Posted 10/25/2017 12:36 AM (GMT 0)
I stumbled upon this site when I was diagnosed in Feb of this year. I researched as much as I can and made the best decision possible for myself and my family.
After my first biopsy, I ended up with an infection that took a toll on me. While recovering for that, John Hopkins reviewed my slides and confirmed my 3+3. I had a cystoscopy completed to check for bladder issues. Then I followed everything up with another biopsy, which revealed much more than the 1st biopsy and confirmed what the MRI revealed. MRI showed a lesion.
I chose to have a radical because I am 37 and I totally trust my doctor, Dr. Liss.
We're near the same age and I know he was going to be super careful to spare any nerve damage.
I am two weeks post op now. The initial pain was tolerable. My shoulders hurt from the harness during surgery, but after a few days that subsided. My mid section has been sore but has improved. The catheter was annoying and I was excited to have it removed on day 7.
Day 8 felt great. I thought I was going to be in great shape. Day 9 brought some excruciating pains after voiding. The pain felt like terrible internal muscle spasms that left me hunched over, sweating profusely and wishing I could have an epidural. By the 4th time that day, I went to the ER. It happened again at the ER and I was given meds to control the muscle spasms. The pain and symptoms improved quite a bit. I still feel like a am carrying a golfball in my perineal area. Practicing kegels feels like I am squeezing the golfball.
It's uncomfortable to sit as well as get up and down from a seat. It's impossible to keep from leaking when doing so and hurts that perineal area as well. I also leak when coughing, sneezing, trying to pass gas and any other slight push movement that my body makes.
I look forward to a good recovery and hope that all of the little pains and leaks go away in time.
I appreciate the fact that everyone on here shares so much. I'm young, my peers have not experienced any of this and none of the men in my family have been diagnosed. I'm the lucky one that gets it. Gotta be something from the military, but it'll take the rest of my life to prove it.