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Microscopic Colitis verses Celiac Disease

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Celiac Disease
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Posted 3/20/2019 3:54 PM (GMT 0)
Hello, I had a positive biopsy for microscopic colitis prior to Budesonide. My last colonoscopy biopsy was negative while on Budesonide. I am currently having explosive stools again and now the GI thinks I could have Celiac. I tried to explain to her that I was not having a flare at the time of biopsy and was on a steroid. She told me to have Celiac testing while I was gluten and diary free for 3 weeks. Of course the test was negative since I was gluten free( talk about a waste in healthcare dollars) . I am now eating gluten for the challenge test .Can anyone recommend how to get 3 grams of gluten a day for the least amount of calories ?
Posted 3/20/2019 6:38 PM (GMT 0)
Sorry you had bad advice - and went off the gluten before testing.

At this point I wouldn’t worry about the calories - it’s a relatively short time frame.
The goal is to see if your small intestine reacts to the gluten.

You concerned about weight gain?
What’s more important is to find out if you have celiac disease.

Eat bread and pasta
Three weeks may not be long enough.
I would give it at least 6 weeks.

What blood test are you getting done?
You want the tTG antibody test.
(Anti-tissue Transglutaminase Antibody)
Posted 3/21/2019 5:06 PM (GMT 0)
I'm doing the challenge for 6 weeks. The blood test is Celiac Ab ITG TigA w/Rflx.
If it is positive what medication treats Celiac besides being on a gluten free diet.

Thank you
Posted 3/23/2019 12:54 AM (GMT 0)

Gram said...
I'm doing the challenge for 6 weeks. The blood test is Celiac Ab ITG TigA w/Rflx.
If it is positive what medication treats Celiac besides being on a gluten free diet.

Thank you

well for my son nothing - just went gluten free. But he had to take iron supplements for a few months because his damaged small intestines weren't absorbing the iron from food.

There really isn't anything to take for Celiac...you just have to be gluten free .

But, if you've got issues from the damage...like my son..then you need to treat that.
Posted 3/24/2019 12:40 AM (GMT 0)
I think you might need to consider a new doctor who might be more celiac-savvy. The recommended amount of gluten is about 10 grams or 1 to 2 slices of bread per day for about 6 to 12 weeks (only 2 weeks if going directly to endoscopy). Make sure you get the entire panel. Not every celiac tests positive to the TTG (like me). Also your being on budesonide which can be prescribed for refractory celiac disease might impact your results. Talk to your doctor.

https://www.beyondceliac.org/celiac-disease/Testing-and-Diagnosis/The-Gluten-Challenge/1510/

http://www.cureceliacdisease.org/screening/
Posted 3/26/2019 12:38 AM (GMT 0)
I agree with Cyclinglady about seeing a Dr who knows more about Celiac disease testing and diagnosis.
You don’t want to do a less than adequate challenge. If it’s negative than you really won’t know if it was because you didn’t take enough gluten for long enough time.... or if you just don’t have Celiac disease.
... which you may end up revisiting down the road sometime.
Best to do tha challenge properly the first time around.
Posted 7/18/2019 5:51 PM (GMT 0)

Robin233 said...
Patients with celiac disease need to eat a strict gluten-free diet. Eating gluten-free foods can avoid possible inflammation and problems and make your small intestine heal.

Yes, that's true - but when you're going for testing, you need to be eating gluten in order for the antibodies to show up and/or to see the small intestinal damage.
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