First visit to endo.

I have these types of flucuations too. I started seeing my endo in Oct 2009. My Lyme doctor had me on too much levoxyl and it was totally suppressing my TSH so the endo had to start from scratch.

She first took tests to see what my levels were and then started lowering my levoxyl. My TSH since October has been all over the place from a low of undetectable to a high of 5.78. I had been on the same dose at the time it was 2.01 and that is when I feel best. But then she tested 2 weeks later and it had jumped to the 5.78 for no reason.

So she increased my T3 at that time. Now in July my TSH was 2.88 and so she has now increased my levoxyl to .44mcg.

I am currently on 1 pill of T3 and .44 of levoxyl and am due to get tested again in 4 weeks. She has no idea why it isn't stable even though my doses are not changing... 

She also tested my T uptake and T3 and T4 free..

Kim

There is not very good tests for Lyme..unless you actually see a rash when you are bitten can you really be sure.

Most of the doctors go by symptoms and usually will test anyway...I am not in treatment anymore but I never had thyroid problems until I had been sick for a couple years.

Hopefully we can come up with the correct dose to keep it stable but as we know they only test every 6 weeks so it can be a long process...good luck

 

Well, I went to the endo today. Odd little man..... :S
He poked and prodded my throat so much it was making me feel like he was strangling me.
He apologised for making me cough so much, but kept doing it. :(

He said my TSH level was normal, but as a precaution he wants to do an ultrasound on my throat in a month.

Such fun...