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Alex 3 months after operation

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Posted 7/9/2007 9:55 PM (GMT 0)
Hello to everyone today it's three months since I've had my operation and since I don't come here as often as I did when I first found out about my cancer I thought I would check in and let you know that I still appreciate all the help you gave me in those first few weeks I found out what I had.  I'm sure I would've gotten through it but everyone here sure made it easier.

As the time has gone by my incontenace has improved but my desitire for sex has gone away.  Even taking viagra has not helped.  I thought the first few weeks after I had the operation and I was having some erections without medication that I was going to be okay but as the weeks have gone on I can say without hesitation that I do have ED to some degree.  Also the desire for sex is not there.  I've tried to kick start the impulse but with mixed and somewhat disappointing results.

you would think that this would've put me down but not really.  Our family still does things together and as far as intimate relations with the wife well the good thing is we have always been best friends. 

I've desided to not give it too much thought and to keep taking the viagra to increase blood flow to the vital areas.  What happens is what happens.

My main reason for this posting is to let you all know that I'm alive, doing fairly well and I'm very greatful for everything you did for me.

take care of yourselves and pass the word to all men get a checkup and practice healthy preventative care.

Alex :-)

 

Posted 7/9/2007 10:11 PM (GMT 0)
Hi Alex,
Haven't heard from you in a while. great story on you and your wife. I feel the same way about my "buddy". She has had to wait some time for me to get, er, ready but again we haven't missed a beat in our relationship. You sound great. Looks like you might be done with this, and certainly hope so. Thanks for all your contributions here and stay well

Tony
Posted 7/10/2007 1:06 AM (GMT 0)
Tony

Thanks for the kind words. I came back with some reservations. I felt I had overstayed my welcome and that the kind folks in here didn't need or want me here any longer. I don't blame them in that when everything was happening I wasn't the most upbeat person in the world. I thank you for responding and Hope that everything in your life and everyone elses is going well.

take care
Posted 7/10/2007 1:30 AM (GMT 0)

Alex:

Glad to hear that all is going good and sounds like you are in a very positive frame of mind.  Just want you to know your journey that was chronicled here will be of alot of value to other men who will be facing your same needs and fears.  Hopefullly we are all here to help each other and not judge.  You have come thru this will flying colors!!!!

Good luck to you and your family - keep us up to date.

Dutch

Posted 7/10/2007 1:50 AM (GMT 0)
Honest to God, Alex, I thought about you today, wondered where you've been and how are things going for you...and here you are!
It's so good to know you're healthy and looking forward. Sounds like you & your family are doing well - as it should be, right?
The rest hopefully time will help with - you're still healing, Alex.

You are wanted - please continue to post. Everyone needs to hear how you are. It helps us, too.

All the best to you,

Susan
Posted 7/10/2007 2:41 AM (GMT 0)
Oh! Alex,   Okay ~ now…..   I think we need to shake your branch a little here.   You rascal!!!!!! The ####’s prove you are wrong about not being wanted and all the postings in your threads (2 locked due to # of replies….. hello!!!)   so ~ you might need to find another reason you didn’t come back.   I for one didn’t see your thread from 5-11 until right this minute when I updated your threads…   The forum has grown tremendously in the past 3 months and I have missed several threads and it truly hurts my heart when I do.   It is so important for all of us to continue to stay close by bumping our own threads to the top with a short update periodically……   We have to work together here…   The threads are moving so quickly.     So ~ now that I’ve ruffled my feathers a little (the right of passage for mama bluebird’s ….   giggle      giggle)   This hug is for you!!!!   And you truly have touched a lot of lives and you really need to continue to do so!   The #’s say it all ~ Alex….   If you are still wondering… go back and read every single posting starting at #1.   Our thoughts continue to be with you…. even if we do miss a thread here and there.   It doesn’t mean we don’t care….   Because we do!!!      Continuing to keep you close in thoughts and prayers. In Friendship ~ Lee & Buddy     (direct links ~ just click on the title!   Reminder to click on the REFRESH icon once there) Threads started by Alex *aztec1958   1 st Thread started on 2-23-2007 just found out 109 reply postings 2544 views 2 nd Thread started on 3-21-2007 Alex's saga          115 reply postings 2928 views   more of Alex's saga (post surgery PSA) A tribute to all of you exercise after surgery   edited: misspelled word :) Post Edited (bluebird) : 7/9/2007 11:23:53 PM (GMT-6)
Posted 7/10/2007 3:17 AM (GMT 0)
To Everyone

Understand I didn't come back to get sympathy but rather to let you all know that I still think of you all on a daily basis. I've asked the company I work for to include me in a talk about cancer to employees and I have all of you to thank for that. I'm not a joiner but you have inspired me to reach out to others to tell my story and some of yours with the hope of helping others either find out about prostate cancer or maybe even prevent it.

The work that is done by all members of this family is very important and I hope that I can spread it beyond the virtual world.

Please understand that I hold all of you in the highest reguard.

Alex
Posted 7/10/2007 3:26 AM (GMT 0)
Hey Alex,

Great to see you posting again and great news on your recovery. Yeah, my wife and I found that PCa brought us closer together too. And the lack of desire for sex will change with time. Even at my age, it is now stronger than before PCa so don't give up.

Please stay with us. Your story is so emotionally powerful and will help lots of folks out there that think its not okay to let our emotions out. See ya pal....

