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Thyroid Disorders
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Posted 1/22/2014 5:00 PM (GMT 0)
im 44 and have been dealing with my tsh being in the 50-100 range i have never been regulated after having radiation iodine treatment for hyperthyroidism and now i am hypothyroid for 6-7 years .. i am on synthroid 400mcg and vitamin d3 deficient. i am losing my hair, my bones ache all the time and i am bloated and have puffy eyes with a hard time swallowing . my endo is now referring me to another specialist at a university clinic due to levels and she is unable to get things under control . i asked if there is any other medication that could be prescribed she didnt want to do that . we have did all kinds of testing for celiac and malabsorbtion which came back negative . any suggestions?

Post Edited (thyroid14) : 1/22/2014 10:03:08 AM (GMT-7)

Posted 1/22/2014 6:55 PM (GMT 0)
Having a brain and pituitary MRI can reveal if you have a tumor in your pituitary which causes your TSH to be so high.

Are you on 400 mcg per day or per week? if it is per day, then that is a very high a dose, it is possible that your TSH does not reflect your true thyroid status and thus you are hypER thyroid.

As I said above ask for brain/pituitary MRI/CT !

Do you have heart palpitations ?what is your resting heart rate ?

Good luck,

Post Edited (hypoHashimoto) : 1/22/2014 12:01:10 PM (GMT-7)

Posted 1/22/2014 8:41 PM (GMT 0)
yes i do take it daily also sometimes i do have palpatations with a heart rate in high 120 to 130 but not all the time.daily heart rate is mostly between high 80-100 . how can i be hyper if i was thrown into hypo ? i just dont understand it and why wouldnt the endo suggest that since this has been going on for atleast 4 years now ...
Posted 1/22/2014 9:51 PM (GMT 0)
I agree that 400 mcg. is a massive dose. I had RAI treatment also, and I take 200 because my thyroid is for all practical purposes non-existent. If your dose is too high, that would make you hyperthyroid (too much thyroid hormone in your blood) because synthroid is a synthetic thyroid hormone. It's normal to become hypo after the RAI because it destroys the thyroid gland. But your replacement dose sounds way high to me.

I think a second opinion is definitely in order.
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