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Posted 9/6/2018 4:47 PM (GMT 0)
Ok guys like I said I’m trying to be positive here ...trying hard ..
Been 1 month since Edr and hdr ...been home and depressed ...I need to face facts and it’s tough ...I can’t eat what I used to eat that’s for sure or is it too early to tell...I take miralax Flowmax 2 a day ..things aren’t right and do t know if they will ever be ...I drank 2 beers last night before 7 ...I was up every hour until 4 am peeing .. during radiation my jaw was hurting bad couldn’t sleep ...thought I was grinding but I wasn’t ...funny now that stopped ...started getting a sharp pain in my right foot after the third treatment ...now my foot hurts and goes numb ...I sound like I broken record I know ...my family diesnt want to hear it my wife is ready to leave me ..I am seeing dr to today and I getting all this off my chest ...I know it’s my fault fir choosing g this but I think he should have warned me about alit of these side effects and how they could be permanent when I asked hi. about them all he dismissed them ..I’m young 57..I told him my concerns ..I think if he was looking out for my best interest he should have recommended surgery to me ...will it do me any good,no ..but I think I need to get this off my chest ...is slot mental YES of course I mean I can’t do a lot of what I did all my life ...but that’s my fault ...I don’t know if I can perform my job now ..but sitting here isn’t doing me any good ....I guess I am hopi g fir inspiration from people that MSU e things will get better ..
Thanks
Posted 9/6/2018 5:11 PM (GMT 0)
Stan you are depressed and anxiety-ridden. you need to get help or you will drive everyone except the most hardcore codependents away from you, and right now you need support not a cosigner.

I don't believe your situation would be any different had you chosen surgery. but either way: that ship done sailed.

it's going to get better but you can't see that. are you on anti-depressants? are you talking to a therapist or psychiatrist?

we know the problem. we've all been there. you've been given plenty of suggestions. what are you doing about it?
Posted 9/6/2018 5:27 PM (GMT 0)
Stan...you face a two-front battle. The physical issues and the psychological ones. I think finding a therapist could be very helpful. And I'm also wondering about depression--have you talked with your regular doc about that.

I'm sorry that you're hurting like this.
Posted 9/6/2018 5:36 PM (GMT 0)
Stan-

As I said before, you have to eliminate alcohol, caffeine and fruit juices for a while. That means you cannot drink 2 beers. At all. You should be restricting fluid intake - drink (slowly) only if you are thirsty. Also, try one Rapaflo instead of two Flomax.

Those symptoms in your jaw and feet have nothing to do with the therapy you received - how could it even possibly? You are allowing these thoughts to take over your mind. It is obviously destructive.

Before you destroy your relationships, get psychotherapy and whatever meds you need for anxiety or depression. I am a big fan of psychotherapy - it may help you get to the bottom of what is really causing you to act this way.
Posted 9/6/2018 6:19 PM (GMT 0)
Stan, please, please get help. I will echo, once again, what you've been told many, many times. There are medications that can help with your depression and anxiety. There is no more shame in taking those drugs than any other you might take for any other malady. Focus on the good things in your life. Wake up and be glad you're still here, that your wife is still here, that your family loves you, that you live indoors, that the lights are on and there's food in the fridge, and for every other single thing that you should be grateful for. You are focusing and obsessing over what went wrong, but, you are still here!

Negative thinking builds on itself until that's all you can do. I'm so sorry that you're having such a difficult time, but I'll bet dollars against donuts that you wouldn't be having such a difficult time if you could rid yourself of your stinkin' thinkin'!

Donna
Posted 9/6/2018 6:36 PM (GMT 0)
Stan, not to pile on, but you are getting very good advice here. Take it. See someone.

