JHU second opinion back, wine better be good for this disease ;)

I think I'll have a second glass tonight ...

UCSD pathology, JHU Pathologt

A-D Benign , JHU same
E 4+3 10%, JHU same
F 4+3 25% , JHU 4+5 20%
G 4+3 60% PI present , JHU 4+5 60%
H 4+3 50% , JHU same
I 4+3 70% , JHU 4+5 70% PI present
J 4+3 90% , JHU same
K 4+3 90% PI present , JHU 4+3 90%
L 4+4 90% , JHU 4+5 90%
M 4+4 95% (Target 1) , JHU 4+3 90%
N 4+3 15% (Target 2) , JHU 4+4 20%

Disappointed that I had to call to ask for this after seeing a claim at Aetna (results faxed to UCSD on 6/11/2018).

I've moved up a lab work appt from July 18 to tomorrow for testosterone and PCA to get a (hopefully) confirmation that the ADT started seven weeks ago is doing something. I had a RO appt on July 25 to review Uroflow test scheduled on July 20 in terms of being good enough for brachy boost -- I've left message with nurse case manager (Dr out of country) to see if I can't get this moved up to discuss what JHU pathology means and see if we can't get the radiation started sooner rather than later.

One day forward at a time, no alternative.

Off to poor the second glass now to go with dinner.

(still need to update signature)

Why not just polish off the bottle?

TA, if you're following this thread, tell me please: How can any decent pathology lab call something a secondary 3 if it's really a 5? I can see a difference of opinion over a single step, but two steps?

Redwing57 said...

Saipan Paradise said...
...TA, if you're following this thread, tell me please: How can any decent pathology lab call something a secondary 3 if it's really a 5? I can see a difference of opinion over a single step, but two steps?

I'll jump in. Just guessing here, but it's more likely both numbers were bumped. So a 3+4 becomes a 4+5. Which one is shown first is a judgement call about which is more prevalent. I had a couple of 4+5 become 5+4.

Those changes significantly affect the treatment options, going from unfavorable intermediate risk into the high risk group.

I too was a bit surprised by the 4+3's that became 4+5's.

This can be a learning experience to others -- namely do get that second opinion. I held off for at least 4 weeks or more in the false belief that a NCCI center of excellence should get the pathology right. Yikes.

Just clarify, the initial pathology was G8 -- so I'm not entirely convinced my treatment options are changing. I do have a greater unease about whether I'll be seeing this again in the years ahead after my initial ADT + IMRT + brachy boost.

And to Saipan, we did finish the bottle (though it had been opened a day before) AND splurged with chocolate and glass of 2003 port for desert (after steamed salmon with TJ's quinoa salad).