drugs, which is ok but the immune system in the gut is what needs (in my humble opinion) to be clean and working as good as possible to fight the bad guys aka mutated cancer cells. All my docs have said I should "not be here" but Iam. Last thought...the body fights normal garbage that we eat, the body then is fighting mutated cancer cells and then the body is trying to fight powerful toxic drugs. Again this is my opinion. I might lose this battle and one day I will, but I am throwing everything I can at it, except infusion toxic chemo.