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anyone have g68-psma

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Posted 9/21/2018 10:02 PM (GMT 0)
My PSA is rising rapidly. In the past, I've done the C11 Pet Scan at Mayo.
But now Umich is doing clinical trials, so I'm trying to get in. Sadly, due to a severe spinal injury, travel is very difficult. But, frankly, this is the scan I would try for.
Anyway, I'm looking for experiences with this scan. Please share.
Also, so far I haven't seen mention of any cost involved.
I know it is free at NHS, but I'm not going there.
Does anyone know what the cost is at Umich (just curious!)?

Mel
Posted 9/21/2018 11:49 PM (GMT 0)
Mel, as you know I’ve got no experience. I’m just bumping this up, to keep it at the top. Someone will respond.
Did you just get another PSA result or is this more of the same,?
Hang in there man.
Posted 9/22/2018 12:11 AM (GMT 0)
What is your current PSA?
Trials may have exclusions based on that number.
In other words, your signature would be helpful for searching clinicaltrials.gov
Posted 9/22/2018 12:35 AM (GMT 0)
I am looking at getting it at UCLA. I believe it will cost about $2850. I am waiting until next calendar year when my health spending account is replenished. Getting an Axumin scan in the meantime - my insurance will cover that.
Jeff
Posted 9/22/2018 2:43 AM (GMT 0)
FYI... Axumin scan also covered under Medicare.
Posted 9/22/2018 5:35 AM (GMT 0)
Mel,

I have done several PSMA PET/CTs and /MRIs. As I recall your C11 Pet Scan at Mayo showed a lymph node met more than a year ago. So if your PSA value is rising rapidly, the PSMA PET/CT will show several lymph node mets and probably bone mets too. I hope no visceral mets. Then you will know where they are but not yet what to do with this result.

You can follow the guidelines and start with life-long ADT. Or try the experimental metastasis directed therapy and try to debulk the mets. That will slow the progression, not cure you. It may be that you have so many mets already that nobody will be willing to treat you with local therapies. These are: SBRT radiation, ePLND or PSMA therapy. The PSMA therapy (theranostics) will work with any number of mets.

George
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