Anyone can develop celiac disease at anytime in their lives. Unfortunately, all celiac testing, even biopsies obtained from an endoscopy, requires the patient to be on a full gluten diet. You would have to do a gluten challenge for 8 to 12 weeks for the blood testor just 2 weeks prior to an endoscopy.
Most celiacs can tolerate about
20 parts per million. Most certified is less than 5 ppm. But some celiacs can not tolerate any. A Whole Foods diet (avoiding non processed GF foods) is best. Avoid oats and eating out.
If you have been gluten free for 4 years, you should have healed by now. You could have refractory celiac disease or non responsive. But the blood test should help diagnose that and you said your blood tests were negative. Consider looking at gluten getting 8nto your diet. For example I ONLY eat at 100% GF restaurants. I have had follow up biopsies and I have healed. So, it is possible!
You could have celiac disease, Crohn’s or SIBO. Perhaps you should push for the endoscopy.
Post Edited (cyclinglady) : 6/3/2018 11:01:22 PM (GMT-6)