Jim
Posted 7/10/2007 5:32 AM (GMT 0)
Alex ~   We are thrilled you posted!!! When I popped your threads to the top the other day I was hoping you would post soon.  You did and we are greatful.  Things have gone well for you and as you continue to heal things continue to get better with time. :) I wish your last posting started off with.... I still think of you all on a daily basis. My posting was meant as a huge HUG…. (if it made you feel uncomfortable… I will go in and delete it!   It was my way of showing you how important your sharing is.)   Yes ~ we must all be an advocate for getting the word out…   I tell everyone!!!!!   You will definitely touch lives in a very personal way with this sharing at work…      Heartfelt Friends ~ Lee & Buddy
Posted 7/10/2007 3:06 PM (GMT 0)
Hey, it is great to hear from you Alex :)

If you remember, we had surgery the same week as you. Ken is taking cialis and viagra, but we also are experiening ED here, although desire is coming back little by little. Luckily cancer and incontinence are behind us (hopefully!). Our doc wants to do pump before injections, so we will see!

Best wishes, and do keep us updated every once in a while :)

Tanya and Ken
Posted 7/10/2007 3:13 PM (GMT 0)
Hi Alex,
Glad to see you posting. You're about a month ahead of us. It is a roller coaster but this board sure helps. I keep thinking of how much rougher it must have been for my dad who had the surgery back in the 15 years ago and didn't know what to expect or what was normal.
Thanks for checking in.
Vicky & Curt
Posted 7/11/2007 3:18 AM (GMT 0)
I do enjoy the responces from everyone and I will try to keep in touch more often. Bluebird I had no problem with your post please keep giving everyone the support you do. Tanya I think I will always have a connection with you and Ken and I'm very glad to here from you both.

Nothing really did add right now but I'll be back you can count on that

Alex
Posted 7/11/2007 3:26 AM (GMT 0)
  Will do!!!!!  Added Threads: November 7, 2007   Helping to keep Alex’s “Journey” together……   Don’t forget to Refresh when the new thread/page opens using a direct link within the forum….   1 st Thread started on 2-23-2007 by Alex *aztec1958   just found out 109 reply postings 2910 views 2 nd Thread started on 3-21-2007 by Alex *aztec1958   Alex's saga                                                                                                           1 15 reply postings 3184 views   07-09-07   Alex 3 months after operation 05-11-07   more of Alex's saga (post surgery PSA) 04-21-07   A tribute to all of you 04-06-07   exercise after surgery 03-19-07   why is my thread "just found out" a locked topic Post Edited (bluebird) : 11/7/2007 12:38:39 PM (GMT-7)
Posted 7/11/2007 4:40 AM (GMT 0)
Wow,
What a great idea. Volunteer to tell our story. You know I did not find anyone to talk to at my huge comapny, instead there was no support mechanism in place. This is a nice way to help others, and promote awareness. Great job, Alex...

Tony

Post Edited (TC-LasVegas) : 7/10/2007 10:51:04 PM (GMT-6)

Posted 7/12/2007 11:37 AM (GMT 0)
hey Alex, glad to hear that all is well. that's great that you will be sharing your story because there is bound to be at least one person who is or will be experiencing the same thing. I have also found with time that I don't get here as often as I used to. at first I knew everyone and now there are so many new names (which is unfortunate on one hand but great that they found this site). take good care of yourself! kat
Posted 7/12/2007 5:36 PM (GMT 0)
Hi Alex!

I am pleased that things have gone well for you ie post-op PSa etc. If the Viagra isn't being too helpful other possibilities are out there. I got about 50% erections on my own with no meds help but it took 5 months to get that far. You might want to discuss with your doctor the injections for ED - re tri-mix and bi-mix. Also there is the pump which many use, and also the penile suppository, MUSE I think it is called, not used much I think but some in my different PCa groups say it works well for them.

I wish you continued fast healing and success with those low PSA's.

Russ
Posted 7/13/2007 2:57 AM (GMT 0)

Hey Alex, you didn't overstay your welcome, you understayed it.  We need you.

BTW, do you have a 1958 Piper Aztec?  If not, from whence cometh your call sign?

Regards,

Bill

Posted 7/13/2007 4:00 AM (GMT 0)
Jetguy
The call sign came from my year of birth and the school mascot from San Diego State. I don't worry too much about ED for those who have expressed concern. The Viagra does seem to work. It just seems that I don't have much interest in sex right now. Which is a shame since my wife has been working out and looks fantastic. Life can be funny sometimes.

Alex
Posted 7/13/2007 9:20 AM (GMT 0)
Hi Alex,

We're here to listen and support so don't feel any guilt about being down sometimes. We want to hear from you. Anyway this group is much better than a trip to the Comedy Club to lift your spirits, and it's a lot cheaper too; plus you don't have to worry about driving home slightly impaired. So when ever you need a little cheering-up, or just to say "HI" post us.

Glen
Posted 7/18/2007 2:35 AM (GMT 0)
Well over the last 4 days there have been some failures and success. The failure was my first night trying to have sex with my wife. Try as we may nothing happened and I came to the conclusion that maybe that viagra bought online was not very good. There was no face flush or any of the other side effects I've had before with the presciption and expensive stuff I got before.

But today was a good day as I went without a pad all day at work and didn't have any problems. I think I'll still need one if I try anything too physical but it was a success story.

so in 4 days batting 500 and there was some reaction later to the viagra but the wife fell asleep (lol) just my luck.

take care everyone
Posted 7/18/2007 6:10 AM (GMT 0)
Well 50-50 isn't so bad. Take the Viagra earlier I guess is the montra.

Keep it up, Alex. Er, I mean good fortune be with you...

Tony
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