MO Appointment tomorrow

Good evening to all. Husband and I will be heading to his first appointment tomorrow with the medical oncologist at The James in Columbus. I am more nervous about this appointment for him than those previous - I have no idea why. Perhaps it is because we have actually had a bit of a return to "normal" life this past several weeks. He has returned to work and has been doing well overall - near 100% return to continence except for the rare leak with a sudden cough and some remaining groin discomfort related to the lymph node dissection. Issues with ED remain. His PSA 3.5 weeks after surgery was 0.06. Not sure what to expect tomorrow, other than I am pretty sure he will be heading to some additional treatment given his pathology findings. We have not gotten the Decipher results as of yet. Any advice as to things we need to be sure to ask about? I have a list, but want to make sure we address everything. Any feedback will be appreciated.

Thank you for the support Saipan. We haven't scheduled the RO yet, my husband wanted to see the MO first and then proceed - his decision in his time. But, hopefully very quickly after the visit tomorrow. The MO he is seeing specializes in prostate cancer - I hope he's as good as his patient reviews and outcomes indicate.

Good advice - thanks Andrew!

So, made the trip to Columbus for the MO visit. Definitely a return to the reality of this disease and out of the somewhat “normal” world we’ve been enjoying the past few weeks. Doc and NP were great. Reviewed all the options for ongoing treatment and the need for some testing prior to the start. Will be scheduled for pcPET scan to double check for any mets. Praying it will be clean as the July scans were. Repeat PCA today was 0.07 - 2 months out from surgery now. Last PCA 1 month ago was 0.06 - different lab/machine, so I guess I would consider it stable, but was hoping for a decrease from the last - seems something must still be present. Doc said get the scans and a repeat PSA in a few weeks. He wants to see the trend before moving on treatment. Husband is back to the dark side a bit tonite - thinking he’ll die from this disease. I just feel like we took a few steps back into anxiety land, but hopeful that we’ll still have many years together - at our gradually advancing age I think it’s all a crapshoot. Will also be meeting with an RO in the next week or so to evaluate that option. Thanks to all here for the listening ear and support. Will definitely try the deli the next time around Bucks - didn’t see your post until tonite. I think we’ve got many more trips to The James in our future.

Bucks - I shared your story with my husband - he needs to hear about those that are doing really well. His bone scan and ct in July were clear - praying for him that it stays the same next time. The waiting and worrying is the worst I think. He’s ready to move on to treatment and some hopeful news. Today is our 40th anniversary-and we want to make 50! On another note, we love Cbus and go fairly frequently for shopping and concerts. I used to work for Buckeye Health Plan - my office was across from Easton - that was a bit hard on my paycheck! Thanks for the feedback - pray your good results continue for a very long time.

LOL! Thanks Michael!