I was a wreck when i first came her. I've learned to deal with whatever comes along. And about 2 years ago, when my wife was diagnosed with a serious disease, i was really back to being a wreck. At that time, i gave in, and started taking Zoloft, an anti anxiety/anti depression med. It, along with weekly meetings with a Certified Social Worker, has allowed me to think logically. It took some time, but it has made a world of difference. I beg you to take the advice you've been given.
Posted 9/6/2018 8:34 PM (GMT 0)
Stan - the next step is up to you. You've been given all the advice we have to give, repeatedly. Take some action other than posting the same thing here.
Posted 9/6/2018 9:20 PM (GMT 0)
Radiation is like Russian Roulette. You cannot take out your prostate afterward. It has to work the first time, and it can always come back. The recurrence rates are depressingly high, like 30%, and the younger you are, the more time there is for recurrence.
Posted 9/6/2018 9:27 PM (GMT 0)
brrogers10: A lot of incorrect and/or inaccurate information there.
Posted 9/6/2018 10:11 PM (GMT 0)
BRROGERS10 you are living in fantasyland my friend! Wake up!! rolleyes
Posted 9/6/2018 11:13 PM (GMT 0)
"Radiation is like Russian Roulette. You cannot take out your prostate afterward. It has to work the first time, and it can always come back. The recurrence rates are depressingly high, like 30%, and the younger you are, the more time there is for recurrence."


invasion of the prostate snatchers
Posted 9/6/2018 11:43 PM (GMT 0)
brrogers...I'm not sure where you got the 30% number from. Like all things PCa, the success rate depends on your risk level. Low-risk and intermediate-risk have a much lower failure rate than 30%.

As to taking it out afterwards, a lot of failures are because the cancer had already moved beyond the prostate. So even if you could take it out afterwards, it may not necessarily help.
Posted 9/6/2018 11:57 PM (GMT 0)

brrogers10 said...
Radiation is like Russian Roulette. You cannot take out your prostate afterward. It has to work the first time, and it can always come back. The recurrence rates are depressingly high, like 30%, and the younger you are, the more time there is for recurrence.



This is the kind of crap that should be banned
Posted 9/7/2018 12:12 AM (GMT 0)

Pratoman said...
Stan, not to pile on, but you are getting very good advice here. Take it. See someone.

I was a wreck when i first came her. I've learned to deal with whatever comes along. And about 2 years ago, when my wife was diagnosed with a serious disease, i was really back to being a wreck. At that time, i gave in, and started taking Zoloft, an anti anxiety/anti depression med. It, along with weekly meetings with a Certified Social Worker, has allowed me to think logically. It took some time, but it has made a world of difference. I beg you to take the advice you've been given.

Thanks got Zoloft myself what dose were you taking and what anti anxiety if u don’t mind
Posted 9/7/2018 12:22 AM (GMT 0)
don't feed the trolls. We have at least one troller here.
Posted 9/7/2018 12:28 AM (GMT 0)

Stan1961 said...

Pratoman said...
Stan, not to pile on, but you are getting very good advice here. Take it. See someone.

I was a wreck when i first came her. I've learned to deal with whatever comes along. And about 2 years ago, when my wife was diagnosed with a serious disease, i was really back to being a wreck. At that time, i gave in, and started taking Zoloft, an anti anxiety/anti depression med. It, along with weekly meetings with a Certified Social Worker, has allowed me to think logically. It took some time, but it has made a world of difference. I beg you to take the advice you've been given.

Thanks got Zoloft myself what dose were you taking and what anti anxiety if u don’t mind

I was at 50 mg for a long while. about a month ago, With anxiety over making a decision on SRT & ADT, I went to 75mg, and it made a world of difference.
Posted 9/7/2018 1:56 AM (GMT 0)
Steve,
You and I should switch our treatments and problem would be solved. You went Radiation route and you think you would be better of with surgery. I went surgery route and I think I would be better of with radiation. I ruined my marriage and you will ruine yours too if you don’t stop complaining and looking back.
I think you should try to save your marriage and accept your status before is to late.
I did not know when to stop....
Be a better man and learn from other people mistakes.
Good luck!
MK
Posted 9/7/2018 2:35 AM (GMT 0)
Stan,
I'd like to emphasize what TA said. After radiation I found I could not drink coffee -- it drove me nuts because I had to take leak every half hour. I switched to tea, and its fine. Then later it turned out that alcohol made my incontinence much worse. So I've cut out coffee and alcohol. You should eliminate these bladder irritants for a while. Then once your bladder has calmed down you could try adding things back to see what you can tolerate.
Posted 9/7/2018 3:49 AM (GMT 0)
For you guys taking Zoloft, be very careful...unless you are already bald.

