Walt, how funny - I just thought about you today and checked out the website and there was a message from you :)
I haven't logged on for a while due to feeling a bit despairing and not wanting to 'spread the gloom' if you know what I mean.
I so appreciate your kind wishes and prayers and so does Rick (he is not the kind of guy to contribute to forums but does like to linger!!)
Life for us is weirdly normal - can't help thinking sometimes that the doctors have got it wrong. How can a person feel so well and yet be so (apparently!) consumed with a disease, without any outward signs??
Walt, I worry that I am taking a lot from the people on this lovely site and not in the position yet to give very much. Rick and I are still coming to terms with this and don't feel knowledgeable enough to help others yet, much as we would love to.
I really hope things are good with you. You always sound so positive and focussed and so full of life - a brilliant role model for all of us
Thank you so much for taking the time to chase us up, I'll make sure to stay in touch from now on
Very best wishes to you and your family and to everyone on healingwell. You are all always in my prayers
Julia