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why would ttg go down?! help!

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Celiac Disease
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Posted 1/17/2013 2:24 PM (GMT 0)
my daughter had a blood TTG of 9. (reference range was normal- 0-3, mild positive 4-9, positive 10.) this was after being on gluten for only 2 weeks (she's been about 80%gluten-free for the last 4 years). the pedi gi specialist said that he wanted to redo the test after a full 8 weeks on gluten to see if the numbers go up. if they do, she most likely has celiac disease. if the numbers stay the same or go down, she still MIGHT have celiac, but we don't definitly know. so, i just got the results back, and they are <2. wth?!!!!!!!!!!!!! why would they go DOWN?! why would she have been a 9 to begin with? ugh! any help would be really appreciated!!! btw, we got stool testing done from enterolab. results will be back within 3 weeks. i hear it's much more sensitive. i'm just so confused.
Posted 1/19/2013 4:14 AM (GMT 0)
they originally did the whole panel, and everything came out negative, with a total igA being normal. but, when i called the office yesterday, it seems they ordered the wrong test!!!!! they ordered the ttg igA, which was always negative. they were suppose to order the igG, to compare the results to last time! so i called the lab, told them about the mistake, and thank God, they had the blood still. they ran it today, should get the results back tomorrow or monday. also, i can't believe the doctor didn't catch his mistake! they actuallly told me to let her eat gluten for another month and check the test again!!!! imagine if she does have celiac, and the doctor told me to have her eat gluten for another month!!!!
Posted 1/20/2013 11:25 PM (GMT 0)
Hi, kerid I am sorry to hear about daughter having so much trouble but I would start by being grateful you have found a Dr. who believes her and believes Celiac is even actual disease worthy of his/her attention. For most of that alone can take Years! And they did tell you they made a mistake and are running the test again, you are definitely ahead of the game. Take a deep breathe and practice hoping without expectation. Smile; it makes people wonder what your up to; Garfield.
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