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Posted 9/13/2019 12:21 AM (GMT 0)
I know no one seems to post over here anymore BUT
switching from levothyroxine/liothyronine to NP thyroid for my Hashimotos.
Any experiences with this? Good or bad?
I’m nervous about experiencing anymore hair loss.
Posted 9/14/2019 12:08 PM (GMT 0)
Everyone of us with hashi need to find what works for us, some people do well on Levo some need to add T3 for others the synthetics do not work and they try NDT.

What are you levels while on T3/T4 combo? how much do you take ?

Best,
Posted 9/26/2019 6:48 PM (GMT 0)
Ive been forced to change brands and types of thyroid meds about 8 times in the last 20n years. Some of which is not even offered in the US today.

What I learned: Your body will almost NEVER make a smooth transition from one thy med to another.

Why? - Because of diff fillers used that WILL have effect on absorb ability to the INDIVIDUAL.

This means experiencing differing levels "un-comfortableness", flashes, hypo , hyper, flushed feeling - since it takes time for the receptors to recognize a new looking hormone. Optimal is not reached till even after the 6 week test point many times, but 6 week point is a pretty good idea, just not complete yet.

Again, changed 8 times, and more going back and forth since the US has complete history of manufacturing changes and limited and zero supply of certain brands in the past. This even costs people employment in the past. Its pathetic. Im really tired of continuous changes.

Even T4 only has changes , just not as often. The Puerto Rico manufacture facility was whipped out when the hurricane hit 2018-2017-2016? That brand was done for a while.
Posted 9/26/2019 7:56 PM (GMT 0)
This is my first time changing types of medication. I’ve been on levothyroxine since I was a teenager (20 years ago) and then liothyronine was added about ten years ago. My thyroid issue has always been a nuisance but once it was discovered it was actually Hashi’s it was much easier to keep steady. I think that’s the story with a lot of people.
Things recently went haywire again during lyme treatment, something is disagreeing with my body and my TSH is all over the map, from .005 to over 40 in the same month. My doctor I see for thyroid thinks something the doctor I see for Lyme put me on to bind toxins interacted badly together.
Needless to say this is making me feel like absolute garbage, my hair is falling out In handfuls and my weight is difficult to control. This also makes it difficult to know if the symptoms are lyme or thyroid related sometimes.
Posted 9/27/2019 3:54 AM (GMT 0)
The beauty of NDT is one that Drs never tell you: NDT can be used sublingually. That way it goes into the blood stream via oral capillary action. Bypassing the gut bypasses many binding opportunities. T4 can will to protien. T3 cannot. It also bypasses gut absorbing issues in people with leaky gut, celiac ect.

But if you are taking some odd suppliment that goes into your blood and binds things, then maybe sublingual wont be much better.
Posted 9/27/2019 4:11 AM (GMT 0)
about how long does it take to break down sublingually? The pill tastes so nasty not sure I could hold there very long, but might be worth the effort if it helps I’m feeling so sluggish still. Ive also heard some take 1/2 in the am and 1/2 in the afternoon? Have you any experience with that?
I’ve been on the NP thyroid just over two weeks and I think I’m still a little hypo. I’m cold all the time and really tired. I was supposed to have a follow up yesterday but my bloodwork wasn’t back in time so rescheduled for Monday.
It was cholestyramine that did it and I stopped taking it immediately after my doctor figured it out. Even though I took it 4 hours away from thyroid medication I still had a bad reaction. Just still dealing with it’s after effects more than two months later. I’m still trying to get my thyroid back to “normal”. That stuff is a horrible nightmare, wish I could time machine back and tell myself not to take that one.
Honestly that experience was the straw that broke the camels back for me with my LLMD. I’ve been doing Buhners by myself (with my thyroid doctors supervision) for Lyme and co ever since and have felt much better in that department.
Posted 10/2/2019 4:15 AM (GMT 0)
I have no issue with the taste, but it bothers some people. The new NP dissolves even faster than the old. I chew it a couple times then leave in cheek,;its gone in ten minutes. Used to take 15-20.

Yes I also take twice per day, about 3/4 of daily does in AM, then the rest at 3-4PM.
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