Anti-climactic 'final' Uro visit

Last week I had my PSA&T, three years post RP and two years post-RT. My PSA is still undetectable and testosterone is still at castrate level (up slightly from 11.4 to 14.8). We spoke extensively... he is my 4th urologist, the one who did my AUS two years ago. We discussed the US task force recommendations of 2012 and it's impact upon my diagnosis and treatment.

I wanted to discuss my ongoing low-T and had brought along printouts from Dr Morgentaler's video regarding the possible link between hypogonadism and prostate cancer. (Testosterone and Prostate Cancer: Is There a Link? which is well worth watching!) and my suspicion that I have likely been hypogonadal for twenty years... the entire time period that I was seeing the urologist who had completely missed my PCa.

He reminded me that I am still at very high risk for recurrence and that he is totally opposed to any form of hormone supplementation... then abruptly ended our discussion and walked out. At the desk they told me to repeat the PSA&T in six months and schedule a return visit with the doctor in twelve months. So instead of finding him interested in any of my ongoing problems, now I'm on my own for another year.

Just as well, as I have other health issues to address, as always seems to be the case. But when I got home and read about the visit on the portal, he had written... He has a lot of regrets and frustrations about the initial diagnosis and management of his prostate cancer and discussed in detail. He does a lot of online research and focuses a lot of attention and time on researching diagnosis and treatment of prostate cancer. Recommend he focus on going forward with quality of life..."

Unfortunately, I gotta agree with him. Each time I check into one of the online prostate forums, I am reminded of all that I've been thru. So it may be better that I stop doing so. I will miss reading the perspectives of those gentlemen here who have pathologies far worse than my own, yet have accepted their fate with dignity and grace. I'm not saying that I'm leaving, but for the sake of keeping my head out of dark places, it is probably better that I become an infrequent lurker, at least for now.

Thanks for all of the information, inspiration and support (plus a few laughs) that many of you have given me over the last couple of years. Remember to keep 'no subject' going. What more can I say, but that I have nothing more to say.

yeah I hate to hear this RobLee. but i'll tell what Rob, when I'm out doing things, off the computer.....and more importantly, off of the cancer sites......I *DO* feel better.

(but, before ya go....just listen to *this* lol...…..

My T has never been above 250 that I can ever remember. My pcp has been saying all along that the low PSA is due to benign tissue. Soooooo….I told him last visit …."Let's put me on some T and see if that won't give me some energy!"

"No."

"Why not"

"If you'd been undetectable since your surgery.....we'd do it."

"But you've been telling me for years that it's benign tissue. So why the change?"

"Well, we'll test ya again in 3 months and take it from there." LOL


Oh my....these guys.

Anyway....man...hate to see you go but I do understand completely.

Be cool....and let us know how you're doing from time to time. It's always good seeing you here RobLee.

Take care.

Be cool man.

RobLee - Thanks for the post, I am new to the game relatively speaking and can see how this can become an mini-obsession trying to help people and re-living your own issues each time. Hope you do well.

Rob, good luck to you. I am especially grateful for the information you provided about the AMS 800 here and elsewhere. I had mine installed a month ago and much of what you shared reduced my anxiety level entering into that adventure.