Stay inquisitive

My advice to all would be keep gathering information, especially from this forum, that bears on your situation.

Eleven weeks ago a urologist at Bassett Hospital in Cooperstown, NY told me, based on flawed data, misintrepretation, and refusal to follow up as suggested by radiologist, that all he could offer for treatment was Lupron shots that might hold my cancer at bay for 5 years. “Anyway,” he added, “at your age we shouldn’t even have tested your PSA.”

Eleven days ago, thanks to corrected interpretation of biopsy slides at Johns Hopkins, confirmed at Memorial Sloan Kettering, plus follow-up reviews of CT and also MRIs at MSKCC, Dr. Karim Touijer removed my prostate (one of 200 he completes every year). Pathology report said no spread to lymph nodes, seminal vesicles, or bladder, and no cancer at any of the surgical margins. Two days ago the catheter came out, and thanks to 6 weeks of Kegels, I am continent.

Without the counsel offered here, plus Dr. Walsh’s book (“you only get one primary treatment so choose as well as you can”), I would not have had the courage to keep pressing for more information, filling in the unknowns.

Thanks to all.

Great news, Progressing! Keep your spirits high and your PSA low!
Except that I’m G8, our T3aN0 post RP pathology reports are quite similar. What schedule are you on for post RP PSA checks? Any talk of adjuvant RT?

Progressing said...
no cancer at any surgical margins

I would not consider adjuvant RT.

George