52 y/o male. Active - and relatively fit. Retired Military. Just diagnosed with Gleason 6 (3+3) – 2/16 cores on MRI guided bx <5% - - diagnosed at Mayo, Phoenix on 5JUL19.
First issue was a high PSA in 2010 (7.99). Told it was prostatitis. Took antibiotics - PSA went down under 3. Then it was up and down...
2011 (PSA 3.03),
2011 (PSA 3.44).
Aug2011 neg bx x12 sites.
2012 (PSA 2.77),
2013 (PSA 3.03).
2014, 2015, 2016 – No PSA – didn’t want to deal with it until I turned 50.
Sep2017 (PSA 6.674) - prostatitis, antibiotics.
Nov17 (PSA 2.014-after antibiotics),
Feb2018 (PSA 5.26).
Mar18-Genpath 4K Score Test 3%.
Feb19-prostatitis, antibiotics 2 months.
May19 (PSA 5.94).
Late Jun19-MP-MRI Mayo Phoenix (PIRADS 5 lesion in left transition zone extending base to apex/No overt extraprostatic extension, however, tumor abuts capsule over 2cm in lateral base/No pelvic adenopathy or skeletal lesions). Prostate volume 4.9x3.8x4.9 – 44.5mL (PSA Density 0.13ng/mL^2). .... that sounds REALLY BAD!
Early July 2019 - 16 core 'MRI guided' bx @ Mayo, Phoenix - cores 1-3 Benign tissue, core 4 benign tissue with chronic inflammation / core 5 (left mid) Gleason 6 (3+3), grade group 1, spanning 0.6mm on slide involving <5% of specimen / core 6 benign with acute and chronic inflammation / core 7 (left transition anterior-posterior from base to apex)Gleason score 6 (3+3) grade group 1, spanning 1 mm on slide and involving < 5% of specimen. Aparently, the other 9 cores were normal.
Last week - 1st Phone Consult with Uro Doc at Mayo after bx results came in – said he felt MRI may have overestimated extent/nature of the cancer (PIRADS 5). Suggested active surveillance/watchful waiting. Said he wants to see me in 3 months. Explained that the nature of the bx pathology suggest low probability of cancer spreading or becoming more aggressive. Suggested I consider a 2nd opinion with oncologist.
Contemplating next steps now – But given my often SIGNIFICANT prostatitis symptoms for the last 3 years – knew SOMETHING was up – this is actually a relief knowing to some degree that my PC at least for now is relatively lower risk – if you can call cancer such a thing. I will follow up back at Mayo next month. Need to sort out how to proceed with PC diagnosis, AND ongoing prostatitis (periodic urine retention issue... man it can take a long time to pee). Thankfully no ED issues.... almost wish it was the other way around.
I did request that mayo send out for an Oncotype DX test, and I am arranging to have a second opinion on the pathology from Dr. Johnathan Epstein at John Hopkins.
Can't say I'm glad to now be a member, BUT, I am in good Company!
Best regards,
G.
Post Edited (TB2G) : 7/18/2019 5:03:33 PM (GMT-6)