Thyroid cancer...secondary to lymphoma??

So I have been having a ton of problems with my thyroid (along with a bunch of other things) I had an uptake scan done 3 months ago due to my levels being out of whack. My TSH is basically nil but my T3 and T4 are in the normal ranges. No nodules present at that time. My doc was thinking Graves (I need to see an endo, but the closet one is 4 hrs away).

In the meantime I am having all sorts of pain everywhere, extreme fatigue, lack of appetite (but havent lost any weight, I gained a bunch in the previous months) and emlarged lymph nodes in my neck, abdomen, under my arms etc. I also have superior vena cave syndrome (my veins are very distended on my upper arms and chest and tons of fluid in my neck and face).

Everyone is thinking probable lymphoma, but I am basically on a watch and wait to see if the lymph nodes continue to grow and multiply. Also my SED rate has been high for 8 months or longer. The only way to dx lymphoma is to biopsy a lymph node (they want them to be over 2cm) I have a couple in my neck that are big enough now.

Anyway, on to my concern. I now have several solid appearing hypoechoic nodules on my thyroid that weren't there before. I am really scared that now I have thyroid cancer too! My reasons being the nodules appeared within 3 months, they appear to be solid and they are hypoechoic. All these things point to cancer.

I am seeing a surgeon on the 26th to see if he wants to biopsy the nodules and or lymph nodes. Any suggestions? I feel like my doc here (I live in a very small town) isn't taking this very serious. She agrees that it is probably lymphoma, but says it can take a long time before it becomes aggressive. We just need  to wait for it to rear it's ugly head, is what she says to me.

So, this has been going on for months and months now and now I am afraid I have thyroid cancer too! I am just so scared and stressed right now. I just don't know what to do. Anyway, thanks for listening. It helps to get it off my chest if nothing else. I hope you all are doing well, take care.

Thanks Mikel, I truly appreciate all the support you give me and my Sis. You are such a great guy! I am going to call the cancer center in Kearney on Monday and see if they can see me. This surgeon keeps rescheduling my appt. I was supposed to see him the 2nd but he keeps putting it off a week (now it's the 23rd, I wrote the 26th but I was confused..lol) Once again hun, thank you for being you! I will keep you posted. Take care.

 

  Dear Shannon,

 

   Well, if I were in your shoes I would get to the nearest University. Or wait for the surgeon. You have to relax as much as you can until you get your biopsy done. Worrying about it now will take a toll on your body as well as your mind. After you get the biopsy done it should take about a week to get the results. It is going to be one heck of a long month for you.

 

    I know you said your appetite was nil... can you transition over to a high protien diet? That is what I do so I can get more "bang for my bite". Peanuts, eggs, tofu, yougart...? It will help to keep your energy up as much as possible. No matter what is going on, once you get the answers, you will need to be ready to fight it! You will need as much energy as you can muster.

 

     Please know you are always in our hearts and prayers. Try hard to take your mind off things. the wait has got to be terrible.

 

*hugg*
   dani

 

p.s. Do you read much? Or have something that could occupy your mind?

Hi damouthy1, I realize this an older post, but I'm in a similar situation, in that I have ongoing thyroid issues, and now my rheumatologist suspects Lymphoma.

I've been Dx'ed with: Fibromyalgia, Depression, GERD, IBS, Hypothyroidism, Vit D Def. I also have migraines and anxiety.

I couldn't help but notice we have very similar symptoms, and so when I came across this post and read your story it really hit home with me.

If you're still around on this forum, I would love to hear how you are doing now. I hope by now you've been able to sort things out, and that you are doing well!

Thanks for listening, and I hope to hear from you soon! :)