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Lyme disease, no thyroid diagnosis, but I think something else is wrong

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Thyroid Disorders
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Posted 5/17/2018 8:54 PM (GMT 0)
Hi guys! After a nearly year-long process of being turned away by doctors who dismissed my symptoms as just stress or hormones, I finally got a diagnosis last week of Lyme disease and have been on doxycycline the past 6 days. However, both my primary care doctor and my endocrinologist don't believe all my symptoms are related to Lyme.

While I was trying to get a diagnosis, I got my thyroid tested multiple times. Hypothyroidism runs in my family, and I was/still am experiencing many of the symptoms. My free T4 and T3 levels are in the normal range (though the free T4 is on the low side of normal), but my TSH increased from 3.5 to 4.6 in a period of 4 weeks. These numbers were below the reference ranges my PCP uses (max 4.68), and my endocrinologist won't even tell me what reference ranges he uses. He barely glanced at the numbers and said that was fine, but it doesn't feel fine to me, and I know Lyme can affect the thyroid. But with no doctors prescribing anything for me, I'm not sure where to turn.

In a week, I move across the country after graduating from college, but I will probably have to wait two to three months before getting a new doctor while I wait for my new insurance to start. I will have them recheck my thyroid and check to make sure the Lyme was eradicated, but in the meantime, what should I do? I've gained a ton of weight, lost all muscle mass, my face/feet are swollen, and I'm fatigued beyond belief. Are there any thyroid supplements you would recommend that don't require a prescription? Am I obsessing over this too much? Getting the Lyme diagnosis was a relief, but I still feel like something is wrong, and I feel essentially abandoned by all my doctors here who keep taking a "wait and see" approach and telling me to just recheck the numbers in a couple months. With how I'm feeling, I don't see how I can wait that long, so any advice/recommendations are very much appreciated!
Posted 5/19/2018 7:32 PM (GMT 0)
(though the free T4 is on the low side of normal), - clueless Dr

but my TSH increased from 3.5 to 4.6 in a period of 4 weeks - clueless again

and my endocrinologist won't even tell me what reference ranges he uses - also an "A" hole.

As you can see,. I'm fed up with our expensive and clueless healthcare.

Two people here are also mainly on the lyme forum. No one else on the thyroid forum knows lyme. Go there from now on.

You need more of a holistic / functional Dr approach for both issues lyme and thyroid. One month of doxy will not cure lyme- it will come back if thats all they are Rxing for you..

Lyma can CAUSE autoimmune issues including thyroid. Did these Drs test autoimmune thyroid antibodies- they should have. TPO and TgAb.

Goggle a better Dr, find a lyme group near your for a better regular GP Dr too.
Posted 5/25/2018 3:14 AM (GMT 0)
My endo was happy with TSH being 5 and wouldn't worry until mine got to 10? WTH
Naturapath did TPO's and my antibodies were off the chart.. 383 should be
32. There are so many tests it seems and this is so frustrating. Hope you
get some answers.

I am in the process of trying to get all the toxins cleaned out of my life,
make up, candles, No gluten, dairy has been iffy as of late. Buy only
organic.

Seems we really have to be in charge and research. Dr's are clueless
and they aren't running the right tests.

Post Edited (Lexi B) : 5/24/2018 9:17:38 PM (GMT-6)

Posted 5/27/2018 4:12 AM (GMT 0)
Dr's are clueless - many are.

The good ones are hard to find- and insurance hates "good" Drs who think out of the corrupted medical mainstream box.

Most Endos are thyroid clueless and most Infectious Disease Drs are Lyme clueless. How pathetic. It blows my mind that I need to educate some Drs I've seen. They should pay me then.
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