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Gleason 10 - Further treatment advise

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Posted 5/2/2017 9:41 AM (GMT 0)
Hi As you all can see from my signature I’ve got high risk gleason 10 however at this stage I am not ready for further treatment i.e radiation. I am severely depressed and would like to delay treatment for further around 6 months so I can mentally prepare for this. I’ve decided to go for hormone therapy 3/6 months injection in 2 weeks time.
I’ve already lost appetite and hardly involve in day to day activities which I usually love to do. Recent pSMA rleveals that residual disease in prostrate bed however no signs of distant mets.

I am also seeing a physiatrist and been give tablets related to sleep issues. I’ve lost around 2 stones in past 6 months.


I would like your thoughts on delaying radiation further and continue with HT for the time being.
Posted 5/2/2017 12:18 PM (GMT 0)
Jack , I'm not an expert on advanced, or highly aggressive, PC. But one thing I do know, is that if you've got G10, it's important (that's an understatement) to hit it hard with everything you've got. Unless your DR advises otherwise, is say to do that. Or in the words of Halbert, one of our band of brothers here, "go big or go home"

Your depression is just as important as your PC, especially if it's interfering with your interest in proper treatment. I would address that as well, if you aren't already. And consider going on mess. Once you find the right one, it will make a huge difference in your quality of life.
Hang in there, and please, stick around here and lean on the group for support . We've all done that from time to time.
Posted 5/2/2017 1:22 PM (GMT 0)
Stay Vigilent!
Posted 5/2/2017 1:41 PM (GMT 0)
Jack,

I am certainly no expert, just another "brother" like yourself fighting this dreaded disease. I can relate to being depressed and fighting PCa at the same time. I thought more than once, I've got this thing under control only to have it "blow up" per say.

As Pratoman said, "Your depression is just as important as your PC, especially if it's interfering with your interest in proper treatment." Hormone therapy may slow it down a tad bit but being an aggressive form of PCa, I think most "brothers" on this site will say to keep putting one foot in front of the other and throw the kitchen sink at it.

Have faith in the one that put us here, in yourself and your doctors.

In my prayers....Lee
Posted 5/2/2017 1:51 PM (GMT 0)
Jack
As Lee said you're depression should be
Dealt with as it is interfering with your pic
option
I second what Lee said
Keep the faith
You are also in my prayers

Jack
Posted 5/2/2017 1:53 PM (GMT 0)
Talk to your doctor about the depression. HT and PC can cause clinical depression. There are things they can do to help - including meds. You might need something. Forget about further treatment and get the depression treated. Then you'll be in the right state of mind to deal with your treatments.

Andrew
Posted 5/2/2017 1:59 PM (GMT 0)
Hit it as hard as you can with everything that's available to you...You are playing a different ball game with G-9 and G-10 and this game is played with different rules...
Posted 5/2/2017 5:58 PM (GMT 0)
Hello Jack and sorry you find yourself in the position you're in. If you're depressed, the hormone therapy could make that worse. I'd take that up with your psychiatrist--not sure if it makes sense to be on an anti-depressant or not.

I do wish you all the best--lots of guys here with tough diagnoses that do okay, so hoping you're part of that group! Good luck to you!
Posted 5/2/2017 6:15 PM (GMT 0)
Jack1954 - Coincidentally just this morning I started posting in the "depression" forum here on HW.
Other brothers here Prato and Lee have read my trials in other PCa forums.

My recent post: www.healingwell.com/community/default.aspx?f=19&m=3840543


Heed the words of InTheShop. What you are feeling may be a lot larger than you might think.

InTheShop said...
Talk to your doctor about the depression. HT and PC can cause clinical depression. There are things they can do to help - including meds. You might need something. Forget about further treatment and get the depression treated. Then you'll be in the right state of mind to deal with your treatments.

Other recent quotes to take to heart:
Michael_T: "If you're depressed, the hormone therapy could make that worse."

Indeed it can!


Good luck Jack! You are not alone.
Posted 5/2/2017 10:00 PM (GMT 0)
Jack:

Keep the faith friend. I'm a Gleason 9 diagnosed at 57, four years post RALP (Dr Ash Tewari), margins, lymph nodes, seminal vesicles all negative. PSA undetectable; no ED , no incontinence.

Hang in there!

Jeff
Posted 5/2/2017 10:16 PM (GMT 0)
Jack,

I think it's a great idea to stay on HT for awhile. That give you more time to heal completely from the surgery, and the cancer will be stopped in its tracks in the interim.

I know that when one is depressed, the last thing one wants to hear is a Pollyanna. But it is incredibly good that the PET scan found cancer in the local pelvic area only. That bodes well for a cure.
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