A female friend of mine took Zoloft, and all her hair fell out. Permanently. Twenty years ago.

Sure, you can wear a wig, but forget about damages, as the risk of alopecia was disclosed in their FDA application.

Be warned.
Posted 9/7/2018 5:04 AM (GMT 0)
my doctor told me my life would be back to normal in 2-3 years. he was mostly right but a couple of the years were very dark.
Posted 9/7/2018 7:52 PM (GMT 0)
*** really come on people please and you all wonder why I am beating myself up for not doing surgery...well let’s see ..one trip to the hospital 3 hour surgery foley 10 days ok ok ok ..ed and incontinsnce I get it ...I was told 18 % chsnce of incontinsmce me I was doing kegals. 60 sits up I think I would hsve been ok EDwho cares ...I dint .......so now Zoloft makes your hair fall out ..Xanax fir anxiety ..years to get better ..have to see a back specialists because mt back hurts like hell where they injected me ...have to take flomax maybe forever ..have to see my urologist hopefully he can help me ...hsve an app on Monday because I have a roid the size of a super ball sticking out of me .....sooo upset and no going back...pain on right side of abdomen muscle pain ...neuropathy right foot......I sure hope cancer is gone. Because surgery sounds like a walk in the park ....wish that prick would have warned me about all this esoecislly as primary treatment ..he could only give me @ 5 year study that’s it 94% I mean what kind of quality of life is this ......my fault the first RO told me like it was but 5 months later I firgrot all about him...guys don’t see too many drs they will confuse your mind ..and record all sessions on your phone so u can relisten....sorry then you get mad when a warn people...getting to the point where I don’t care ..I hope I don’t lose my job over this ..

Post Edited (Stan1961) : 9/7/2018 2:22:27 PM (GMT-6)

Posted 9/7/2018 8:24 PM (GMT 0)
Sorry I dog I sure hope none of this happens to you ..you sound like u hsve a wonderful young don ...you need to raised him ..thank god mine are all grown now and can help
Posted 9/7/2018 11:07 PM (GMT 0)
Stan, are you doing ANYTHING we're suggesting? Like cut out the coffee and alcohol for a little while? Like see a therapist? I don't know what else?

Read some of the horror story threads about surgery issues. There are a lot of them. Oh, the ADA forbids employers from firing employees who become disabled.
Posted 9/7/2018 11:39 PM (GMT 0)
Stan,

Try taking AZO urinary pain relief, it may help get you through the night. Dont be alarmed if your urine is a bright orange it is just flushing out the radiation, at least that is what I told my wife. And ask your Dr. about self catheters, that way you can completely empty your bladder before going to bed.
Posted 9/8/2018 1:52 PM (GMT 0)
Sorry hsve other issues ad well ..distal spinal. Mudculsr atrophy ..very weak legs no calf muscles ..now all of a sudden the nerve in my right leg dehind my knee is hurting bad making my right foot kinda numb ... I just made a bad decision ..that’s it period .trying to figure out how to deal with it guys ...it’s my own fault ..I was told by an RO not to do radiation I’m too young .i was told by a surgeon st Stanford that surgury is the only way there is no plan b if u do radiation.. UCSF surgeon said I could do either. But both surgeons were worried about long term side effects of radiation in s young msn like me .. I saw all the side effects from radiation and should hsve ran ...but RO tell u what u want to hear ..not the truth .i guess I should hsve really gone over it better with my wife ..I was very nervous about surgery and going under never been in s hospital before ..when RO to.d me sbout brachytherapy...he said I would get a spinal which was another mistake I hsve a bad back I declined to ask what u would be doing in the OR for an hour with my legs up, well of course they knock you out ...if u knew that I would hsve never er did it ..no I can’t pee right hsve gas all the time ..on flowmax ..probably fir good .who knows what else the radiation did to me ..just a mess right now...unfortunately thetecis nothing anyone can do or say to me ..I know surgery would hsve been s much better choice .....I am done now won’t be posting anymore .thanks fir advice I need to figure this out

Post Edited (Stan1961) : 9/8/2018 7:56:53 AM (GMT-6)

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