Posted 4/25/2024 8:59 PM (GMT 0)
See responses below. I tried to color code my answers but it didn't work.
Most importantly, how are you doing now? Doing well, though PSA is beginning to rise quickly. In each of my two 6-treatment sessions, PSA dropped from 65 to 0.65 and from 300 to 5.91. Since my last Pluvicto treatment PSA is now up to 32. My docs have said I should either do another chemo round or get into an Actinium 225 trial. Actinium 225 is a more powerful therapy than Pluvicto. Check it out. There may be a trial here in SoCal (and other places perhaps) where they will allow a past Pluvicto patient into a trial. I'll provide more of that when I know more.
Where did you have your Pluvicto infusions? I had six treatments of LU-177 (before FDA approval) at UCLA under a compassionate care program (for free). I then had six more treatments after FDA approval when it became Pluvicto. These six were covered fully by Medicare and administered at Hoag in Irvine, CA.
Were you part of a clinical trial for the second series? No, it was covered by Medicare, and probably not seen as "a second series" since they didn't pay for the first one.
The insurance is our big question mark. We were told that if we had traditional Medicare, UVA would not entertain the possibility without FDA approval because Medicare could come back a year later and demand their money back. Not sure what you mean here, as Pluvicto IS FDA approved. Medicare approved my Pluvicto in 24 hours, last May.